1 July being the anniversary of The Battle of The Somme….. THE SALFORD PALS Waiting for the whistle blast In a war they said would never last The counting down from ten begun Nervous feet on the bottom rung From the bowels of their dirty trench Leaving safety, leaving stench Thiepval Wood […]
By Emily J Hall, Anne Carter and Dan O’Neill in The Conversation. As temperatures begin to warm up, it might be tempting to take your dog for a long walk or run to soak up the weather while it lasts. But it’s important to exercise caution, as dogs can easily develop heatstroke in hot temperatures. […]
By Ruth Fairchild in The Conversation. A recent study found that brown and organic rice sold in the UK tends to contain significantly more arsenic than white inorganic varieties that are often considered less healthy. Arsenic is found in many foods but can be especially concentrated in rice, particularly in the husk, which is removed to […]
SEE THE HEART A child is born of innocent mind Trust fills the heart within A child is born pure of soul No prejudice or sin Take that child and teach it well Good or bad, it cannot tell Entrusted with an awesome role Be strong of heart and deep of soul In early days […]
By David Nicholson in YorkMix. To mark the release of Human Contact, the debut album by York band The Howl & The Hum, David Nicholson takes a listen and remembers where, for him, it all began Wednesday night for me is the quiz with Tom Adams in the chair at The Swan in Bishy Road, […]
By Clare Sansom in Chemistry World. All disease begins in the gut. That saying is attributed to the ancient Greek physician Hippocrates, who gave his name to the oath that doctors still use today. It is undoubtedly a simplification, but an enormous range of diseases, many with no digestive symptoms, have been associated […]
From YorkMix. York radio station Minster FM is to close, it was revealed today (Wednesday). The station will be absorbed into the Hits Radio Brand Network, its owners Bauer Media announced. Many of the staff at the Dunnington-based company have been put on redundancy notice today – including most of the presenters. To […]
Victory In Europe The day had come, the end of war The country heaved a sigh Victory in Europe had been won On land, on sea in sky Eisenhower’s treaty signed in France Montgomery at Luneburg Heath Keitel for the Soviets in Berlin All signatures beneath Six years of bloody war At last had […]
Woodbine Willie – The Tale Of A Wartime Padre Geoffrey Kennedy was his name Not one held in the Hall of Fame This Reverend was a man of Leeds Who became well known for his wartime deeds With the gift of the gab, this Northern lad Had a calling to be a priest like dad […]
By Nadia Jefferson-Brown in The Press. A florist to the stars has returned to her roots to serve the York community during the Covid-19 crisis. Fulford Flowers, known for its big-budget commissions, from celebrity weddings to film premieres, is now brightening people’s days by delivering rainbow bouquets locally. Pictures of rainbows have been popping up in people’s […]
By Katie Strick in MSN MSN Lifestyle. Calories consumed: 2,250 (mostly rosé). Minutes spent queueing for the supermarket: 28. Kilometres run in hour of state-mandated exercise: 5.3 (so I could tell Instagram I’d donated to the NHS). Zoom calls completed: seven (if we include the school-mates quiz on Houseparty). It’s funny, trying to summarise […]
From The Life of Pippa Blog. I firmly believe that there’s no such thing as too many acts of kindness. In light of our current circumstances, it’s been so heartwarming to see that a decent proportion of the general public are shining bright and coming forward to volunteer, doing all they can to help […]
By Dennis Overbye in The New York Times. Scientists on Wednesday announced that they were perhaps one step closer to understanding why the universe contains something rather than nothing. Part of the blame, or the glory, they say, may belong to the flimsiest, quirkiest and most elusive elements of nature: neutrinos. These ghostly subatomic […]
By Naomi Whittingham in A Life Hidden. On the eve of 2020, in New Year Reflections, I looked back on a difficult 2019 and asked: “What might I be called upon to face this year?” I could not have imagined what lay ahead – not only for me, but for the entire world. Living […]
From YorkMix. A pub near York that was set to be demolished could now enjoy a new lease of life as a drive-thru coffee shop. Punch Partnerships Ltd, which owns the Four Alls Inn on the A64, wanted to tear it down and replace it with five houses. The plan drew criticism from the York […]
From the Equality and Human Rights Commission. Equality law recognises that bringing about equality for disabled people may mean changing the way in which services are delivered, providing extra equipment and/or the removal of physical barriers. This is the ‘duty to make reasonable adjustments’. A duty is something someone must do, in this […]
By Karen Lie in Yorkshire Coast Radio. Restrictions on the use of bus passes in North Yorkshire have been relaxed to help pass holders to take advantage of early morning shopping opportunities and medical appointments. North Yorkshire County Council have temporarily enhanced their National Concessionary Travel Scheme to enable pass holders to use […]
By Kristian Johnson in Leeds Live. Leeds was once home to a massive theme park based on grand designs from Coney Island in New York. The giant theme park was built in Golden Acre Park, north Leeds, in March 1932 and opened to huge fanfare. And while it was built to resemble the impressive amusement parks […]
By Chloe Laversuch in YorkMix. East Parade Medical Practice could become part of Jorvik Gillygate Practice – but neither surgery building is set to close under the plans. A report says the merger will help staff offer more services at both surgeries in this area of the city. The merger will be discussed […]
BY BROOKE VITTIMBERG in Fast Company. When news of COVID-19 started to spread, there were two popular responses. The first was to rush to the store, buying N95 masks and hand sanitizer until shelves were bare. The second was to shrug and comfort the masses because mostly immunocompromised people—people like me—would die. On Twitter, […]
From YorkMix. Community spirit is alive and well in York in the time of Covid-19. Groups are being set up to help fellow residents affected by coranavirus. There is now a York Covid-19 Mutual Aid group, with the aim of supporting vulnerable people in the city through the outbreak. George Turner explained more on the […]
By Chloe Tear in Huffpost. It feels like every headline you read now is about coronavirus. With the virus causing concern and costing lives worldwide, it isn’t surprising. But it’s important that we talk about what that concern looks like if you’re disabled. We already know those with pre-existing conditions, like me, are more […]
From YorkMix. York’s least reliable trains have been revealed. And it won’t come as a great surprise to regular rail passengers that the honours are shared by TransPennine Express and Northern. An investigation into rail reliability by The Sunday Times, based on figures compiled by On Time Trains, has found that northern travellers fare the worst […]
By Sharon Begly in Stat News. The new coronavirus is not an equal-opportunity killer: Being elderly and having other illnesses, for instance, greatly increases the risk of dying from the disease the virus causes, Covid-19. It’s also possible being male could put you at increased risk. For both medical and public health reasons, researchers want […]
Welcome to the March 2020 news update for York Carers Centre. News Carers socials for 26 to 40 (ish) year olds We’re delighted to have received funding to offer socials for 26 to 40 year old carers in York. Our next one is at the Escape Room, Micklegate on Thursday 26 March early evening […]
By Lulu Zhang in The Conversation. Thanks to the climate crisis, we are fast approaching the “point of no return”, according to world leaders. We are also in the midst of the sixth mass extinction. And the state of worldwide land degradation has also reached a critical level: ever-increasing demands for food production, urbanisation and economic […]
From Greek City Times. The historical Acropolis in the Greek capital is set to receive a new lift by summer 2020 after the Central Archaeological Council (KAS) approved plans for the project which will now enable improved disabled access to the ancient site and popular attraction. The KAS had agreed last year to replace a repeatedly […]
From Seriously “Sensitive” to Pollution. Having been housebound for far too many years due to having to avoid exposure to common, everyday products and materials that disable me, has given me time to observe the world (and sometimes even make a little sense of it). Still, there are some things that make no […]
From YorkMix. A mum whose dream of reopening an historic York shop could be dashed by planners has launched a petition to support her cause. Last August Sara Winlow bought the property which used to house South Bank Stores on Balmoral Terrace, close to the racecourse. The shop had long since closed, and she […]
By Patrick Butler in The Guardian. Disabled people continue to face prejudice in the workplace campaigners have said, after latest government figures showed they were paid on average 12.2% less than those without impairments, equivalent to £1.48 an hour. According to Office for National Statistics (ONS) data, the median pay for disabled employees in […]
By Mandy Appleyard in The Telegraph. Older people face a crisis of loneliness but even a quick chat can make a big, big difference. Here’s how JJ and Steve formed a connection through Age UK Bromley and Greenwich JJ, 80, is a retired construction worker from Eltham in London When my wife Madeleine died, […]
By J Bernadette Moore, Mark Hopkins and Matthew Campbell in The Conversation. Imagine a synthetic product that can give your body all the essential nutrients it needs to survive, is easy to prepare, affordable, and has a low environmental impact. While it might sound too good to be true, this is what Huel, […]
By Michael Cole in The Conversation. It is estimated that there is a staggering £300m worth of medicine unused in the UK every year. But is it safe to take these medicines if they are past their expiry date? Expiry dates are put in place after rigorous trialling and controlled experiments to ensure the safety […]
MEpedia is a project founded by MEAction, powered by the patient community, and built by volunteers including patients, students, and researchers. We are crowd-sourcing a knowledge base on the history, science and medicine of ME, CFS, and related diseases. Jump in by clicking on the link below:
As has been stated by Dr Sarah Jarvis and others, it’s possible that the Coronavirus could trigger M.E. in those people who get through the worst of the virus, and are seen to be in the recovery phase.
Please do not think that once you’re in that phase that you should just get back to your normal routine. As someone who has just passed his 14th anniversary with ME, the most important thing you can do is rest.
Resting should be from both physical and mental / cognitive activities.
Do not push beyond what your body is telling you. Your head might tell you something different, and you’ll be keen to make up for lost time, but please take advantage of this lockdown to recover properly. If you push beyond your limited energies now, and M.E. follows, it could change your life for years to come.
Be sensible and rest up. Take care.
We are a group of physiotherapists in the United Kingdom with a special interest in Myalgic Encephalomyelitis (ME).
Our website provides resources for physiotherapists, people with ME and parents or carers of those with ME.
If you wish to apply for a Blue Badge in the York area, or wish to know if you qualify, click on the link below:
-------------------------------------------------------
The first Monday of each month at 11 am - The York ME Community Coffee Club at Bar Convent, 17 Blossom Street, York. There is parking available just around the corner at Nunnery Lane Car Park. Blue Badge holders can park for free.
---------------------------------------------------------
The third Wednesday of each month - at 2 pm - The York ME Community Coffee Club at The Novotel, York. Parking is free at the hotel.
--------------------------------------------------------
Weekly - Every Wed, 8 pm - 9 pm on Twitter, ME Awareness Hour using the #MEAwarenesshour hashtag.
The 15th Invest in ME Research International ME Conference 2020 - IIMEC15 - will take place on 30th May 2020 in London.
15 years of researchers, clinicians and patients interacting.
More details of the conference day will be announced in the coming months. It will be preceded by the 10th Invest in ME Research International Biomedical Research into ME Colloquium - BRMEC10 - a two day closed researchers' meeting with researchers from around the word, and the third year of a full day Thinking the Future - Young/ECR Conference for young and early career investigators.
Would you like to help your local community ?
By current research, there are around 800 people in the York area suffering from Myalgic Encephalomyelitis (ME). This might include the work colleagues you haven't seen in some time, or your friends and family, maybe one of the lads who hasn't turned up for five-a-side for a while.
There's information at the top of this site to explain how it affects people and ruins lives. These are your neighbours; would you like to help ? To read the rest of this request, click on the link below:
Helpfulpeeps is a platform that allows people in any given area to ask for and offer help to one another. Although this is a nationwide facility, by adding your street name, the system automatically drops a pin on that location and you only see posts from a 20 mile radius. You have the option to narrow or widen this radius. I hope this is a useful facility for members of our Community.
After a pretty tough time, the guys riding as part of The Nomadic Knights group, made it to Everest Base Camp. I hope we can use this story to gain interest from media sources to help raise awareness for us all. It's the least the guys deserve for all their efforts.
19 May 2017.
“Very pleased to report that we reached Mt Qomolangma (Everest) Base Camp with the ME Awareness Flag at 1528hrs on Thursday 18th May. Three and a half hours after we had planned but time in Tibet can sometimes be very fluid. The base camp is located at 5200m, walking to the final destination was challenging in itself due to low oxygen levels.
Conditions at base camp were extremely windy (good for flag flying) with intermittent clouds with no particular destination in mind and the sun was not ideal for photos."
The aim is to share ideas in promoting various disability services, whilst continuing to raise Awareness of ME through both organisations. Through their #Think Access group and our own group, The York Access and Mobility Club, we will be looking at accessibility issues in the York & Harrogate areas, with the aim of advising on suggestions for change.
Disability Action Yorkshire aim to find solutions for disabled people whatever their aspirations. Whether you are a disabled person or support someone who is, they are here to support you. They provide a range of services, from training to accommodation and help with independence, among others. To find out more about Disability Action Yorkshire, click on the link below:
As we all know, especially those who need Wheelchairs or Mobility Scooters to get around, vehicles parking on pavements and blocking our way can have a major effect on our lives. It can mean that we are likely to put ourselves in danger by going onto busy roads because of inconsiderate parking. 
If you live in Fulford York, the details of your local PCSO are below, and he should be contacted in the first instance. If he is not on duty, you may be dealt with by whoever is on duty. If you live in other areas of York, ring 101 and ask for the PCSO covering your area. In all cases, you will be required to give as much information about the vehicle and location as possible. You will NOT need to stay by the vehicle till the police arrive.
Simon Hall
PCSO 5648
North NPT
NORTH YORKSHIRE POLICE
Dial 101, press option 2 and ask for him by his full name or collar number
If using his collar number please state each number individually
Access Your Life is a site run by Felix and Lauren, with a little input from Fliss, the dog!
The site is full of great information that I feel will benefit many within The York ME Community and beyond.
To go to Access Your Life, click on the link below:
Carol Monaghan SNP spoke in Westminster Hall about the need for support and funds for ME Research. Many other MP's spoke passionately on the subject as it affects their constituents UK wide. Click on the link below to watch the full debate.
There has since been an All Party Parliamentary Group (APPG) formed to discuss the way ahead in helping MP's Constituents with ME. Contact your MP to ensure they're representing you !
Debbie North, our TOG wheelchair walk designer uses an off-road mobility scooter, also called an all terrain hopper to access the countryside and wants to inspire other wheelchair users to do the same through her wheel friendly walks.
Wheelchair friendly walks are a selection of walks that the TOG team have carefully selected for families using pushchairs, wheelchairs or bicycles.
The Jen Brea ME film 'Unrest', about her story and struggle with Myalgic Encephalomyelitis (ME) is available on Amazon and iTunes and through the Unrest UK Store on DVD and Blu-Ray by clicking on this link: Unrest site
Please spread the word through your GP, MP, Company HR Teams and any other people of influence you may know. Thank you.
One of the major questions raised is the blending of ME with CFS. This chart on the Hummingbirds site illustrates the many differences between Chronic Fatigue Syndrome (CFS) and Myalgic Encephalomyelitis (ME).
For confidential and independent advice for everyone on welfare benefits, debt, housing, employment, consumer rights and much more.
To go to the Government's Disability Benefits Advice Guide, click on the link below:
![old-telephone[1]](http://www.york-me-community.org/wp-content/uploads/2015/10/old-telephone1-300x240.jpg)
Helplines
COVID-19 Helpline for York - 01904 551550
or email: covid19help@york.gov.uk
NHS Health Enquiries (non emergency): 111
Samaritans: 01904 655888
Mind UK: 03001 233 393
Domestic Abuse: 03000 100 110
York Hospital: 01904 631313
Patient Transport Service: 01904 630080
Benefits Service: 01904 551556
Accessibility
Dial & Ride: 01904 551441
Shopmobility: 01904 679222
York Wheels: 01904 630080
Delivery Services
Virtual High St: www.yorkhighstreet.com
Alligator Wholefoods: 01904 654 525
Millie's Greengrocers: 07766 313 122
Food Circle: 07511 717 946
Miller Food Service: 01904 655 368
Poppy Caterers: 01347 878 628
Sheila's Greengrocers: 07470 308 824
M&K Butchers: 01904 639 300
Badger Hill Butchers: 01904 411 897
Burnholme Fisheries: 01904 421 360
Milk (Richard Cann): 07773 348 354
Services
York Electricians Ltd: 01904 373 045
Plumbtech: 07703 567 027
Yorkshire Plumbing: 08006 125 234
Local MP's
York Central Rachel Maskell: 01904 784847
York Outer Julian Sturdy: 01904 784847
Thirsk & Malton Kevin Hollinrake: 01347 666880
Councillor Keith Aspden: 01904 555 314
If you are a member of the elderly community or indeed somebody caring for an elderly person, this guide supplied by Covonia will give you important information on how to avoid getting sick, and how to care for coughs and colds should they happen.
The Changing Places Consortium launched its campaign in 2006 on behalf of the over 1/4 of a million people who cannot use standard accessible toilets. This includes people with profound and multiple learning disabilities, motor neurone disease, multiple sclerosis, cerebral palsy, as well as older people.
To use the toilet in safety and comfort, many people need to be able to access a Changing Places, which have more space and the right equipment, including a height adjustable changing bench and a hoist.
To find out more, click on the link below to go to the Changing Places website.
The York Access Group is a Facebook group which is aimed at improving Accessibility in York for those trying to get around with a Disability. Feedback on bad, and good Accessibility of shops, streets, cafes, restaurants and any other facilities are welcomed.
It's also the place to discuss mobility aids from walking sticks to scooters. If this sounds like a group for you, you're most welcome !
Time For Unrest: Why Patients With ME Are Demanding Justice.
If you want the full story on ME and will read just one article about it this year, please make it this one,
Are you a member of a York based Sports or Fitness Club ? Looking for a local cause to run or do an activity for ? The York ME Community are looking to be 'adopted' by anyone willing to maybe run for us and help raise our profile. There are likely to be around 800-1,000 people of all ages in the York area with ME who would be so very grateful for your help.
A TRUE STORY BY JESSICA TAYLOR-BEARMAN
Book Description: From a darkened world, bound by four walls, a young woman called Jessica tells the tale of her battle against the M.E Monster. The severest form of a neuro immune disease called Myalgic Encephalomyelitis went to war with her at just 15 years old.
To order the book through Jessica's site, click on the link below:
This book is also now available at York Library
This is open to any business, club, pub, or organisation looking to have a bit of fun whilst supporting your local community. Our 4th season is well under way and going great guns ! Although the aim is spreading ME Awareness, as a bonus we have also raised over £920.00 for Invest in ME Research, so why not join us ?
To join in for next season, click on the tab at the top of the site for more information, or just to register your interest through the email address supplied.
To read the ME Research Summary 2019 by ME Action covering the last ten years, click on the link below:
Written Question to the Department of Health and Social Care on 22 May 2018 by Carol Monaghan SNP, answered by Caroline Dinenage Minister of State (Department of Health and Social Care)
| Financial Year | £ |
| 2014-15 | 280,442 |
| 2015-16 | 295,626 |
| 2016-17 | 130,958 |
There is a great need for the training of those with a Duty of Care to those with Myalgic Encephalomyelitis (ME) or Chronic Fatigue Syndrome (CFS). For those in Healthcare, Education or Business with this Duty of Care, this E-Learning Course is the one for you.
To learn more, click on the link below:
AccessAble in York provides information on Shopmobility, Talking Signs, Dial & Ride, York Wheels and accessible Hotels, Restaurants, Public Toilets and a whole lot more in our city. To find out more before setting off for York, click on the link below:
The York Inset Scooter Club is based in York (UK) and has a membership of around 250.
They are a thriving, active club and look to support local charities when they can. They have an annual Mods and Rockers charity ride out, and for 2019 supported The York ME Community.
They headed off from The York Eye (Clifford’s Tower) on Sun 28 Apr on a run out to the coast, set off by the Mayor of York and the York Normandy Veterans.
All money raised will be used to raise the profile of ME in York through posters being produced and put up in local business premises, clubs, schools, GP Surgeries and venues.
Euan’s Guide is the disabled access review website used by disabled people to review, share and discover accessible places to visit. The charity was founded in 2013 by Euan MacDonald, who is a powerchair user, and his sister Kiki. As Euan’s access requirements changed, both went in search of recommendations for accessible places to go, but a platform for this kind of information didn’t exist. Built as a friendly and honest alternative to hours of web searching and phone calls before visiting somewhere new, Euan’s Guide now has thousands of disabled access reviews and listings for places all over the UK and beyond.
To go to Euan's Website, click on the link below:
Help us raise money for The York ME Community to pass onto Invest in ME Research every time you shop online, and it doesn't cost you a penny !
By using the link below, when you shop online with a huge number of shops, they will pass a percentage of your purchase cost to our fund. THIS MONEY IS DONATED BY THE RETAILERS, NOT YOU !
I had a very productive meeting with Cllr Aspden and Cllr Runciman of City of York Council where they have stated they will back efforts to raise awareness of ME, understanding that much more is needed to increase understanding of this debilitating disorder, in York and across the UK. I will be aiming to keep up the pressure to ensure future support.
The motion put before Council with regard to support in raising ME Awareness in York was passed unanimously !
The City of York Council has followed through on their promise by lighting up the city walls and Clifford's Tower in blue over the ME Awareness Weeks since that meeting.
We had a brilliant day at York Explore Library raising ME Awareness. Lots of interest in what we're doing from local health groups, charities, the council and most heart warmingly, from those dealing with ME themselves who now know we're here for them.
If you'd like to hear more about ME, get in touch.
Mike Harley is a very special guy who's aim was to run a marathon in each EU country to raise awareness and funds for Invest in ME Research. Please visit his site to learn more, especially since our exit from the EU has meant a revision of his plans !
