ME Symptoms

The Expert Testimony To NICE That Took Apart The Case For CBT And Graded Exercise For ME/CFS

NICE

    From ME/CFS Research Review.   Professor Jonathan Edwards told NICE it should not recommend either CBT or graded exercise as all the trial evidence for them used subjective outcomes in unblinded trials, giving unreliable results. He showed why blinding in ME/CFS trials is essential, despite PACE supporters claiming it is not. Edwards said […]

Trial By Error: Game-Changing Articles In The Guardian And The New York Times

David Tuller

  By David Tuller, DrPH The relationship between what is being called long-Covid and ME/CFS (and its variants) is complex. The conditions overlap in ways that are poorly understood, and the mechanisms through which they produce such significant disabilities remain elusive. As the coronavirus pandemic enters its second year, many tens or hundreds of thousands […]

Large Long COVID Study And Major Media Articles Underscore Link To ME/CFS – Plus Countdown For The NIH

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    By Cort Johnson in Health Rising.   “The findings show that—even in those people who don’t require hospitalization for severe COVID-19—the condition’s prolonged symptoms are having a major impact on lives and livelihoods, both here and around the world. While the number of people affected isn’t yet known, if even a small proportion […]

It Is Not Only Drugs And Devices That Can Harm

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  By Cariline Struthers in Health Watch. “First Do No Harm”, the Independent Medicines and Medical Devices Safety Review focusing on three drug/devices aimed at women (aka the Cumberlege report) was published on 8 July 2020.(1) It should have welcome implications for much-needed change in the way patients are treated. Two of the review’s proposals […]

Post-Exertional Neuroimmune Exhaustion (PENE)

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      From ME International.   The information provided at this site is not intended to diagnose or treat any illness and is not to be considered as medical advice. Below is information from the International Consensus Primer for ME that relates to PENE.  We feel it is important all people with myalgic encephalomyelitis […]

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients Exhibit Altered T Cell Metabolism And Cytokine Associations

Stem Cells

By Alexandra H. Mandarano, Jessica Maya, […], and Maureen R. Hanson in The Journal Of Clinical Investigation.   Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex disease with no known cause or mechanism. There is an increasing appreciation for the role of immune and metabolic dysfunction in the disease. ME/CFS has historically presented in outbreaks, […]

Blue Badge Permit ‘Shocking Disparity’ Revealed

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  By Alex Homer & Ollie Sirrel in BBC News. People with non-visible disabilities such as autism or Parkinson’s disease face a “shocking disparity” when applying for a blue badge parking permit, a BBC investigation has found. Scores of councils have lower approval rates for non-visible disabilities applications compared to those for physical impairments. Non-visible […]

Trial By Error: New Study Reports First-Hand Accounts Of 1955 Hospital Outbreak

David Tuller

  By David Tuller, DrPH The name myalgic encephalomyelitis is inextricably linked with an outbreak of what appeared by all accounts to be a viral illness at London’s Royal Free Hospital in the second half of 1955. More than 200 people, most of them female staff and students, fell ill. Some reported long-term complications. Although no pathogen […]

Chronic Fatigue Syndrome (Myalgic encephalomyelitis)

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  From The British Medical Journal.   Chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) can be distinguished from medical and psychiatric conditions in the differential diagnosis of fatigue by the presence of debilitating fatigue for more than 6 months; combinations of cognitive dysfunction, total body pain, and unrefreshing sleep that does not restore normal function; and postexertional […]

Solve M.E. Covid-19 And ME/CFS Information Center

SolveMECFS

  Welcome to Solve M.E.’s COVID-19 information hub. This information center is designed to provide the most current COVID-19 information for people with ME/CFS, health care providers, and people with questions about the emerging connections between COVID-19 and ME/CFS. New data is published frequently. Please check back for updates.   To read more, click on […]

Inspirational Holly Moscrop Whose Life Was “Knocked Off” Her Planned Path Finds A New Way To Follow Her Dreams Of Farming

News

  By Sophie McCandlish in The Yorkshire Post. Over the past five years Lincoln Red cows have become a feature at Stockheld Grange Farm in Scholes. The move to this particular breed which saw Roger Moscrop buy three heifers and then a further five within a week was inspired by his 24-year-old daughter Holly. Holly, who suffers […]

New Clinical Trial To Test Whether Structured Exercise Benefits ‘Long Covid’ Patients

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  TO ALL WITH AN INTEREST IN LONG-COVID AND M.E. Warwick University have been given a £5m research grant from The National Institute of Health to undertake a: “New clinical trial to test whether structured exercise benefits ‘long Covid’ patients.” The link to the details are below. I have emailed their media centre with my […]

ME Association Writes To Chief Medical Officer About Vaccine

Vaccination

From The ME Association. The ME Association has written to Professor Chris Whitty, Chief Medical Officer, and the Joint Committee on Vaccination and Immunisation, to seek clarification on COVID-19 vaccine priority for people with ME/CFS Dear Professor Whitty and the Joint Committee on Vaccination and Immunisation, The ME Association is starting to hear from people […]

A Doctor With Long-Covid Finds Out The Downside Of Graded Exercise Therapy

Exercise

  By Jerome Burne for the Daily Mail.   As they’re told to exercise despite crippling fatigue, and advised they should banish ‘negative thoughts’…No wonder doctors think their long Covid treatment is misguided. Professor Brendan Delaney developed a mild case of Covid just before the first lockdown in March, suffering the now- familiar symptoms of a cough, […]

Trial By Error: Psych Issues Do Not Predict ME/CFS, New Chicago Study Shows

David Tuller

    By David Tuller, DrPH. For decades, investigators have argued over the causes of the illness or cluster of illnesses variously called myalgic encephalomyelitis (ME), chronic fatigue syndrome (CFS),  ME/CFS, CFS/ME and other names. In the absence of an adequate explanation for the debilitating symptoms, a flawed approach to intervention based on the perceived […]

A Geneticist’s Quest To Understand His Son’s Mysterious Disease

Ron Davis

By Tracie White in The Scientist. Ronald Davis of Stanford University changed his focus to research on ME/CFS, the disease formerly known as chronic fatigue syndrome, in a bid to help his son and others like him.   About 10 years ago, Stanford University genomicist Ronald W. Davis began a new investigation into a mysterious […]

When Dr. Peter Rowe Speaks – We Should Listen: Dr. Rowe On ME/CFS At The Dysautonomia International Zoom Conference

Cort Johnson

  By Cort Johnson in Health Rising. A riff on Dr. Peter Rowe’s presentation at the 2020 Dysautonomia International Conference (note that I expand on many of Rowe’s points; i.e. not all the words are his.) Lauren Stiles, the founder of Dysautonomia International, has long believed that the chronic fatigue syndrome (ME/CFS) and dysautonomia fields […]

COVID-19 Vaccine Eligibility, Safety And ME/CFS – What We Know So Far

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Dr Charles Shepherd, Medical Adviser, ME Association With the start of vaccination against COVID-19 occurring this week, we are receiving queries about where people with ME/CFS will be on the priority list. The Joint Committee on Vaccination and Immunisation (JCVI) has produced a list of different groups of people in the order that they are […]

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Organic Disease Or Psychosomatic Illness ? A Re-Examination Of The Royal Free Epidemic Of 1955

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  By Rosemary Underhill and Rosemarie Baillod in MDPI.   Abstract Background and Objectives: Controversy exists over whether myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is an organic disease or a psychosomatic illness. ME/CFS usually occurs as sporadic cases, but epidemics (outbreaks) have occurred worldwide. Myalgic encephalomyelitis was named to describe an outbreak affecting the lymphatic, muscular, and nervous systems that closed […]

Ivabradine – Could A “Wonder Drug” For POTS Work In ME/CFS ?

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By Cort Johnson in Health Rising.   Ivabradine appears to work quite well in POTS  – but should we stop there? Ivabradine was approved for use in the European Union in 2005, but it’s pretty new to the scene in the U.S. It was FDA approved in only 2015. That means it doesn’t have much […]

An Early Christmas Present For Physios For ME

Research

From Physios For ME.   In May 2020 we were thrilled to announce that we had obtained funding from the ME Association Ramsey Research Fund for a study; “Feasibility of investigating oxygen consumption (VO2), heart rate, blood pressure, lactic acid levels and activity levels of people with Myalgic Encephalomyelitis during normal daily activities.” You can […]

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