Charity

An Early Christmas Present For Physios For ME

Research

From Physios For ME.   In May 2020 we were thrilled to announce that we had obtained funding from the ME Association Ramsey Research Fund for a study; “Feasibility of investigating oxygen consumption (VO2), heart rate, blood pressure, lactic acid levels and activity levels of people with Myalgic Encephalomyelitis during normal daily activities.” You can […]

Chronic Fatigue Syndrome, Migraines And “Brain Fog” – An Interview With Dr. Nancy Klimas

Migraine

From The Honest Migraine.   The Honest Migraine is pleased to share an exclusive, three-part interview with highly respected expert, Dr. Nancy Klimas, who holds multiple noteworthy positions including Director, Institute for Neuro-Immune Medicine, Nova Southeastern University. Klimas specializes in myalgic encephalomyelitis – chronic fatigue syndrome (ME/CFS), which commonly results in migraines, “brain fog,” and […]

Forward-ME Call For Health Warning To Be Put On Existing NICE Guideline For ME/CFS

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  From The ME Association. A highly influential UK campaign group is demanding that a health warning be put on the existing NICE guideline for ME/CFS – to try and stop more patients being damaged by graded exercise. Some 24 members of the Forward-ME Group – led by founder The Countess of Mar – have signed […]

Important News From Jennifer Brea

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  From #MEAction.   Today we announce that #MEAction’s co-founder and executive director, Jennifer Brea, is going to be transitioning to a board position so she can take time to focus on her health after five intense years of ME and advocacy. This will not happen immediately- we will be working hard to find a […]

Meet The Long Haulers Developing ME/CFS

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  From #MEAction.   #MEAction sent out a press release last week to 300 major publications in the US introducing them to the long haulers who are experiencing symptoms of myalgic encephalomyelitis (ME), specifically post-exertional malaise. We alerted the press to the terrifying possibility that 1 million more Americans could develop ME following COVID-19 at […]

Use Of Glucose For Energy Production In Muscle Cells From Patients With ME/CFS

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  By Cara Tomas, Joanna L Elson, Julia L Newton & Mark Walker in ME Research UK. Translational and Clinical Research Institute, Newcastle University, Newcastle upon Tyne, UK Scientific Reports, 2020 Oct 26; 10(1):18232 Key findings Muscle cells from people with ME/CFS are less able to use glucose as a fuel to produce energy This […]

Open Medicine Foundation Australia

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From Emerge Australia.   Established in October 2020, Open Medicine Foundation Australia (OMF Australia) is an Australian foundation set up to support biomedical research through the establishment of a new ME/CFS collaborative research centre in Australia. OMF Australia was founded by Emerge Australia in partnership with the Open Medicine Foundation, meaning that Australia is now […]

Can You Help Steer The Future Of Healthwatch York ?

Healthwatch York

From Healthwatch York.   Healthwatch York at York CVS is keen to recruit at least three new Steering Group members, including a new Chair. Steering Group members play an essential role in setting our strategic direction and checking that we are on track to deliver our aims and objectives. The coronavirus pandemic has highlighted and […]

NHMRC Grant Boosts ME/CFS Research

Funding

  By Deborah Marshall in Griffith News. The National Centre for Neuroimmunology and Emerging Diseases (NCNED) has been awarded $1.46 million in National Health and Medical Research Council funding for research into myalgic encephalomyelitis /chronic fatigue syndrome (ME/CFS). Part of Griffith University’s Menzies Health Institute Queensland , the centre’s researchers will investigate potential diagnostic tests as well as suitable […]

The Legion Man

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With the likelihood of less Poppy Sellers out there to remind us of the importance of the 11th of November, I thought we should be reminded a little earlier this year. The Legion Man He stands with pride As well he might Medals upon his chest With memories of the fallen Who now are laid […]

Health And Wellbeing Survey 2019

Emerge

    From Emerge Australia.   Emerge Australia conducted a second Health and Wellbeing Survey of people living with myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS) in 2019. An impressive 1,055 participants from around Australia answered 60 questions covering demographics, caring responsibilities, ME/CFS onset and symptom experience, access to healthcare and other services, and the effect […]

Mestinon Trial Update

Research

  By Ronald G. Tompkins, MD, ScD Co-Director, The Harvard ME/CFS Collaboration in Open Medicine Foundation. In May, 2020, Open Medicine Foundation (OMF) announced the Mestinon Clinical Trial for ME / CFS, conducted at the Brigham & Women’s Hospital by Dr. David Systrom in association with the Harvard ME / CFS Collaboration at the Harvard Affiliated Hospitals. Background This study was […]

Forward ME Letter Re: Post-Covid/ME/CFS Management With Caution About Exercise

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  By Russell Fleming, Content Manager, ME Association The following letter has been produced by the Countess of Mar and members of Forward ME which is a collaboration of M.E. charities that includes the ME Association. It has been used by, for example, Physios 4 ME, when encountering guidance from other organisations that has raised […]

OMF Scientist Receives Grant Funding For ME/CFS Study

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  From The Open Medicine Foundation.   Open Medicine Foundation (OMF) is thrilled to share that our staff science liaison, Christopher W. Armstrong, PhD, has been awarded a grant to further his research into the relationship between the altered metabolism of nitrogen and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). The research will be completed at the ME/CFS Collaborative […]

September News From York Carers Centre

York Carers Centre

Our one to one carer support and advice is being provided over the telephone at the moment, please get in touch if you need us, we’re here to help. All our support groups and activities listed below are taking place online via zoom, and bookable by contacting our reception on enquiries@yorkcarerscentre or 01904 715490.  If you’d like to take […]

UK Charity Invest In ME Research Pledges £625,000 For Research Into ME In Norwich Research Park

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From Norwich Research Park. UK Charity Invest in ME Research is awarding £625,000 for continued research into the disease myalgic encephalomyelitis (ME or ME/CFS), including a clinicial trial at the Quadram Institute. This major investment is an increase of the charity’s previous pledge of £500,000 that was announced in late 2019. This research builds on […]

Bedbound Midlands Singer Releases Debut Album – And Is Forward Of Taylor Swift In Chart

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  By  Ryan Holmes in Matza Review. A singer who has ME has launched her debut album, after spending two years recording it whereas bedbound, with it presently quantity two within the Amazon Best Sellers chart forward of Taylor Swift. Kara Jane Spencer, 29, from Shirebrook, Derbs., was recognized with the debilitating situation when she was simply […]

The York ME TGA Inter-Company Fantasy Football League

Football

The York ME TGA Inter-Company Fantasy Football League   The York ME Community runs an Inter-Company Fantasy Football League sponsored by TGA Mobility.  This is to help raise awareness of the illness that affects around 250,00 people in the UK, and 800 to 1,000 people of all ages in the York area alone. Companies enjoyed […]

Millions Missing

Millions Missing

  To help highlight those missing from their lives, this being Severe ME Awareness Week.   Millions Missing Tommy missing from the five a sides A different postman today Jenny not out, not seen her about Maybe she’s just gone away No Mary at the Bingo Charlie, where is that guy? Rang the teacher, couldn’t […]

OMF Announces New “Brain Fog” Study

Brain Fog

  From the Open Medicine Foundation. Open Medicine Foundation (OMF) is excited to announce a new collaborative study between the ME/CFS Collaborative Research Center at Uppsala, Sweden and the Harvard ME/CFS Collaboration. This study focuses on biomarkers for long-term neurocognitive outcomes. It provides an excellent opportunity to understand the mechanism of long-lasting viral-induced cognitive complications, commonly referred to […]

News From York Carers Centre

York Carers Centre

Accessing carer groups from home  You can now access our carer support groups and activities online as we continue to work within government guidance, and explore ways we can offer our face to face groups in the future. If you’d like to take part in any of our groups/activities, and would like help setting up […]

Update: Post-Covid Fatigue, Post/Long-Covid Syndromes, And ME/CFS

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  By Dr Charles Shepherd, Hon. Medical Adviser, ME Association. I am aware that some people with ME/CFS have a number of concerns about the amount of time and effort we are devoting to people with Post-COVID Fatigue and Post/Long-COVID Syndromes. In particular: — the possibility that people with post-COVID fatigue and post/long-COVID syndromes are […]

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