Month – January 2018

Healthwatch York Survey


Hi. I met with Healthwatch York yesterday and was made aware of a survey where they are looking to find out what matters to the people of York ‘health-wise’. There are only a few questions, but most importantly there is an area to add what you think they should be looking into. This may be […]

Accepting Myself As ‘Uniquely Abled’ After Developing a Chronic Illness


  By Lisa Alioto in The Mighty.   The moment I realized I was uniquely abled and not just someone with extra limitations, it hit me like a ton of bricks. I still don’t understand exactly why this was the case. I don’t define myself by these limitations. I realize there is so much more to me. […]

What Is The PIP Review ? How ‘Austerity’ Measure Backfired And Could Cost Government £3 Billion


  By Steven Hopkins in HUFFPOST.   The Government has pledged to review all 1.6 million disability benefit claims after deciding not to fight a High Court ruling on personal independence payment (PIP) that a judge called “blatantly discriminatory”. The court ruling in December, ministers previously said, could see 220,000 PIP claimants awarded higher payments. Earlier […]

Bearing Witness For ME/CFS – Valerie Free Lights Up A Hidden World: Pt. I Valerie’s Story


  By Cort Johnson in Phoenix Rising.   ME/CFS needs witnesses – people who can stand firm in the face of denial and rejection and tell their story to the world. Each time we responsibly speak the truth to the medical profession, or our families, or our friends, or the NIH or whomever we begin […]

The Stories We Tell: Unrest Inspired ME/CFS Effort Triumphs In The Unlikeliest Of Places


  By Cort Johnson in Health Rising.   When things start moving, help shows up in the most unlikely places.  Take a recent blog from a University of Michigan sports blogger – Ace. Ace has been sick since high school but only in the last couple of years has he been diagnosed as having chronic […]

An Offer You Can’t Refuse

NICE logo

From the mrspoonseeker Blog.   In the previous post about the NICE Guidelines revision, it was reported that Prof Mark Baker of NICE had raised the issue of the right of patients to refuse treatment, in this case with CBT and GET in mind. Steve, who frequently contributes to this blog, left the following response in […]

Planned Roadworks In Yorkshire And The Humber: Monday 29 January 2018

Fulford Roadworks

  From The Yorkshire Times.   The following summary of planned new and ongoing road improvements over the coming week is correct as of Friday 26 January and could be subject to change due to weather conditions or unforeseen circumstances. All our improvement work is carried out with the aim of causing as little disruption […]

Ron Davis Talks On ME/CFS………And Texas Listens

Ron Davis

  By Cort Johnson in Health Rising.   Ron Davis was invited to the University of Texas to talk to the biological and bioengineering departments over two days. His long talk was putatively on developing affordable technologies that can be used by doctors, but it ended up being more than that. On the technology side, […]

Health Notes: Fatigue or Chronic Fatigue Syndrome ?

Chronic Pain

  By Alecia Humphreys in Ladue News.   You are officially one month into 2018. Maybe it’s the year you pledged to work out more, read more, travel more – do anything and everything more. While it’s great to have goals, it’s hard to implement more into an already hectic schedule, especially when you aren’t allowing yourself […]

We Are Death, Warmed Up

Severe ME

By Paul Tomkins at   It is torture, of a kind. The unrelenting jab of needles into the spine. The vice clamped to the temples and tightened. The syringes slowly draining blood from the thighs, injecting concrete into the calves. Poison swelling in the stomach, pumping to the veins, tying knots in the guts. […]

OMF Receives $1 Million Donation

Ron Davis

  From The Open Medicine Foundation.   2018 is starting off to be a fantastic year. Today, OMF has received a $1 million donation! The Pineapple Fund has generously donated $1 million to OMF through Bitcoin, stating, “We chose the Open Medicine Foundation because ME/CFS is a serious and complicated condition that torments the life of its sufferers. […]

Champion ! York Has Britain’s Best Fish And Chip Shop

Breaded cod fillet with chips and peas

  From YorkMix.   A York fish and chip shop has battered the competition to be named the best in Britain. Millers Fish & Chips in Haxby took the title of Fish and Chip Shop of the Year in the 30th National Fish and Chip Awards, organised by the Seafish industry body. A family-run fourth-generation […]

This Weekend Join The Nation In Discovering What Birds Are Visiting Our Gardens


  From The Yorkshire Times.   Spending an hour watching the birds in your garden this weekend will help provide the RSPB with an annual snapshot of the UK’s garden birds as more than half-a-million people take part in Big Garden Birdwatch. Taking part in the world’s largest garden wildlife survey is easy – simply […]

Flu Jab: All You Need To Know About The Vaccination And The Illness

Flu (Text serie)

From iNews. Headlines about this season’s flu outbreak make for alarming reading. Considered to be the worst flu season since 2011, as many as 120 people have died in the UK. There is also concern about Aussie flu – the H3N2 strain – taking grip of the UK as it has in Australia. It is one […]

NEID Disease ? Study Suggests Neuro, Endocrine And Immune Systems Work Together To Produce ME/CFS


  By Cort Johnson in Simmaron Research.   Bruun Wyller continues to surprise. When last heard from this erstwhile cognitive behavioral therapy (CBT) proponent asserted that more research into Epstein-Barr virus in chronic fatigue syndrome (ME/CFS) was needed. Now he’s looking at the interaction between the immune and endocrine systems. Wyller begins his new study […]

Elevations Of Ventricular Lactate Levels Occur In Both Chronic Fatigue Syndrome And Fibromyalgia


  From Solve ME/CFS Initiative.   Note: the use of “CFS” in this article reflects the nomenclature used in the studies referenced. New research published in Fatigue: Biomedicine, Health & Behavior found ventricular lactate (lactate present in cerebrospinal fluid) might serve as a biological marker of underlying brain dysfunction for patients with chronic fatigue syndrome (CFS), fibromyalgia […]

Are You Chronically Ill ? Don’t Make Things Worse !


  By Toni Bernhard J.D. in Psychology Today.   I became chronically ill in 2001. For several years afterward, I was a master at making a difficult situation worse for myself. The list is long, but I’ll limit myself to six ways in which I did this: I hated my body for not recovering from what had […]

Mapping Our Community

York Centre for Voluntary Service

  From York CVS.   In 2017 York’s Health and Wellbeing Board launched an ambitious Joint Health and Wellbeing Strategy, running till 2022. This effects all of us, living and working here. It has four key elements: mental health and wellbeing, starting and growing well, living and working well, ageing well. In 2018 we’ll be working […]

From ME To You


  By Lisa Alioto in Herald Review.   Myalgic encephalomyelitis (ME) is a devastating multi-system disease that causes dysfunction of the neurological, immune, endocrine and energy metabolism systems. What does that really mean? Life with ME is ever-changing, painful in every way. An abbreviated view would be to share a small piece of a day in […]

Nan Shepherd: Move Aside Robert Burns, It’s Time To Celebrate Scotland’s Identity With A Woman


    By Nicolas Le Bigre and Alistair Heather in The Conversation.   The half-light of these weary January days will soon be lit up by the linguistic thrills of Burns Night. This international celebration of Robert Burns’ timeless poetry will see millions across the world raise a glass to Scotland’s bard on January 25. Burns is used by Scots […]

The York ME Community –  York Inter Company Fantasy Football League For The York ME TGA Shield


  The York ME Community runs an Inter-Company Fantasy Football League sponsored by TGA Mobility.  This is to help raise awareness of the illness that affects around 250,00 people in the UK, and 800 in the York area alone. Companies enjoyed a great 2016/17 season with Bransby Wilson coming out on top and winning the […]

Nearly 200 Flats To Be Built In York City Centre – But None Of Them Are For Sale


  By Gavin Aitchison in YorkMix.   Nearly 200 flats are to be built in York city centre, in what developers call an exciting new concept for the city. Developers have unveiled their plans for the next phase of the huge Hungate site, in the east of the city centre. They plan to build a large block […]

These Groundbreaking Migraine Prevention Drugs Just Smashed Clinical Trials


    By Signe Dean in Science Alert.   A series of late-stage drug trials are showing great promise for a completely new generation of migraine prevention drugs, which could hit the market as early as next year. For the millions of migraine sufferers around the world, this is the most welcome news in decades, as […]

Part 1: Interview With Retha Viviers, Founder Of ME/CFS Foundation S.A


  By Ynug Anabel in Afrika   In an attempt to understand and raise awareness about the situation of ME/CFS patients in our continent, our Afrika News team contacted the director of ME/CFS foundation South Africa, Mrs Retha Viviers. In this part of the interview, Mrs Viviers will thoroughly explain what ME/Chronic Fatigue syndrome is and she will […]

5 Things Not To Say To People With Chronic Fatigue


  By: Katie Medlock in CARE2.   Chronic fatigue syndrome is one of those disorders that many people may joke about having, but the reality for actual sufferers is no joke at all. Because the main symptom, fatigue, is something that everyday folks experience every now and then, they don’t necessarily understand that those with a diagnosis experience […]

Get Wise To Flying With A Disablity


  From British Healthcare Trades Association.   Planning a holiday or travel as a disabled person or with a disabled family member can seem challenging. The question asked when it comes to offering travel options for people with disabilities or injuries is ‘how can travel change to positively benefit people’s lives and increase their independence?’ […]

Sir David Attenborough Coming To York To Open New Dinosaur Exhibition


  From YorkMix.   One of the giants of broadcasting will be in York this spring to open a brand new exhibition. Sir David Attenborough will officially open the Yorkshire Museum’s major new exhibition Yorkshire’s Jurassic World on Friday, March 23. The 91 year old naturalist and television presenter will take a guided tour of […]

The NICE Guidelines – Starting Again ?

NICE logo

From the mrspoonseeker blog.   There was some encouraging feedback from the recent NICE ME/CFS Guidelines Stakeholder meeting, an early milestone in the long process of revising the guidelines. But was such encouragement justified? I wasn’t there myself, so I am grateful to those who attended on our behalf. Blogger and patient advocate Sally Burch reported that […]

Doctor’s Visit Symptom Checklist


  From Phoenix Rising.   Dr. Katrina Berne, a clinical psychologist and author who specializes in ME/CFS & fibromyalgia, has developed a comprehensive symptom checklist she advises her patients to complete and take to their doctors. This form should be updated every few months to document your symptoms and your progress. It’s especially helpful in […]

Older People Are Missing Out On Money They’re Due


  From Independent Age.   How to boost your income and save money The Independent Age website has a lot of information about extra money you can claim and ways you can cut your bills. For help tailored specifically to you, call our free Helpline on 0800 319 6789 to arrange to speak to an adviser. A […]

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