By Elaine Roth in Scary Mommy blog. It’s been more than a year since the very first case of COVID-19 was contracted in Hubei province in China. Since those very early days, the virus has gone on to infect more than 57 million people worldwide, with more than 11 million of those cases happening in the […]
ME Blogs
The Enduring Light Of Love
Trial By Error: NICE Draft Guidance On ME/CFS Coming Next Month
By David Tuller, DrPH *October is crowdfunding month at Berkeley. I conduct this project as a senior fellow in public health and journalism and the university’s Center for Global Public Health. If you would like to support the project, here’s the place: https://crowdfund.berkeley.edu/project/22602 The pandemic has played havoc with everything, including the timeline of the development […]
Trial By Error: That Royal Society Of Medicine Webinar On Long-Covid
By David Tuller, DrPH Proponents of cognitive behavior therapy and graded exercise therapy as treatments for CFS, ME, or their variants keep trotting out their favored interventions for patients suffering from persistent fatigue and other symptoms after acute Covid-19. Last week, the Royal Society of Medicine conducted an online webinar called “Long COVID: Understanding the shadow […]
Balancing Hope And Acceptance With A Chronic Illness
By Caroline Elizabeth in the Frozen Amber Blog. Finding acceptance while holding on to hope with a chronic illness is like walking a tightrope, especially as the years grind on. Hope is a vital life force that propels us, whereas acceptance allows us to discover new ways of living within the moment. Clearly […]
A Reminder To You
By Anna Redshaw in M.E. Myself and I. No amount of willpower or positive thinking will rectify the faulty ATP production within your body. No amount of wishful thinking will suddenly see your likely-mitochondria-failure reversed. Please don’t let flippant remarks by others, or by articles written by those outside this community, about how […]
Meet The Scientist: Professor Chris Ponting – DecodeME
By Dylan Murphy, Guest Blogger, ME Association. Professor Chris Ponting is Chair of Medical Bioinformatics at Edinburgh University and a Principal Investigator at the MRC Human Genetics Unit, Institute of Genetics and Molecular Medicine. His research group has made substantial contributions to protein science, evolutionary biology, genetics, and genomics. He has served on the editorial boards of […]
The Fear In My Doctor’s Eyes
By Anil van der Zee in CAPTURE.DANCE.WORDS. The honeymoon. Before becoming ill, my relationship with the medical world was always great. It was pretty much straightforward really. During my profession as a dancer, injuries were of course always of a concern. I had to be in close contact with doctors, physiotherapists, massage therapists, […]
Caution And Controversy
Paul Garner: Covid-19 And Fatigue—A Game Of Snakes And Ladders
By Paul Garner in BMJ BMJ Blogs. It’s over, I thought! It was the beginning of May, after the weirdest seven weeks of illness I had ever had, a roller coaster of exhaustion, pain everywhere, tinnitus, headaches, and fog: I felt remarkably well, almost high. The aches had gone, my mind was alive, […]
Welcome To Law And Health
By Valerie Eliot Smith in Law And Health. “The history of ME remains one of the worst examples of unacknowledged institutional abuse in modern times.” ~ Valerie Eliot Smith 2019 ***************************** Note: this blog works across all devices but can be viewed most easily on a computer or tablet. Thank you for visiting […]
Trial By Error: Today Is May 12th And Everyone’s Missing
By David Tuller, DrPH Today, May 12th, is International Awareness Day for Chronic Immunological and Neurological Diseases (CIND)—often shortened to International ME (or ME/CFS) and Fibromyalgia Awareness Day. Besides ME, other diseases included in the CIND group, per the May 12th International Awareness Day site, are chronic fatigue syndrome, Gulf War Syndrome and multiple chemical sensitivity. […]
ME And The Pain Of Looking Forward
By talmandan in The Low Side Blog. I’ve spent the last six weeks with some strange form of writer’s block. I don’t know if it has just coincidentally been parallel to a global pandemic, or due to some debilitating levels of ME related exhaustion, or a combination of both. I’ve watched while chronic illness bloggers […]
Mourning The End Of An Era, And #NotEnough4ME
Life In Lockdown: What Matters When All Is Lost
The Distant Corona Connection
By Anil van der Zee. Adjusting. We are in a crisis! A pandemic! The coronavirus is spreading. It’s frightening. Will I be infected? My friends? And most importantly how will it affect us? The uncertainty of the unknown is probably the most unsettling of the whole situation. As we are dealing with a […]
A Letter To My Nearest And Dearest
M.E Myths Debunked: Part 1
Marcie Zinn Was A Force For ME
From Meaction. We are deeply saddened by the sudden death of Marcie Zinn, PhD, who was a dedicated researcher, advocate and person with myalgic encephalomyelitis (ME). Marcie died of sudden heart failure on Dec. 28, 2019. Marcie and her husband, Mark, founded the Neurocognitive Research Institute (NCRI), a non-profit that specializes in 3D-mapping of the […]
Scope Accused Of ‘Exploitation’ After Seeking Disabled Writer To Work For Free
By John Pring in Disability News Service. A disability charity has been accused of “exploitative” and “disgraceful” behaviour after asking disabled journalists to write an article for its website without payment. The charity Scope sent out a message on social media this week seeking a “disability blogger” who could write an article […]
30 Years Beyond Comprehension
Stop Assuming I’m Not Disabled Just Because I Don’t “Look Disabled”
When The Triggers For Your Illness Are Constantly Changing
By Lisa Alioto in The Mighty. For the past six years I have lived with myalgic encephalomyelitis (ME). It’s a multi-system disease that affects the neurological, endocrine, immune and energy metabolism systems. Its hallmark symptom is post-exertional malaise (PEM). PEM is a reduction in functioning and a severe worsening of symptoms after even minimal exertion. […]