By Steve Topple in The Canary.
THIS ARTICLE WAS UPDATED AY 7PM ON WEDNESDAY 18 AUGUST. IT PREVIOUSLY STATED THAT NICE WAS LOOKING FOR 50 PATIENTS TO GIVE CASE STUDIES. IT LATER BECAME APPARENT THAT IT WAS TWO DOCTORS UNRELATED TO NICE ASKING FOR THIS.
The National Institute for Health and Care Excellence (NICE) has caused uproar among chronically ill and disabled people. This is because it’s delayed the release of crucial treatment guidelines. And as many people are pointing out, the reason for the delay is potentially toxic.
Myalgic encephalomyelitis: ME/CFS
Myalgic encephalomyelitis, commonly referred to as ME, is a chronic systemic neuroimmune disease. The latest research says it affects at least 65 million people worldwide and around 250,000 people in the UK. But the numbers could be underestimates. Some research puts the number of undiagnosed ME cases at 80%. Meanwhile, other studies show a prevalence rate in the population between 0.2% and 3.48%.
ME is also sometimes referred to as chronic fatigue syndrome (CFS) or ME/CFS. Some people believe the two conditions are different. There is debate about the definition, though, with it also being referred to as post-viral fatigue syndrome. In this article, it’s referred to as ME unless otherwise stated.
To read the rest of this story, click on the link below: