ME/CFS Information

Post-Exertional Neuroimmune Exhaustion (PENE)

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      From ME International.   The information provided at this site is not intended to diagnose or treat any illness and is not to be considered as medical advice. Below is information from the International Consensus Primer for ME that relates to PENE.  We feel it is important all people with myalgic encephalomyelitis […]

‘Full-Up’ Signs In Place As Medical Students Let Us Unpack The Mysteries Of ME/CFS

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  From The ME Association. This is a recording of a virtual educational meeting called ‘Demystifying ME/CFS’ which was held on Thursday, 14 January 2021. It was organised for doctors, other health professionals and medical students by students who run the Cambridge University General Practice Society. People with ME/CFS were also invited to attend.   To watch […]

Trial By Error: New Study Reports First-Hand Accounts Of 1955 Hospital Outbreak

David Tuller

  By David Tuller, DrPH The name myalgic encephalomyelitis is inextricably linked with an outbreak of what appeared by all accounts to be a viral illness at London’s Royal Free Hospital in the second half of 1955. More than 200 people, most of them female staff and students, fell ill. Some reported long-term complications. Although no pathogen […]

Chronic Fatigue Syndrome (Myalgic encephalomyelitis)

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  From The British Medical Journal.   Chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) can be distinguished from medical and psychiatric conditions in the differential diagnosis of fatigue by the presence of debilitating fatigue for more than 6 months; combinations of cognitive dysfunction, total body pain, and unrefreshing sleep that does not restore normal function; and postexertional […]

Solve M.E. Covid-19 And ME/CFS Information Center

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  Welcome to Solve M.E.’s COVID-19 information hub. This information center is designed to provide the most current COVID-19 information for people with ME/CFS, health care providers, and people with questions about the emerging connections between COVID-19 and ME/CFS. New data is published frequently. Please check back for updates.   To read more, click on […]

M.E. Charity Statement On The Covid Vaccine, 12th January 2021

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  “ M.E. charity statement on the Covid vaccine, 12th January 2021 We are receiving a very high number of enquiries from people with M.E. asking if they should have the Covid-19 vaccine, and when they should expect to be offered it. The 25% M.E. Group, Action for M.E. and the ME Association have collaborated […]

Inspirational Holly Moscrop Whose Life Was “Knocked Off” Her Planned Path Finds A New Way To Follow Her Dreams Of Farming

News

  By Sophie McCandlish in The Yorkshire Post. Over the past five years Lincoln Red cows have become a feature at Stockheld Grange Farm in Scholes. The move to this particular breed which saw Roger Moscrop buy three heifers and then a further five within a week was inspired by his 24-year-old daughter Holly. Holly, who suffers […]

2020: Looking Back At A Year Of ME/CFS Research

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  By ME/CFS Skeptic. 2020 was an exceptional year in many ways. The coronavirus pandemic swept across the world causing more than a million deaths and forcing most developed nations into lockdown. Although COVID-19 brought havoc and despair, it also renewed scientific interest in postviral syndromes and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Hopefully, this will […]

ME Association Writes To Chief Medical Officer About Vaccine

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From The ME Association. The ME Association has written to Professor Chris Whitty, Chief Medical Officer, and the Joint Committee on Vaccination and Immunisation, to seek clarification on COVID-19 vaccine priority for people with ME/CFS Dear Professor Whitty and the Joint Committee on Vaccination and Immunisation, The ME Association is starting to hear from people […]

The Evidence Base For Physiotherapy In Myalgic Encephalomyelitis/Chronic Fatigue Syndrome When Considering Post-Exertional Malaise: A Systematic Review And Narrative Synthesis

Research

  By Marjon E. A. Wormgoor and Sanne C. Rodenburg in the Journal of Translational Medicine. Abstract Background Due to the inconsistent use of diagnostic criteria in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), it is unsure whether physiotherapeutic management regarded effective in ME/CFS is appropriate for patients diagnosed with criteria that consider post-exertional malaise (PEM) as a hallmark feature. […]

Trial By Error: Psych Issues Do Not Predict ME/CFS, New Chicago Study Shows

David Tuller

    By David Tuller, DrPH. For decades, investigators have argued over the causes of the illness or cluster of illnesses variously called myalgic encephalomyelitis (ME), chronic fatigue syndrome (CFS),  ME/CFS, CFS/ME and other names. In the absence of an adequate explanation for the debilitating symptoms, a flawed approach to intervention based on the perceived […]

A Geneticist’s Quest To Understand His Son’s Mysterious Disease

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By Tracie White in The Scientist. Ronald Davis of Stanford University changed his focus to research on ME/CFS, the disease formerly known as chronic fatigue syndrome, in a bid to help his son and others like him.   About 10 years ago, Stanford University genomicist Ronald W. Davis began a new investigation into a mysterious […]

A Literature Review Of GP Knowledge And Understanding Of ME/CFS: A Report From The Socioeconomic Working Group Of The European Network On ME/CFS (EUROMENE)

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  By Derek F H Pheby et al in Pubmed. Abstract Background and Objectives: The socioeconomic working group of the European myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) Research Network (EUROMENE) has conducted a review of the literature pertaining to GPs’ knowledge and understanding of ME/CFS; Materials and Methods: A MEDLINE search was carried out.   The papers identified were reviewed […]

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Organic Disease Or Psychosomatic Illness ? A Re-Examination Of The Royal Free Epidemic Of 1955

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  By Rosemary Underhill and Rosemarie Baillod in MDPI.   Abstract Background and Objectives: Controversy exists over whether myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is an organic disease or a psychosomatic illness. ME/CFS usually occurs as sporadic cases, but epidemics (outbreaks) have occurred worldwide. Myalgic encephalomyelitis was named to describe an outbreak affecting the lymphatic, muscular, and nervous systems that closed […]

History Made ! Department Of Defense Funds Its First-Ever ME/CFS Research Projects

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  From Solve M.E. Since 2017, unleashing the potential research funds from the Department of Defense (DOD) for ME/CFS has been one of our highest priorities. After more than three years of hard work, the first ME/CFS awards *ever* funded by Peer Reviewed Medical Research Program (PRMRP) have been announced! This has been a really hard year […]

Mitochondrial Enhancers For Chronic Fatigue Syndrome (ME/CFS) And Fibromyalgia Pt. I: D-Ribose, CoQ10 And PQQ

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  By Cort Johnson in Health Rising. Is more energy the cure-all for chronic fatigue syndrome (ME/CFS) and fibromyalgia? Dr. Lerner observed years ago that symptoms in ME/CFS/FM tend to go up when energy levels go down and decline when energy levels go up. Even at rest, our muscles are affected by low energy levels. […]

Expert Reaction To The BMJ Editorial Calling For The Abandonment Of Standards

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  By Brian Hughes in The Science Bit.   An invited, non-peer-reviewed guest editorial in the BMJ has claimed that behavioural interventions for “complex conditions” (such as ME or CFS) should not be judged using the customary criteria — and that the relevant studies should not be evaluated as though they were proper randomised controlled trials — […]

NICE, The Media And The Cultural Problem Of Myalgic Encephalomyelitis (ME)

Valerie Eliot-Smith

  By Valerie Eliot Smith.   RE-CAP: the ongoing NICE guideline in development (GID) process. In 2017, the English National Institute for Health and Care Excellence (NICE) began the process of updating the existing guideline on myalgic encephalomyelitis (ME), originally published in 2007. The draft consultation documents were published on 10 November 2020, followed by a six-week consultation period concluding […]

Science Behind DecodeME Uncovers Potential Covid-19 Treatments

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  From DecodeME.   DecodeME’s Dr Veronique Vitart, Dr Shona Kerr and Professor Chris Ponting are among a group of researchers who have just published a study in the top science journal Nature on the role that genetics plays in severe Covid-19. Using the same technique that will power DecodeME, they found that people with particular DNA […]

Researchers Claim Proof Chronic Fatigue Syndrome Is A Bodily Disease – Expert Reaction

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  From Science Media Centre. Researchers claim they have “unequivocally proved” that Chronic Fatigue Syndrome is not a psychosomatic disease. One of their studies finds mitochondria – known as the “powerhouse of the cell” – are dysfunctional in patients with the syndrome. A second study finds epigenetic similarities among sufferers. The SMC asked experts to comment on the research.  Associate […]

Trial By Error: GP Group Removes Online GET/CBT Medical Training Program

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    By David Tuller, DrPH In early 2019, I wrote about an awful online training course for general practitioners on recognizing and caring for patients diagnosed with what was referred to as CFS/ME. The module, called METRIC, promised to provide “GPs and other primary care practitioners with an overview of the presentation, diagnosis, assessment and ongoing […]

Forward-ME Call For Health Warning To Be Put On Existing NICE Guideline For ME/CFS

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  From The ME Association. A highly influential UK campaign group is demanding that a health warning be put on the existing NICE guideline for ME/CFS – to try and stop more patients being damaged by graded exercise. Some 24 members of the Forward-ME Group – led by founder The Countess of Mar – have signed […]

New ! ME/CFS Family Impact Survey By Dr Nina Muirhead & Cardiff University

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By Russell Fleming in The ME Association. We are excited to announce a new international research study looking at the impact of ME/CFS on the quality of life of both patients and their family members. This is a short and simple online survey designed to be accessible to all adults 18+, including severely affected patients. […]

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