Fibromyalgia

Disabled People Highlight Scores Of Lockdown Concerns

Disability

  By John Pring in Disability News Service. Disabled people have highlighted gaps in social security support, flaws in the shielding system and worries about access to vaccines, after they were asked to describe their concerns as England entered its third national coronavirus lockdown*. They raised scores of different issues, ranging from worries about the accessibility […]

Why We Need To Get Creative When It Comes To Talking About Pain

Chronic Pain

  By Jasmine Hearn and Stella Bullo in The Conversation.   What [do] I mean by sitting in a pit of fire? You’ve got every nerve ending that’s just going hellfire, and you just don’t know what to do with yourself. Forty-two year old Emma has experienced chronic pain from a spinal cord injury for […]

The Guardian View On Disability Rights: A Deficit Of Attention

disability-rights

  From The Guardian.   Twenty-five years after discrimination was outlawed, progress towards inclusion and equality has gone into reverse. There should have been a feature film, or a primetime TV series. Maybe one day there will be. But this year, the 25th anniversary of the Disability Discrimination Act – a landmark piece of legislation […]

Expert Reaction To The BMJ Editorial Calling For The Abandonment Of Standards

case-studies-e1418894555587

  By Brian Hughes in The Science Bit.   An invited, non-peer-reviewed guest editorial in the BMJ has claimed that behavioural interventions for “complex conditions” (such as ME or CFS) should not be judged using the customary criteria — and that the relevant studies should not be evaluated as though they were proper randomised controlled trials — […]

Today’s Best Practice Will Be Rubbished Tomorrow

Medical

  Posted by BJGP Life. Charles Todd qualified as a GP in 1981 and then spent twenty years working in Zimbabwe. He recently retired as a GP partner in Buckinghamshire. IN MY FIRST JOB AFTER QUALIFYING in 1977 as a house physician in cardiology, on call frequently involved “clerking” mostly middle-aged men having heart attacks and admitting them […]

#Walkingfromhome: The Wheelchair User

Wheelchair

  From Living Streets. Caroline lives in a seaside town in England and is a member of one of our Local Groups of volunteers.  As a wheelchair user, Caroline is passionate about improving streets and the access to them for everyone. In normal times, Caroline’s favourite things are being with friends, volunteering and seeing the […]

Government’s Quiet Confession: We Must Do More To Protect Disabled People From COVID

Disability

  By John Pring in Disability News Service. The UK government appears to have bowed to months of pressure from disabled campaigners and allies, after quietly revealing that it is considering taking “further action” to protect disabled people from the pandemic. It comes alongside an admission that disabled people have been “disproportionately impacted” by COVID-19, […]

The Present (And Future) CoQ10 for Fibromyalgia And Chronic Fatigue Syndrome (ME/CFS)

OIP (8)

By Cort Johnson in Health Rising. This blog is one of a continuing series of blogs that are attempting to peer into the future and see what treatments possibly await us. This blog provides an overview on CoQ10 – what forms work best and how to take it – and then takes a look at […]

Why Do We Need To highlight Disability History Month ?

disability-rights

  By Gem Turner in WheelAir.   At the time of posting this, it’s Disability History Month in the UK. It’s not very widely known – and when I talk about it, it gets a lot of questions from people. The main one is something like “it’s quite good for disabled people now though isn’t […]

BBC Set For Month-Long Season To Mark 25th Anniversary Of Disability Discrimination Act

disability

By John Pring in Disability News Service. The BBC is to mark the 25th anniversary of the passing of the Disability Discrimination Act (DDA) next month with a series of dramas, documentaries, news packages and discussions. Among the month-long season will be a series of six 15-minute dramatic monologues, written, directed and performed by disabled people. […]

Governments ‘Overwhelmingly Failed’ To Protect Disability Rights During Pandemic

disability-rights

  By John Pring in Disability News Service. Governments around the world – including the UK’s – have “overwhelmingly failed” to protect disabled people’s rights in responding to the global pandemic, according to the results of a major international survey. This has had “dire consequences”, with thousands of avoidable and preventable deaths and other “serious […]

Illness-Related Fatigue: More Than Just Feeling Tired

Fatigue

  By Jennifer Crystal, MFA in Harvard Health Publishing.   A common refrain during the COVID-19 pandemic is, “I’m so tired.” After months of adjusted living and anxiety, people are understandably weary. Parents who haven’t had a break from their kids are worn out. Those trying to juggle working from home with homeschooling are stretched […]

A Little Health Reminder….

Doctor

  M.E. MOT Woke up today It’s not gone away This beast, it’s here for good Thought maybe a dream But a nightmare it seems I’d sleep through it all if I could As another day dawns There’s something more going on The pain’s a bit harder to stand It’s tougher to face, when it’s […]

Pandemic Recession Likely To Have ‘Disproportionate’ Impact On Disabled People

Disability

  By John Pring in Disability News Service. The recession associated with the pandemic is likely to be having a disproportionate impact on disabled employees, just as it did in the last recession, according to academics. They have examined the impact on disabled people during the recession of 2007 to 2009, and believe it is […]

A Fatigue Nucleus In Multiple Sclerosis… And ME/CFS And Fibromyalgia ?

Brain anatomy  - cross section

By Cort Johnson in Health Rising. Fatigue has been a mystery to the research world. Take multiple sclerosis (MS) – one of the most fatiguing diseases known. Fatigue is often one of the first symptoms that shows up in MS and it’s often the most troubling symptom MS patients experience, yet the fatigue in MS isn’t […]

City Of York Council Ban Blue Badge Holders From City Centre

access-bluebadge

  There are approximately 49,058 cities, towns and villages in the UK. The disabled spend is around £212 billion per year. I wonder how many of these places have banned Blue Badge holders from their centres stopping them spending some of that money with struggling retailers? York has..

Councils Face Calls To Re-Think COVID Streetscape Changes

Disability Parking

  By TJM in Disability News Service.   Local authorities in England and Wales are facing calls to re-think the “streetscape” changes being made in response to COVID-19, amid concerns that the new street infrastructure is making parts of towns and cities inaccessible to many disabled people. Disabled people and their organisations have previously warned that many […]

Restrictions On Disabled People’s Rights Must Not Become The New Normal

Parliament

  From UK Parliament Website.   Temporary Coronavirus Act provisions due to be debated in the House of Commons on Weds 30 September could substantially restrict or curtail important, hard-won rights that disabled people rely on for their quality of life, says a new report by the Women and Equalities Committee.   To read the […]

Shame, Stigma And “Unexplained” Symptoms

medical

  Katharine Cheston discusses the isolation, disbelief and stigma experienced by people with poorly understood medical conditions Autobiographical accounts of illness tend to follow a similar script. Typically, they open with an interruption: new symptoms render the normal abnormal, precluding what had previously been taken for granted. These symptoms are recounted to a healthcare professional: […]

DWP ‘Performs Partial U-turn’ Over DNS ‘Ban’ After Criticism From Campaigners

dwp-logo

  By John Pring in Disability News Service.   The Department for Work and Pensions (DWP) appears to have performed a partial U-turn after disabled campaigners reacted angrily to an apparent ban on media requests from Disability News Service (DNS). Last week, DNS reported how DWP’s press office had failed to provide a meaningful response […]

Balancing Hope And Acceptance With A Chronic Illness

Blog

  By Caroline Elizabeth in the Frozen Amber Blog.   Finding acceptance while holding on to hope with a chronic illness is like walking a tightrope, especially as the years grind on. Hope is a vital life force that propels us, whereas acceptance allows us to discover new ways of living within the moment. Clearly […]

Disabled Peers Call On Government To Scrap Care Act Coronavirus Powers

Parliament

  By John Pring in Disability News Service.   Two disabled peers have called on the health and social care secretary to scrap powers given to local authorities that allow them to suspend some of their social care duties during the coronavirus pandemic. Crossbench peers Baroness [Jane] Campbell and Baroness [Tanni] Grey-Thompson have written to […]

Stick With It…….

Writing Poetry

    STICK WITH IT….. In life we like to fit right in To mix in with the crowd Not to shout, not stand out Not to be too loud But sometimes things just come along That force us into change I’m talking Chronic Illness Making life so strange When M.E. hits, it hits you […]

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