Medical General

‘But You Don’t Look Sick’: Living With An Invisible Disability

Invisible Illness

    By Nicole Precel in The Sydney Morning Herald.   When Rebecca Young parks her car in a disabled parking spot she often feels the searing stares. Is she driving her grandparents’ car? Why does she have a disability sticker when she is aged in her 30s and appears to walk perfectly well? Ms […]

Legal Firm Hands Out Cameras To Help Disabled Passengers Prove Discrimination

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  By John Pring in Disability News Service.   Disabled people who experience repeated discrimination on public transport are being offered a camera to record video evidence for possible legal cases. Legal firm Fry Law, which specialises in disability discrimination cases, is hoping some of the evidence produced can then be used to bring cases […]

Why Friendships Can Be Difficult With A Chronic Illness

Friend

    By Jo Moss in The Mighty.   There is a saying that goes, “It’s amazing how chronic illness turns friends into strangers and strangers into friends.” Maintaining friendships can be difficult for those of us with chronic illness. It may be hard for friends to understand the challenges we face, and the limitations our ill-health places on […]

Disability Hate Crime: Number Of Reports Rising

Disability Parking

From BBC News. Shocking but not surprising is how one campaigner has described a rise in disability hate crimes. Research by learning disability charity United Response found there were more than 6,000 reported cases in 2018-19, a rise of just under 12% in a year. The police force area with the largest number was West […]

Unsolicited Health Advice Is Intrusive & Invalidating – Please Stop

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    By Jo Moss in A Journey Through The Fog.   Everyone living with a chronic illness has had to deal with unsolicited advice about their health. Whether it’s from strangers on social media or from well-meaning friends and family, uninvited advice is a frustrating part of living with an incurable chronic illness. It’s […]

Chronic Inflammation Removes Motivation By Reducing Dopamine In The Brain

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    By Dr. Liji Thomas,  MD in News Medical Life Sciences.   Why do we feel listless when we are recovering from an illness? The answer is, apparently, that low-grade chronic inflammation interferes with the dopaminergic signaling system in the brain that motivates us to do things. This was reported in a new paper published in […]

The Cure For Toxic Positivity

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  By Rebecca Renner in Forge.   When my dad was diagnosed with colon cancer at age 52, I was flooded with emails, calls, and in-person pep talks from friends and acquaintances. Anyone who’d ever met me, it seemed, was eager to offer up a platitude. “Think positive,” they told me. “It will be okay. […]

Teen Housebound By ME Threatened Wiith Fine By School For Being ‘Truant’ – Now Benefits Assessor Says She’s Not In Enough Pain

Children

  By Claudia Tanner in iNews. Georgia Whyard claims teachers said she had ‘school phobia’ despite having an official diagnosis of myalgic encephalomyelitis In brief The once A* pupil suffers pain, extreme exhaustion, and migraines Mother says she was branded ‘school phobic’ due to poor attendance Department for Work and Pensions ruled she is not […]

The Power Of Listening

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    From A Life Hidden. In September 2016, I contributed to a training course for junior doctors at my local hospital.  The following was used as part of a seminar entitled “Patients and doctors as partners in learning”.  I used the term ME/CFS for this piece, as this is how ME is known within the NHS. […]

Socialising As A Disabled Person Can Mean Forking Out £70 For Brunch

Samantha Renke

    By Samantha Renke in the Metro.   If you think we live in an equal society, ask yourself this: have you ever payed £70 to eat brunch? This is exactly what happened to me just the other week. Besides work I’ve found myself socialising less and less over the past years. In part […]

Pavement Parking in York

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  PAVEMENT PARKING UPDATE FOR FULFORD AREA. Just to keep you up to date, I’ve received the following, and have asked to be kept in touch with any further action is taken, as their action must be proactive. If we call 101 as suggested, we can’t wait for the incident to be attended, as we […]

Novel Insights Into Overtraining Syndrome Suggest Chronic Fatigue Syndrome (ME/CFS) Connection

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  By Cort Johnson in Health Rising.   Were you an avid exerciser prior to becoming diagnosed with chronic fatigue syndrome (ME/CFS)? Are you sure you were diagnosed correctly? Symptomatically, overtraining syndrome (OTS) and ME/CFS appear almost identical. Symptoms like fatigue, pain, post-exertional malaise, sleep problems and cognitive issues pervade both “syndromes”. If it was […]

Why The Way Healthcare Professionals Measure Patient Pain Might Soon Be Changing

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    By Richard Day in The Conversation.   The last time you went to see a doctor, it was probably because you were in pain – it’s by far the main reason people access the health service. And if you did go because of pain, your doctor probably asked you to rate it on […]

Mitochondria Play An Unexpected Role In Killing Bacteria

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  By Katarina Zimmer in The Scientist.   B.H. Abuaita et al., “Mitochondria-derived vesicles deliver antimicrobial reactive oxygen species to control phagosome-localized Staphylococcus aureus,” Cell Host Microbe, 24:625–36, 2018. According to biology textbooks, a macrophage engulfs a bacterium, internalizes it in a toxin-filled vesicle called a phagosome, then shuttles the cellular remains to a lysosome for degradation. […]

Struggling to Accept the Days When Illness Keeps Me From Doing Anything

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By Sally Doherty in The Mighty.   I’ve had some of those awful days recently (they happen now and then, and more often than I’d like). You know the type: days when instead of your bed being somewhere that you go to rest, your bed becomes a prison that you can barely get out of. […]

Sjögren’s Syndrome

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  From ME Support. What is Sjögren’s Syndrome Sjögren’s Syndrome is the UK’s second most common autoimmune rheumatic disease, yet the condition remains under-recognised and frequently under-treated. It does not command a high profile within the medical profession, and the general public is largely unaware of the problems faced by sufferers. In reality, Sjögren’s Syndrome is […]

What It’s Really Like To Work Part-Time Because Of Chronic Illness

Work

    By Rachel Calhoun in The Mighty. My life of leisure is so amazing. I only have to work two days a week because I am so financially secure. I get to have days off during the week to do whatever I want while others are working their full time jobs.  I couldn’t keep from […]

Becoming A Wheelchair User: 3 Things I’ve Learned

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  From @creamcrackeredblog.   I became a wheelchair user two years ago, and in that time I’ve really had to work through a lot of anxiety and internalised ableism to become comfortable using my chair out in public. It hasn’t been easy and I still have my wobbles, but I’m now at the point where […]

The ‘All In The Mind’ Myth Of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Nursing

  From Nursing In Practice. Health professionals should be made aware that ME/CFS is not a psychological illness and in order to improve patient care, nurses need to better understand this illness and its impact on patients. Nurses often witness close-up the impact of acute and chronic illness on patients. Myalgic encephalomyelitis (ME)/chronic fatigue syndrome […]

Fibromyalgia And Chronic Fatigue Syndrome: The Gap Widens

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    By Cort Johnson in Health Rising. The similarities are striking: the symptoms, the shoddy research funding, the poor treatment from doctors, the gender imbalance and the stigma both still face. Both diseases still really exist on the fringes of medicine and medical research. Yet one disease is moving forward rapidly and the other […]

MS And ME – A Comparison

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  From ME Support.   What is Multiple Sclerosis? In common with M.E., we do not yet know the exact causes of Multiple Sclerosis (MS), though research suggests that a combination of genetic and environmental factors may play a role in its development. It is not directly inherited and genes are only part of the […]

I’m Disabled & I Rely On Single-Use Plastics – Please Don’t Judge Me

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      By Jo Moss in A Journey Through The Fog.   Reading through this month’s writing prompts, the one that sparked my interest the most was ‘Reusing’. When I think of ‘reusing’ I automatically turn to the need to reduce single-use plastic, and the detrimental effect plastic has on our oceans. It’s been […]

High Street Businesses Losing Millions By Shunning Disabled Consumers, New Research Reveals

Shopping

    From Purple. More than 13 million people in the UK – a fifth of the population – are disabled. A new poll of people who consider themselves to be disabled has found that more than half of respondents are struggling to make purchases of a product/service due to their disability. Disabled young people […]

The Unique Type Of Loneliness That Comes With Chronic Illness

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    By Britt Renee in The Mighty.   It seems like getting familiar with loneliness is inherent in living the chronic illness life. This loneliness doesn’t come from being literally and physically alone, though I’m learning there is a decent amount of “alone time” one has to learn to appreciate when being chronically ill. […]

MPs Call For Overdue Government Action To Ban Pavement Parking

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    By John Pring in Disability News Service.     A committee of MPs has called on the government to ban parking on pavements, after hearing how the practice was putting disabled people all over the country in stressful, inconvenient and even dangerous situations. The Commons transport committee says in a new report that pavement parking […]

Don’t Assume I Have A Carer Just Because I’m Disabled

Samantha Renke

  By Samantha Renke in The Metro.   Sometimes people ask me if I have a carer – a question which I find highly inappropriate, ableist and offensive. Still, let’s clear this up: I live alone in London, but I do have a young woman who works for me. I don’t call her a carer, […]

Drinking A Little Whiskey Might Actually Help Relieve Cold Symptoms

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    By Kate Bratskeir in The Huffington Post.   There’s no real cure for the common cold, but a little bit of whiskey or bourbon (that’s a little bit, we said) could offer some relief. The classic hot toddy, typically made of whiskey, honey, lemon juice and hot water, can subdue the injustices of your inevitable winter cold. The hot […]

Dietary Advice For Bedbound ME/CFS Patients: Protein

Protein

      By Dr Courtney Craig.   Dietary protein requirements for the average person are about 0.8g/per kg body weight/day per the U.S. and European standards. That equates to about 67-114g per day for men, and between 59-102g per day for women. Adequate dietary protein allows for: Repair of tissues and cellular proteins: a […]

How Social Media Helps Shield Me From The Social Isolation Of Being Sick

Social Media

By Amber Blackburn in The Mighty.   When it comes to social media, we often hear about the negative aspects of each platform –like the fact that social media is full of highlight reels rather than what’s actually real. We only get to see what influencers choose to show us, which is usually only the […]

York-Based GP Service Doc-OneStop Put Patients At ‘Risk Of Serious Harm’

Health Online

    By Ed Horner in York Press.   AN ONLINE GP service in York has had its registration suspended after it was found to be putting patients at “risk of serious harm”. The Care Quality Commission (CQC) rated the care provided by Doc-OneStop to be ‘inadequate’, following an inspection carried out in July 2019. […]

Hospital Food Review Announced By Government

Hospital Food

  From The Yorkshire Times.   The government will work with the NHS to improve food quality in hospitals and provide consistently safe, nutritious and tasty food. The review will consider: 1. How food can help aid faster recovery, taking into account the unique needs of vulnerable groups 2. Support from national bodies such as […]

DWP Admits It Has No Idea How Many Of Its Disability Champions Are Disabled People

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    By John Pring in Disability News Service.   The Department for Work and Pensions (DWP) has admitted that it has no idea how many of its 19 “disability champions” are disabled people. The disability sector champions – covering areas such as banking, gaming, arts and culture, media, music and retail – are supposed to drive […]

Vitamin B12 Deficiency: The Six Main Signs You’re Lacking B12 And Could Be Deficient

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      By JESSICA KNIBBS in The Express.   Vitamin B12 is the water-soluble vitamin that plays an essential role in the production of red blood cells. Lacking in the vitamin could cause a number of signs in the body. What are the six main symptoms that could mean you are vitamin B12 deficient?   Vitamin […]

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