WELCOME TO THE YORK ME COMMUNITY

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ABOUT US

My name is Bill Clayton and I live in Fulford, York.  I am aware of many national web sites and forums dealing with ME, but I feel there is a need for something more local, allowing us to get a true feel for what support there is in the area, and fostering a greater togetherness in our efforts to improve that support for the people of York.  This site will only be as good as the support given by those that visit it, adding their ideas and experiences, so please spread the word that we are here to help each other and raise awareness of ME in York.  I would like to give a huge thanks to my brother Ian who has put this site together for me, with me adding the content, but now it’s pretty much over to you to bring it to life.

 

I am not medically trained in any way. Any views or opinions I give on this site are my own, and based on being someone who was hit with ME in April 2006 and am still suffering from it. I have tried many things along the way and read many research articles. I have spoken to others who are suffering and understand the problems they have. I will keep things simple, no big medical words here, although if I reproduce someone else’s work, I may not be in a position to alter anything within it.  If I try to explain something medical, believe me it will have to be simple for me to understand, so I’m sure you will understand it too. I will tend to give my basic understanding of the situation rather than anything too heavy, as I know how our heads work!

This site is here to let you know that you are not alone, but that others in the York Community are here for you and happy to answer any questions you might have as much as our knowledge allows. This is for those who suffer with the illness, family, friends, or just the inquisitive. The aim is to raise awareness and belief. Funding will then follow to help find treatments and eventually a cure for this beast. Although we will all have our stories to tell, and will ask and receive help with anything at all, I want this to be an outward looking site too. I want us all to do our little bit if we can, to raise awareness of ME, to get us up there with the coverage that the more ‘popular’ ills get in the media. I want to see a team of rugby players happy to wear pink tutu’s proud to be running for ME as they do for cancer and diabetes !!

I will aim to outline research that is currently going on around the world, and will try to keep this up to date.

I give my opinion on what I think is the cause of ME, but as many smarter people than me can’t quite agree, my views may change in time as I gain more knowledge. I just feel that I need to believe in something as a base to my understanding of it all.

I don’t confess to be right in everything I say on this site, these are just my opinions gathered over the years I’ve been dealing with this illness. Please feel free to disagree, or correct me via the chat box area. All I ask is that you are polite and courteous to everyone using this site, respect their right to have a view whether you agree with it or not, and keep language civil. Anyone I believe not using the site in a helpful, caring way to others may have their access blocked.

I want this site to be a welcome, warm and friendly place to visit. Please use the relevant chat box to have a moan and to get things off your chest, but I want you to help build the community spirit by using the other chat boxes to discuss things other than ME, make friends, talk about knitting, hobbies, or anything else that makes you feel ‘normal’.  Even with this illness we are still allowed to have a sense of humour, so let’s hear your worst jokes !  I will also aim to include plenty of links to things going on around York, so that you might look at this site as being a ‘one stop shop’ for you.  Please note that although you have to register your details to take part in the chat rooms, you can give any name you wish if you’d like your personal details or real name to be kept private.

I do not recommend any treatment listed or mentioned here, but outline what I know about them to save you time and effort. I encourage you to add your views about anything you’ve tried and whether it has worked for you or not.  I’m well aware that things that work for one group of people may not necessarily work for all.  I also highly recommend that you seek further views and opinions before making a decision to try anything, especially if it might cost you money.

One final point I’d like to make is that although I will do my best to ensure the accuracy of the site content, please take it upon yourself to be part of the site checking team !  I, like you, will have my limitations due to the ME and may not always be able to keep on top of some things.  I won’t see it as a criticism if you point out any inaccuracies or things that are out of date.  This site is for all of us, so I welcome your input and suggestions.  If you’re aware of any changes to information you see on here, I will warmly welcome your updates !

Please feel free to get in touch on any matter that concerns you relevant to having ME, whether through the various chat boxes or by emailing me. I will make every effort to get back to you as soon as I can, and will do all that I can to help.  I can be contacted via Bill@York-ME-Community.org.  (Not case sensitive !)

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