A Consensus-Driven ME/CFS Clinician Coalition Takes Shape

 

Bateman Horne Center

 

By Stephanie Griffin in Bateman Horne Center.

 

On March 2-3, 2018, the Bateman Horne Center hosted an exciting summit of leading U.S. ME/CFS clinicians who came together to share their pearls of wisdom on diagnosis and treatment in order to improve ME/CFS clinical care and refine more precise research targets. The meeting was remarkable for the ambitious nature of the agenda, the enthusiastic participants eager to share, learn and often times be challenged by their peers. Each participant engaged in extensive pre-work exercises beginning 10 weeks prior to their arrival. This data was then analyzed and presented as the starting place for lively review and prioritization among this group of expert clinicians.

The goals of this meeting were ambitious and included the following:

  • Summarize key diagnostic and treatment methods and the science that supports them. The intent is to produce a paper for publication in a peer-reviewed medical journal to inform current and future medical providers.
  • Rigorously distill the most important clinical knowledge and intuition that can guide and drive research. This could include recommendations for treatment trials, identification of possible illness subsets, and observations of illness presentation. The meeting conclusions will be summarized in a report for the research community.
  • Establish a foundation of expert clinical knowledge, propose mechanisms to support ongoing clinical collaboration, and increase the pool of experienced ME/CFS clinicians. The plan is to hold a summit at least annually and use other mechanisms to advance shared goals between summits.

 

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