Medical General

The Fascinating Story Of Placebos – And Why Doctors Should Use Them More Often

Placebo

By Jeremy Howick in The Conversation.   Plato’s cure for headaches involved: a certain leaf, but there was a charm to go with the remedy; and if one uttered the charm at the moment of its application, the remedy made one perfectly well; but without the charm there was no efficacy in the leaf. We would now call […]

Blue Badge Permit ‘Shocking Disparity’ Revealed

access-bluebadge

  By Alex Homer & Ollie Sirrel in BBC News. People with non-visible disabilities such as autism or Parkinson’s disease face a “shocking disparity” when applying for a blue badge parking permit, a BBC investigation has found. Scores of councils have lower approval rates for non-visible disabilities applications compared to those for physical impairments. Non-visible […]

Solve M.E. Covid-19 And ME/CFS Information Center

SolveMECFS

  Welcome to Solve M.E.’s COVID-19 information hub. This information center is designed to provide the most current COVID-19 information for people with ME/CFS, health care providers, and people with questions about the emerging connections between COVID-19 and ME/CFS. New data is published frequently. Please check back for updates.   To read more, click on […]

New Clinical Trial To Test Whether Structured Exercise Benefits ‘Long Covid’ Patients

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  TO ALL WITH AN INTEREST IN LONG-COVID AND M.E. Warwick University have been given a £5m research grant from The National Institute of Health to undertake a: “New clinical trial to test whether structured exercise benefits ‘long Covid’ patients.” The link to the details are below. I have emailed their media centre with my […]

Disabled People Highlight Scores Of Lockdown Concerns

Disability

  By John Pring in Disability News Service. Disabled people have highlighted gaps in social security support, flaws in the shielding system and worries about access to vaccines, after they were asked to describe their concerns as England entered its third national coronavirus lockdown*. They raised scores of different issues, ranging from worries about the accessibility […]

A Doctor With Long-Covid Finds Out The Downside Of Graded Exercise Therapy

Exercise

  By Jerome Burne for the Daily Mail.   As they’re told to exercise despite crippling fatigue, and advised they should banish ‘negative thoughts’…No wonder doctors think their long Covid treatment is misguided. Professor Brendan Delaney developed a mild case of Covid just before the first lockdown in March, suffering the now- familiar symptoms of a cough, […]

An Accessible Railway Would Get More Than 50,000 Disabled People Into Work

RAIL Branson 1...Handout picture released Tuesday June 5, 2001 of a Voyager diesel train which Sir Richard Branson hopes will kick start a "rail renaissance".  He hopes that the new 125 mph trains will drastically cut journey times on Virgin Rail's two routes - West Coast main line and CrossCountry (correct).  Complete with airline-style audio entertainment at every seat, the Voyager trains are being introduced initially on the CrossCountry Birmingham-Reading-Brighton route to beat heavy road congestion in the area.  The trains, which have an on-board shop to replace the old-style buffet, will carry passengers on a local shuttle service between Birmingham and Reading and from July 22 they will become part of the Birmingham-Brighton timetable.  See PA story RAIL Branson.  PA photo: Handout/Virgin.

  From Disability Horizons. An accessible rail system must be prioritised as part of the economic recovery from Covid-19, says disability charity Leonard Cheshire. At present, 41% of railway stations in Britain are still not step-free and the Government is still set to miss its 2030 target on creating step-free journeys for disabled people by 40 years […]

A Literature Review Of GP Knowledge And Understanding Of ME/CFS: A Report From The Socioeconomic Working Group Of The European Network On ME/CFS (EUROMENE)

Pub Med

  By Derek F H Pheby et al in Pubmed. Abstract Background and Objectives: The socioeconomic working group of the European myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) Research Network (EUROMENE) has conducted a review of the literature pertaining to GPs’ knowledge and understanding of ME/CFS; Materials and Methods: A MEDLINE search was carried out.   The papers identified were reviewed […]

COVID-19 Vaccine Eligibility, Safety And ME/CFS – What We Know So Far

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Dr Charles Shepherd, Medical Adviser, ME Association With the start of vaccination against COVID-19 occurring this week, we are receiving queries about where people with ME/CFS will be on the priority list. The Joint Committee on Vaccination and Immunisation (JCVI) has produced a list of different groups of people in the order that they are […]

Why We Need To Get Creative When It Comes To Talking About Pain

Chronic Pain

  By Jasmine Hearn and Stella Bullo in The Conversation.   What [do] I mean by sitting in a pit of fire? You’ve got every nerve ending that’s just going hellfire, and you just don’t know what to do with yourself. Forty-two year old Emma has experienced chronic pain from a spinal cord injury for […]

Campaigner’s Research Shows Rail Access Information Is Often ‘Wildly Inaccurate’

wheelchair

By John Pring in Disability News Service.   Information used by disabled passengers to check if a rail station is accessible is frequently “wildly inaccurate”, and often leads them to book travel to and from stations they cannot access, according to new research. The research by disabled campaigner and access expert Doug Paulley shows that the accuracy […]

Living With ME/CFS Is Hell, And Many COVID Longhaulers Are Experiencing It

ME Symptoms

  By Elaine Roth in Scary Mommy blog.   It’s been more than a year since the very first case of COVID-19 was contracted in Hubei province in China. Since those very early days, the virus has gone on to infect more than 57 million people worldwide, with more than 11 million of those cases happening in the […]

The Guardian View On Disability Rights: A Deficit Of Attention

disability-rights

  From The Guardian.   Twenty-five years after discrimination was outlawed, progress towards inclusion and equality has gone into reverse. There should have been a feature film, or a primetime TV series. Maybe one day there will be. But this year, the 25th anniversary of the Disability Discrimination Act – a landmark piece of legislation […]

Expert Reaction To The BMJ Editorial Calling For The Abandonment Of Standards

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  By Brian Hughes in The Science Bit.   An invited, non-peer-reviewed guest editorial in the BMJ has claimed that behavioural interventions for “complex conditions” (such as ME or CFS) should not be judged using the customary criteria — and that the relevant studies should not be evaluated as though they were proper randomised controlled trials — […]

Today’s Best Practice Will Be Rubbished Tomorrow

Medical

  Posted by BJGP Life. Charles Todd qualified as a GP in 1981 and then spent twenty years working in Zimbabwe. He recently retired as a GP partner in Buckinghamshire. IN MY FIRST JOB AFTER QUALIFYING in 1977 as a house physician in cardiology, on call frequently involved “clerking” mostly middle-aged men having heart attacks and admitting them […]

#Walking From Home: The Wheelchair User

Wheelchair

    Caroline lives in a seaside town in England and is a member of one of our Local Groups of volunteers.  As a wheelchair user, Caroline is passionate about improving streets and the access to them for everyone. In normal times, Caroline’s favourite things are being with friends, volunteering and seeing the sea. Here she […]

Chronic Fatigue Syndrome, Migraines And “Brain Fog” – An Interview With Dr. Nancy Klimas

Migraine

From The Honest Migraine.   The Honest Migraine is pleased to share an exclusive, three-part interview with highly respected expert, Dr. Nancy Klimas, who holds multiple noteworthy positions including Director, Institute for Neuro-Immune Medicine, Nova Southeastern University. Klimas specializes in myalgic encephalomyelitis – chronic fatigue syndrome (ME/CFS), which commonly results in migraines, “brain fog,” and […]

How To Manage Long Covid-19 Symptoms And Fatigue

Fatigue

  By Megan E. Doherty in elemental. Covid-19 is new, but the ME/CFS community has dealt with long-haul-like symptoms for years. Here’s how they cope. Asthe pandemic has progressed, it has become clear that a good chunk of Covid-19 patients suffer symptoms for weeks, even months, after first getting sick. Many of them deal with fatigue, muscle and […]

New Test For Chronic Fatigue Syndrome Could Help COVID-19 Patients

Blood Test

  By Erica Gerald Mason in Very Well Health.    Researchers have developed a new test to diagnose myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS). The test stands out as the first successful molecular diagnostic tool for ME, a development that has been long anticipated by many healthcare providers and patients. This new tool […]

#Walkingfromhome: The Wheelchair User

Wheelchair

  From Living Streets. Caroline lives in a seaside town in England and is a member of one of our Local Groups of volunteers.  As a wheelchair user, Caroline is passionate about improving streets and the access to them for everyone. In normal times, Caroline’s favourite things are being with friends, volunteering and seeing the […]

Government’s Quiet Confession: We Must Do More To Protect Disabled People From COVID

Disability

  By John Pring in Disability News Service. The UK government appears to have bowed to months of pressure from disabled campaigners and allies, after quietly revealing that it is considering taking “further action” to protect disabled people from the pandemic. It comes alongside an admission that disabled people have been “disproportionately impacted” by COVID-19, […]

Paul Garner On long Haul Covid-19—Don’t Try To Dominate This Virus, Accommodate It

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  From BMJ Opinion.   “Has covid-19 gone?” My first thought every morning for six months. A few weeks ago, I was jubilant. The muscle aches had evaporated, my head was clear. I announced this to Rachael, a friend who knows chronic fatigue well. “Fantastic, Paul. You have found your baseline.” Crestfallen, I realised this […]

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