Medical General

Understanding The Causes Of Chronic Fatigue Syndrome​ Through The Vagus Nerve

Vagus Nerve

  From Parasym.   Chronic Fatigue Syndrome: examining the impact of infections. Chronic Fatigue Syndrome/Myalgic Encephalomyelitis, or CFS, is a long-term illness that is characterised by extreme tiredness in addition to a host of other discomforts. Researchers have struggled to find an identifiable origin to this debilitating disease and as a result, it has proven […]

Shame, Stigma And “Unexplained” Symptoms

medical

  Katharine Cheston discusses the isolation, disbelief and stigma experienced by people with poorly understood medical conditions Autobiographical accounts of illness tend to follow a similar script. Typically, they open with an interruption: new symptoms render the normal abnormal, precluding what had previously been taken for granted. These symptoms are recounted to a healthcare professional: […]

DWP ‘Performs Partial U-turn’ Over DNS ‘Ban’ After Criticism From Campaigners

dwp-logo

  By John Pring in Disability News Service.   The Department for Work and Pensions (DWP) appears to have performed a partial U-turn after disabled campaigners reacted angrily to an apparent ban on media requests from Disability News Service (DNS). Last week, DNS reported how DWP’s press office had failed to provide a meaningful response […]

The ME Association Flu Vaccine Information And Guidance For 2020 – 2021

Flu (Text serie)

By Dr Charles Shepherd, Hon. Medical Adviser, ME Association. Each year we fully update the ME Association information and guidance on flu vaccination in relation to ME/CFS. We hope to publish the free 2020-2021 leaflet by early October – once flu vaccination programmes begin, and we have all the relevant information about the new vaccine. […]

Balancing Hope And Acceptance With A Chronic Illness

Blog

  By Caroline Elizabeth in the Frozen Amber Blog.   Finding acceptance while holding on to hope with a chronic illness is like walking a tightrope, especially as the years grind on. Hope is a vital life force that propels us, whereas acceptance allows us to discover new ways of living within the moment. Clearly […]

Covid 19 Coronavirus: Kiwi Expert On Covid Survivors Affected By ME

Research

  By: John Gibb in the Otago Daily Times.   In a cruel twist, many Covid-19 survivors could be affected by a once-obscure chronic fatigue condition, initially termed the Tapanui flu, and whose existence was once ridiculed and denied. Emeritus Prof Warren Tate, 73, of the University of Otago biochemistry department, officially retired recently but is continuing […]

Understanding Long Covid: A Shortcut To Solving ME/CFS ?

Coronavirus_illustration

  By Simon McGrath in ME/CFS Research Review. Large numbers of people, around one in 10, don’t make a normal recovery from coronavirus but continue to be ill with “long covid”. The illness is likely to have several different causes, probably including ME/CFS. Post-exertional malaise appears to be a common symptom. Long covid patients have […]

How The Modern World Was Shaped By Epidemics 500 Years Ago

COVID-19-Pandemic-min

    By Matthew Ward in The Conversation.   The coronavirus pandemic has been compared with many previous contagions, including the great plague and the 1918 Spanish flu pandemic. However, there has been little consideration of probably the most significant historical episode of disease. The modern world as we know it would not have existed without the epidemics that […]

Disabled Peers Call On Government To Scrap Care Act Coronavirus Powers

Parliament

  By John Pring in Disability News Service.   Two disabled peers have called on the health and social care secretary to scrap powers given to local authorities that allow them to suspend some of their social care duties during the coronavirus pandemic. Crossbench peers Baroness [Jane] Campbell and Baroness [Tanni] Grey-Thompson have written to […]

DWP Silent As It Stops Answering Questions From Disability News Service

DWP Caxton House

  By John Pring in Disability News Service.   The Department for Work and Pensions (DWP) has stopped answering questions from Disability News Service (DNS), and is refusing to explain why it has taken the “totally unacceptable” step. Since early July, DWP’s press office has failed to provide a meaningful response to questions submitted by […]

Blue Badge Eligibility – Update September 2020

access-bluebadge

  From Independent Living.   If you are a Blue Badge holder, and you have been struggling to find an unoccupied disabled parking bay, it is probably not surprising. According to data obtained from Freedom of Information requests made by confused.com, there are 38 badge holders per parking space… Since the welcome extension of Blue […]

Trial By Error: Some Stuff About Long-Covid, BMJ And ME

David Tuller

    By David Tuller, DrPH It is clear that there will be much grappling going forward over the similarities and differences between long-Covid and ME (or CFS, or ME/CFS, or whatever this illness or cluster of illnesses is being called). The two entities overlap in some ways, but no one should conflate them. We […]

How COVID-19 Could Reveal The Secrets Of Chronic Fatigue Syndrome

Coronavirus_illustration

  By David J. Craig in Columbia Magazine. Physicians have seen it before: in the aftermath of a viral epidemic, survivors complain of a crushing lethargy, mental fogginess, sleep difficulty, and muscle pain. Many are eventually diagnosed with myalgic encephalomyelitis, also called chronic fatigue syndrome (ME/CFS), a poorly understood condition that has no FDA-approved treatment and […]

Stick With It…….

Writing Poetry

    STICK WITH IT….. In life we like to fit right in To mix in with the crowd Not to shout, not stand out Not to be too loud But sometimes things just come along That force us into change I’m talking Chronic Illness Making life so strange When M.E. hits, it hits you […]

Yet Another Global Health Crisis Awaits the World After The Coronavirus Pandemic

Health

  From Yahoo! News.   There is no end to the coronavirus pandemic in sight yet and the world is already staring at another health crisis: the Covid-19 aftermath. They call it the “post-Covid syndrome”. Post-Covid-19 analysis by top American scientific bodies the National Center for Biotechnology Information and the Centers for Disease Control and […]

Leeds Disabled Activist Campaigning Against Proposed Changes To Chronic Pain Treatment

Chronic Pain

  By Mark Lavery in the Yorkshire Evening Post.   A disabled activist  from Leeds who suffers from a  chronic pain condition is campaigning against major changes to the way patients like them are treated. Saba Mir, 28, of Woodhouse – who is non-binary – has suffered from ME for two years and is in severe and […]

The Government Has Failed ‘Spectacularly’ To Support Disabled People Returning To Work

Disability

  By Vicky Foxcroft MP in The House.   Two thirds of all Covid-19 deaths so far have been disabled people. The Government needs to ensure those who were shielding are not forced to go back to an unsafe workplace. Since the national shielding programme ended on the 1st of August, lots of people have […]

Vitamin C Could Help Older Adults Retain Muscle Mass – New Research

Food

  By Alisia Welch and Richard Hayhoe in The Conversation.   As we get older, our skeletal muscle mass, strength and power to move gradually decline, which may lead to a condition called sarcopenia. Sarcopenia affects more than 50 million people over the age of 50 years worldwide, and contributes to type 2 diabetes, frailty, physical disability, loss of independence […]

Here’s What A Hygiene Expert Wants You To Know About Hand Sanitiser

hand-sanitizer

  By Natasha Hinde in HUFFPOST.   Hand sanitiser can kill coronavirus, but its overall effectiveness very much depends on the type you use. Homes, businesses and schools across the UK are potentially using hand sanitisers that can take up to two minutes to kill the virus, as opposed to the standard 20-30 seconds – and could […]

How COVID-19 Could Reveal The Secrets Of Chronic Fatigue Syndrome

Fatigue

By David J Craig in Columbia Magazine.   Physicians have seen it before: in the aftermath of a viral epidemic, survivors complain of a crushing lethargy, mental fogginess, sleep difficulty, and muscle pain. Many are eventually diagnosed with myalgic encephalomyelitis, also called chronic fatigue syndrome (ME/CFS), a poorly understood condition that has no FDA-approved treatment and […]

The York Disability Rights Forum

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  At the request of York Independent Living Network, we’re supporting the development of a disabled person-led forum for anyone living or working in York who identifies as disabled or as having a disability. We aim to ensure that the Forum is led by, and open to, people and allies from right across a range of […]

Why We Need More Diversity At The Top

Disability Dice

  From Disability Horizons. Diversity and inclusion are as important today – and often lacking – as they have ever been. The recent Black Lives Matter campaign and annual LGBT Pride month were a reminder that many people from different walks of life still don’t have a voice. Disability Horizons was created with this in mind, […]

Parks And Green Spaces Are Important For Our Mental Health – But We Need To Make Sure That Everyone Can Benefit

Rowntree Park Lodge

    By Wendy Masterson, Hannah Carver and Tessa Parkes in The Conversation.   How does walking through a forest make you feel? Peaceful? Blissful? Reflective? For many people, lockdown brought a new appreciation of nature and what it means for our well-being. The health benefits of immersing ourselves in “greenspace” are now widely accepted. […]

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