By Matthew Ward in The Conversation. The coronavirus pandemic has been compared with many previous contagions, including the great plague and the 1918 Spanish flu pandemic. However, there has been little consideration of probably the most significant historical episode of disease. The modern world as we know it would not have existed without the epidemics that […]
By John Pring in Disability News Service. The Department for Work and Pensions (DWP) has stopped answering questions from Disability News Service (DNS), and is refusing to explain why it has taken the “totally unacceptable” step. Since early July, DWP’s press office has failed to provide a meaningful response to questions submitted by […]
STICK WITH IT….. In life we like to fit right in To mix in with the crowd Not to shout, not stand out Not to be too loud But sometimes things just come along That force us into change I’m talking Chronic Illness Making life so strange When M.E. hits, it hits you […]
By Aidan Smith in the Scotsman. Some good things have come out of Covid. Bluer skies, clearer waters, families round the dinner table, a deeper appreciation of the NHS and also schoolteachers. Doubtless you’ll be able to think of others and today Davie Provan nominates one that’s close to his heart. “There’s a whole lot more […]
By Natasha Hinde in HUFFPOST. Hand sanitiser can kill coronavirus, but its overall effectiveness very much depends on the type you use. Homes, businesses and schools across the UK are potentially using hand sanitisers that can take up to two minutes to kill the virus, as opposed to the standard 20-30 seconds – and could […]
By Wendy Masterson, Hannah Carver and Tessa Parkes in The Conversation. How does walking through a forest make you feel? Peaceful? Blissful? Reflective? For many people, lockdown brought a new appreciation of nature and what it means for our well-being. The health benefits of immersing ourselves in “greenspace” are now widely accepted. […]
From gov.uk. Homes England and Network Rail will be investing £77 million to ensure that York’s new city centre quarter development goes ahead, following confirmation of the route for the funding to the project from the Ministry of Housing, Communities and Local Government. The announcement has been welcomed as a clear signal of the […]
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From The Yorkshire Times. As an active campaigner for the York ME Community I’m pleased to be involved with the newly launched York Disability Rights Forum. The work to raise awareness of ME is challenging and over the years the Community has had many successes, including getting support for achieving our aims from local […]
By Graham Clark in The Yorkshire Times. Blackpool’s 2020 Illuminations will feature a special tribute to the heroes of COVID-19 with a dazzling display of hearts and rainbows along the famous Golden Mile. The section, which will also feature the faces of 50 nominated “Corona Heroes”, pays homage to the extraordinary efforts of […]
From Stanford Medicine. She is an author of extraordinary success. Laura Hillenbrand’s Seabiscuit and Unbroken are literary phenomenons: Together, there are more than 13 million copies in print, and both have been made into blockbuster motion pictures. Seabiscuit, published in 2001, tells the story of a racehorse that captured America’s heart during the Great Depression. Unbroken, published in 2010, […]
The Last Post We hear a haunting, sad lament We hear the bugle sound The Last Post by a graveside A hero committed to the ground It honours the lost and fallen All across the land It shows we will remember Silent mourners will make this stand In times gone by, the bugle cry Helped […]
By John Pring in Disability News Service. Councils and other public bodies across England are failing to consult disabled people before approving “discriminatory” measures designed to aid social distancing and encourage cyclists and pedestrians, say campaigners. They have warned that public bodies are ignoring their duties under the Equality Act, and are making […]
By Ryan Holmes in Matza Review. A singer who has ME has launched her debut album, after spending two years recording it whereas bedbound, with it presently quantity two within the Amazon Best Sellers chart forward of Taylor Swift. Kara Jane Spencer, 29, from Shirebrook, Derbs., was recognized with the debilitating situation when she was simply […]
The York ME TGA Inter-Company Fantasy Football League The York ME Community runs an Inter-Company Fantasy Football League sponsored by TGA Mobility. This is to help raise awareness of the illness that affects around 250,00 people in the UK, and 800 to 1,000 people of all ages in the York area alone. Companies enjoyed […]
By Josh Halliday in The Guardian. For a city that has been at the heart of major national events for 17 centuries, beloved both by medieval kings and warring Romans, York has seen its fortunes rise and fall over the years. But new questions about the future of the former Viking capital of England […]
Accessing carer groups from home You can now access our carer support groups and activities online as we continue to work within government guidance, and explore ways we can offer our face to face groups in the future. If you’d like to take part in any of our groups/activities, and would like help setting up […]
My Diary And ME Busy days, life’s ablaze Diary’s full to the brim So much that I want to do But can’t fit everything in Hectic sport and social life Days out with daughter and wife Coaching football, archery session Being taught a badminton lesson Then an entry when not feeling good Turned down invitation, […]
By Erik Meijaard in The Conversation. Born in the Netherlands and brought up in Germany, it wasn’t until I was 21 that I met my first coconut. It was on a beach in Thailand where I ended up during a one-year sojourn away from home, trying to grow up. With nothing better to do, […]
By David C Gaze in The Conversation. It has been suggested that taking vitamin D may protect people from getting COVID-19. But should we be using supplements to ward off the virus? We need to separate fact from fiction. Vitamin D is essential for maintaining overall health, especially for bones, teeth and muscle. It regulates the […]
1 July being the anniversary of The Battle of The Somme….. THE SALFORD PALS Waiting for the whistle blast In a war they said would never last The counting down from ten begun Nervous feet on the bottom rung From the bowels of their dirty trench Leaving safety, leaving stench Thiepval Wood […]
By Emily J Hall, Anne Carter and Dan O’Neill in The Conversation. As temperatures begin to warm up, it might be tempting to take your dog for a long walk or run to soak up the weather while it lasts. But it’s important to exercise caution, as dogs can easily develop heatstroke in hot temperatures. […]
By Ruth Fairchild in The Conversation. A recent study found that brown and organic rice sold in the UK tends to contain significantly more arsenic than white inorganic varieties that are often considered less healthy. Arsenic is found in many foods but can be especially concentrated in rice, particularly in the husk, which is removed to […]
SEE THE HEART A child is born of innocent mind Trust fills the heart within A child is born pure of soul No prejudice or sin Take that child and teach it well Good or bad, it cannot tell Entrusted with an awesome role Be strong of heart and deep of soul In early days […]
There are so many questions banded about as to the story of Myalgic Encephalomyelitis (ME), but this video gives a better and fuller insight than most. Once you've watched it, please copy the link and spread the word to raise awareness. Thank you.
To watch this video, click on the link below:
As has been stated by Dr Sarah Jarvis and others, it’s possible that the Coronavirus could trigger M.E. in those people who get through the worst of the virus, and are seen to be in the recovery phase.
Please do not think that once you’re in that phase that you should just get back to your normal routine. As someone who has just passed his 14th anniversary with ME, the most important thing you can do is rest.
Resting should be from both physical and mental / cognitive activities.
Do not push beyond what your body is telling you. Your head might tell you something different, and you’ll be keen to make up for lost time, but please take advantage of this lockdown to recover properly. If you push beyond your limited energies now, and M.E. follows, it could change your life for years to come.
Be sensible and rest up. Take care.
The York Access Group is a Facebook group which is aimed at improving Accessibility in York for those trying to get around with a Disability. Feedback on bad, and good Accessibility of shops, streets, cafes, restaurants and any other facilities are welcomed.
It's also the place to discuss mobility aids from walking sticks to scooters. If this sounds like a group for you, you're most welcome !
As we all know, especially those who need Wheelchairs or Mobility Scooters to get around, vehicles parking on pavements and blocking our way can have a major effect on our lives. It can mean that we are likely to put ourselves in danger by going onto busy roads because of inconsiderate parking. 
If you live in Fulford York, the details of your local PCSO are below, and he should be contacted in the first instance. If he is not on duty, you may be dealt with by whoever is on duty. If you live in other areas of York, ring 101 and ask for the PCSO covering your area. In all cases, you will be required to give as much information about the vehicle and location as possible. You will NOT need to stay by the vehicle till the police arrive.
Simon Hall
PCSO 5648
North NPT
NORTH YORKSHIRE POLICE
Dial 101, press option 2 and ask for him by his full name or collar number
If using his collar number please state each number individually
Would you like to help your local community ?
By current research, there are around 800 people in the York area suffering from Myalgic Encephalomyelitis (ME). This might include the work colleagues you haven't seen in some time, or your friends and family, maybe one of the lads who hasn't turned up for five-a-side for a while.
There's information at the top of this site to explain how it affects people and ruins lives. These are your neighbours; would you like to help ? To read the rest of this request, click on the link below:
After a pretty tough time, the guys riding as part of The Nomadic Knights group, made it to Everest Base Camp. I hope we can use this story to gain interest from media sources to help raise awareness for us all. It's the least the guys deserve for all their efforts.
19 May 2017.
“Very pleased to report that we reached Mt Qomolangma (Everest) Base Camp with the ME Awareness Flag at 1528hrs on Thursday 18th May. Three and a half hours after we had planned but time in Tibet can sometimes be very fluid. The base camp is located at 5200m, walking to the final destination was challenging in itself due to low oxygen levels.
Conditions at base camp were extremely windy (good for flag flying) with intermittent clouds with no particular destination in mind and the sun was not ideal for photos."
The York ME Community
@YorkMEAwareness
Carol Monaghan SNP spoke in Westminster Hall about the need for support and funds for ME Research. Many other MP's spoke passionately on the subject as it affects their constituents UK wide. Click on the link below to watch the full debate.
There has since been an All Party Parliamentary Group (APPG) formed to discuss the way ahead in helping MP's Constituents with ME. Contact your MP to ensure they're representing you !
One of the major questions raised is the blending of ME with CFS. This chart on the Hummingbirds site illustrates the many differences between Chronic Fatigue Syndrome (CFS) and Myalgic Encephalomyelitis (ME).
Time For Unrest: Why Patients With ME Are Demanding Justice.
If you want the full story on ME and will read just one article about it this year, please make it this one,
Are you a member of a York based Sports or Fitness Club ? Looking for a local cause to run or do an activity for ? The York ME Community are looking to be 'adopted' by anyone willing to maybe run for us and help raise our profile. There are likely to be around 800-1,000 people of all ages in the York area with ME who would be so very grateful for your help.
We had a brilliant day at York Explore Library raising ME Awareness. Lots of interest in what we're doing from local health groups, charities, the council and most heart warmingly, from those dealing with ME themselves who now know we're here for them.
If you'd like to hear more about ME, get in touch.
Those within the ME Community have always known how damaging being prescribed Graded Exercise Therapy (GET) can be to their future health. We have a broken energy production system and therefore normal rules do not apply. The PACE Trial tried to show that it helps, but has been debunked by scientists and researchers worldwide. The PACE Trial in fact is now held up as an example of how NOT to conduct such trials.
To understand better the truth of GET and The PACE Trial, click on the link below to watch two short videos.
We are the ME/CFS Biomedical Partnership, a collaboration between researchers and people with ME/CFS, carers and the public.
The DecodeME DNA study aims to help us understand the disease and ultimately find treatments.
To read more, or get involved, click on the link below:
This is open to any organisation looking to have a bit of fun whilst supporting your local community. We're underway now for the current season but will be recruiting teams for our 6th season around July 2021. Although the aim is spreading ME Awareness, as a bonus we have also raised over £920.00 for Invest in ME Research, so why not join us ?
To join in for next season, click on the Fantasy Football League tab at the top of the site for all the information you'll need.
Written Question to the Department of Health and Social Care on 22 May 2018 by Carol Monaghan SNP, answered by Caroline Dinenage Minister of State (Department of Health and Social Care)
| Financial Year | £ |
| 2014-15 | 280,442 |
| 2015-16 | 295,626 |
| 2016-17 | 130,958 |
To read the ME Research Summary 2019 by ME Action covering the last ten years, click on the link below:
The York Inset Scooter Club is based in York (UK) and has a membership of around 250.
They are a thriving, active club and look to support local charities when they can. They have an annual Mods and Rockers charity ride out, and for 2019 supported The York ME Community.
They headed off from The York Eye (Clifford’s Tower) on Sun 28 Apr on a run out to the coast, set off by the Mayor of York and the York Normandy Veterans.
All money raised will be used to raise the profile of ME in York through posters being produced and put up in local business premises, clubs, schools, GP Surgeries and venues.
I had a very productive meeting with Cllr Aspden and Cllr Runciman of City of York Council where they have stated they will back efforts to raise awareness of ME, understanding that much more is needed to increase understanding of this debilitating disorder, in York and across the UK. I will be aiming to keep up the pressure to ensure future support.
The motion put before Council with regard to support in raising ME Awareness in York was passed unanimously !
The City of York Council has followed through on their promise by lighting up the city walls and Clifford's Tower in blue over the ME Awareness Weeks since that meeting.
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The first Monday of each month at 11 am - The York ME Community Coffee Club at Bar Convent, 17 Blossom Street, York. There is parking available just around the corner at Nunnery Lane Car Park. Blue Badge holders can park for free.
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The third Wednesday of each month - at 2 pm - The York ME Community Coffee Club at The Novotel, York. Parking is free at the hotel.
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Weekly - Every Wed, 8 pm - 9 pm on Twitter, ME Awareness Hour using the #MEAwarenesshour hashtag.
