ME Symptoms

Understanding The Causes Of Chronic Fatigue Syndrome​ Through The Vagus Nerve

Vagus Nerve

  From Parasym.   Chronic Fatigue Syndrome: examining the impact of infections. Chronic Fatigue Syndrome/Myalgic Encephalomyelitis, or CFS, is a long-term illness that is characterised by extreme tiredness in addition to a host of other discomforts. Researchers have struggled to find an identifiable origin to this debilitating disease and as a result, it has proven […]

Shame, Stigma And “Unexplained” Symptoms

medical

  Katharine Cheston discusses the isolation, disbelief and stigma experienced by people with poorly understood medical conditions Autobiographical accounts of illness tend to follow a similar script. Typically, they open with an interruption: new symptoms render the normal abnormal, precluding what had previously been taken for granted. These symptoms are recounted to a healthcare professional: […]

Trial By Error: The CDC’s Stakeholder Meeting

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    By David Tuller, DrPH The US Centers for Disease Control held one of its occasional briefings for ME/CFS stakeholders last week. I was unfortunately busy during that time, but #MEAction has posted a useful account of what was discussed, which you can read here. The #MEAction account includes short, helpful descriptions of a number […]

Researchers Explore Clinical And Biological Aspects Of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Research Study

  Reviewed by Emily Henderson, B.Sc in News Medical Life Sciences.   One of the major symptoms of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is post-exertional malaise (PEM), the worsening of symptoms after physical or mental activities. Using their own words and experiences, people with ME/CFS described how debilitating PEM can be in a study in Frontiers in […]

The ME Association Flu Vaccine Information And Guidance For 2020 – 2021

Flu (Text serie)

By Dr Charles Shepherd, Hon. Medical Adviser, ME Association. Each year we fully update the ME Association information and guidance on flu vaccination in relation to ME/CFS. We hope to publish the free 2020-2021 leaflet by early October – once flu vaccination programmes begin, and we have all the relevant information about the new vaccine. […]

Covid 19 Coronavirus: Kiwi Expert On Covid Survivors Affected By ME

Research

  By: John Gibb in the Otago Daily Times.   In a cruel twist, many Covid-19 survivors could be affected by a once-obscure chronic fatigue condition, initially termed the Tapanui flu, and whose existence was once ridiculed and denied. Emeritus Prof Warren Tate, 73, of the University of Otago biochemistry department, officially retired recently but is continuing […]

A Reminder To You

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  By Anna Redshaw in M.E. Myself and I.   No amount of willpower or positive thinking will rectify the faulty ATP production within your body. No amount of wishful thinking will suddenly see your likely-mitochondria-failure reversed. Please don’t let flippant remarks by others, or by articles written by those outside this community, about how […]

Craniocervical Instability, Neurosurgery And M.E.: Just The Facts, Please – An Editorial By Jeff Wood

Craniocervical-Junction-CCJ-1

  By Jeff Wood in Health Rising.   Jeff Wood’s remarkable recovery from severe ME/CFS following spinal surgery to correct craniocervical instability (CCI) and other problems shocked the ME/CFS community. It’s safe to say that almost no one saw that coming. Since then, others, including Jen Brea and Julie Rehmeyer, have been diagnosed and undergone […]

Long-Term Saline Use Improves Cardiovascular Functioning In ME/CFS: A Workwell Case Report

Saline

    By Cort Johnson in Health Rising.   The exercise physiologists at the Workwell Foundation are pretty darn good at providing thought provoking case reports. A couple of years ago, a Workwell case report indicated that a very ill ME/CFS patient was able, using Workwell’s heart rate-based exercise program, to not just halt the steady decline […]

Dublin Mum Shares Warning Signs Of ME In Children After Daughter’s Diagnosis Aged Just 7

Educating-Children-Teens-with-CFS

  By Blathin De Paor in RSVP Live. (Should you wish to contact Paul O’Connell directly about this story, you can find him on Twitter: @PaulEOC). Chronic Fatigue Syndrome, is a condition many consider to be rare, but the reality is, it’s simply massively underdiagnosed. However, experts are seeing a huge spike in the number […]

Trial By Error: Some Stuff About Long-Covid, BMJ And ME

David Tuller

    By David Tuller, DrPH It is clear that there will be much grappling going forward over the similarities and differences between long-Covid and ME (or CFS, or ME/CFS, or whatever this illness or cluster of illnesses is being called). The two entities overlap in some ways, but no one should conflate them. We […]

How COVID-19 Could Reveal The Secrets Of Chronic Fatigue Syndrome

Coronavirus_illustration

  By David J. Craig in Columbia Magazine. Physicians have seen it before: in the aftermath of a viral epidemic, survivors complain of a crushing lethargy, mental fogginess, sleep difficulty, and muscle pain. Many are eventually diagnosed with myalgic encephalomyelitis, also called chronic fatigue syndrome (ME/CFS), a poorly understood condition that has no FDA-approved treatment and […]

Stick With It…….

Writing Poetry

    STICK WITH IT….. In life we like to fit right in To mix in with the crowd Not to shout, not stand out Not to be too loud But sometimes things just come along That force us into change I’m talking Chronic Illness Making life so strange When M.E. hits, it hits you […]

Yet Another Global Health Crisis Awaits the World After The Coronavirus Pandemic

Health

  From Yahoo! News.   There is no end to the coronavirus pandemic in sight yet and the world is already staring at another health crisis: the Covid-19 aftermath. They call it the “post-Covid syndrome”. Post-Covid-19 analysis by top American scientific bodies the National Center for Biotechnology Information and the Centers for Disease Control and […]

‘Lockdown Is Basically What Having M.E/C.F.S Is Like’: An Interview With Sally Callow, Pt 1

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  By Paris Ali-Pilling inThe Star and Crescent.   Paris Ali-Pilling talks to Sally Callow in a two part series. In part one, Sally explains about the impact of the pandemic on her social enterprise. Sally is the founder of Stripy Lightbulb CIC and ME Foggy Dog, which offer training and aim to raise awareness about M.E/C.F.S. Interview transcribed by […]

Leeds Disabled Activist Campaigning Against Proposed Changes To Chronic Pain Treatment

Chronic Pain

  By Mark Lavery in the Yorkshire Evening Post.   A disabled activist  from Leeds who suffers from a  chronic pain condition is campaigning against major changes to the way patients like them are treated. Saba Mir, 28, of Woodhouse – who is non-binary – has suffered from ME for two years and is in severe and […]

Long-Term Effects Of Virus Shine A Light On Chronic Fatigue Sufferers

Australia

    By Sue Green in The Sydney Morning Herald. It would be utterly perverse to say I’m glad COVID-19 leaves some sufferers with long-term symptoms, including crippling fatigue. I wouldn’t wish that on anyone. But as one who has coped with that very thing along with chronic pain for more than a decade, I […]

The Brain Fog In Chronic Fatigue Syndrome (ME/CFS) Plus Even Mini Tilt Table Tests Wrack The Severely Ill

Brain Fog

By Cort Johnson in Health Rising.   The two Dutch researchers, C. Linda van Campen and Frans Visser, and Peter Rowe from the U.S., have been on a tear recently. The Van Campen/Visser team (mostly with Peter Rowe) have published 6 ME/CFS studies thus far in 2020, one in 2019 and three in 2018. This […]

Makayla And Her Av1

Makayla

  From noisolation. Due to her ME, Makayla is not able to attend school full time. She was forced to give up her favourite sports and hobbies, which included dancing and swimming. Makayla has tried to combat the social isolation and loneliness she feels through interfaces such as Instagram, where she can make friends who […]

Trial By Error: The Lightning Process Strikes Again

Lightning

  By David Tuller, DrPH The Lightning Process was founded more than two decades ago by Phil Parker, a British Tarot reader and specialist in auras and spiritual guides. The LP, as it is often called, could be described as “a neuro-physiological training programme based on self-coaching, concepts from Positive Psychology, Osteopathy and Neuro Linguistic Programming,” as […]

Low Brain Blood Flows And Orthostatic Intolerance Ubiquitous In Chronic Fatigue Syndrome (ME/CFS)

brain-power

By Cort Johnson in Health Rising.   Every once in a while a study comes along for which terms like “seminal” or “groundbreaking” seems appropriate. The 2020 Van Campen/Rowe/Visser study, “Cerebral blood flow is reduced in ME/CFS during head-up tilt testing even in the absence of hypotension or tachycardia: A quantitative, controlled study using Doppler […]

Forward ME Letter Re: Post-Covid/ME/CFS Management With Caution About Exercise

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  By Russell Fleming, Content Manager, ME Association The following letter has been produced by the Countess of Mar and members of Forward ME which is a collaboration of M.E. charities that includes the ME Association. It has been used by, for example, Physios 4 ME, when encountering guidance from other organisations that has raised […]

Celtic Great Davie Provan On Struggling To Cope When ME Ended His Career At 29

OIP (4)

  By Aidan Smith in the Scotsman. Some good things have come out of Covid. Bluer skies, clearer waters, families round the dinner table, a deeper appreciation of the NHS and also schoolteachers. Doubtless you’ll be able to think of 
others and today Davie Provan nominates one that’s close to his heart. “There’s a whole lot more […]

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