Medical General

Scope Accused Of ‘Exploitation’ After Seeking Disabled Writer To Work For Free

Writing

    By John Pring in Disability News Service.   A disability charity has been accused of “exploitative” and “disgraceful” behaviour after asking disabled journalists to write an article for its website without payment. The charity Scope sent out a message on social media this week seeking a “disability blogger” who could write an article […]

Mayo Clinic Research Discovers A Molecular Switch For Repairing Central Nervous System Disorders

Research

  From The Mayo Clinic.   ROCHESTER, Minn. — A molecular switch has the ability to turn on a substance in animals that repairs neurological damage in disorders such as multiple sclerosis (MS), Mayo Clinic researchers discovered. The early research in animal models could advance an already approved Food and Drug Administration therapy and also could lead to […]

Stop Assuming I’m Not Disabled Just Because I Don’t “Look Disabled”

Disability Parking

  By Rachel Carrington in Rooted in Rights.   I park my car in a parking space reserved for those with disabilities. My door is barely open before I’m confronted by a woman who demands to see my handicap parking placard. Her mother is disabled, and she needs the space. I point her toward my […]

A Blue Badge And Invisible ME

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    Gone from being life and soul Health gone down a huge black hole Rarely getting out too far Too much pain is the bar A blue badge now has rescued me When strength allows, it sets me free It gets me to a needed door Which was out of my aching reach before […]

Trial By Error: Shaky Evidence For Signs Of Functional Neurological Disorders

David Tuller

  By David Tuller, DrPH One of my goals next year is to write more about so-called “medically unexplained symptoms,” also known as MUS. The term MUS might be useful as a descriptive name for the large category of phenomena that lack a proven pathophysiological pathway. But in the medical literature, and in the minds […]

Lewisham Commission Hopes To Put Disabled People At Heart Of Decision-Making

disability

  By John Pring in Disability News Service.   A local authority has become the second in London to set up an independent, user-led commission to investigate the barriers faced by disabled residents. Lewisham Disabled People’s Commission (LDPC) will be led by disabled people and will examine organisational, attitudinal and physical barriers faced by disabled […]

Older People Need To Stay Hydrated – Here’s How

Water

  By Cini Bhanu in The Conversation.    Dehydration is associated with a higher risk of ill health in older people, from having an infection, a fall or being admitted to hospital. But an appetite for food and drink can diminish as people age, so older people should drink regularly, even when they’re not thirsty. Older women […]

Tips On How To Survive The Festive Season

Christmas Tree

  By Jo Moss in A Journey Through The Fog.   Christmas can be a particularly hard time of year for people living with chronic ill-health. It can be a mental and physical strain, filled with potential pitfalls. I have to admit I’ve never been a Christmassy person. We (my family) didn’t celebrate Christmas when […]

Resting When Tired Isn’t Lazy – It’s Self Care

Resting

    By Jo Moss in A Journey Through The Fog.   Since my heart procedure 2 weeks ago, it feels like I’ve done nothing but sleep. I know I should be thankful my poor, exhausted body is finally letting me rest, but I’m struggling with the notion that I’m just “being lazy” and the […]

Sainsbury’s, I Don’t Need A Lanyard To Warn You About My Disability – You Need To Provide Better Training

Sainsburys

    By Liz Johnsin in The Independent.   It’s great that major brands are getting serious about inclusion, but initiatives should focus on taking away barriers, rather than forcing marginalised groups to mark out their difference. Sunflower season may be over but Sainsbury’s wants to see more in bloom this autumn following its latest announcement. On […]

International Day of People with Disabilities: Hannah Dines – Why I’m sick of ‘inspiration porn’

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    By Hannah Dines in BBC Sport.   It happens time and time again in Paralympic sport that the story is chosen for us. Our disability is the negative comparison that makes our positive sporting performance legitimate. We cannot have one without the other. The irony here is that for many Paralympians, their disability […]

General election 2019: What’s Pledged For Disability And Mental Health ?

Parliament

      By Damon Rose & Beth Rose in BBC News.   With 13 million disabled people in the country, plus their friends and family, the political parties have a huge community to court. Universal credit is still making headlines, while the main parties are divided on what to do with the social care […]

Disabled People Like Me Are Being Forced To Battle Daily For Our Most Basic Needs

Disability

  By Susan McKinstery in Huffpost.   I was born in 1981, the year declared “International Year of Persons with Disabilities” by the UN. It heralded the beginning of the “Decade for Persons with Disabilities”, which saw the beginning of what would go on to become landmark equalities legislation and political policy making. The intention for […]

York Disability Forum

disability

  Today I’ll be attending a meeting to see if creating a York Disability Forum will be helpful in giving us more of a voice in the area.  I’ll report back on here as to how it goes. If you’re in York and want to let me know of any good, bad or indifferent stories on […]

Ask About My Disability If You’re Curious, But Don’t Patronise Me

Samantha Renke

    By Samantha Renke in the Metro.   As a disabled woman, I’ve sadly become somewhat immune to overt forms of aggression and discrimination. I almost expect the lift to be out of service whilst shopping. I also acknowledge that my work prospects are diminished in comparison to my non-disabled peers, and that it’s highly […]

‘They Think Disability Is Almost Worse Than Being Dead’

Disability Dice

By Kate Scotter in BBC News.   “I won’t let you make me feel bad for the things I cannot do, I am tired of being talked over by people like you.” To watch Tilly Moses perform her folk music on stage, there are no visual clues she’s disabled – although the message is there […]

Antibiotics: Even Low Use In Children Can Have A Negative Impact On Health – New Research

pills-main

  By Oliver van Hecke in The Conversation.   GPs in the UK carry out over 300m patient consultations every year and at least a quarter of these deal with children. Almost two-thirds of such appointments are for coughs, sore throats, or earaches – illnesses which young children commonly get. Doctors and nurses group these types of illnesses […]

Link Between Inflammation And Mental Sluggishness Shown In New Study

Brain Fog

From Science Daily.   Scientists at the University of Birmingham in collaboration with the University of Amsterdam have uncovered a possible explanation for the mental sluggishness that often accompanies illness. An estimated 12M UK citizens have a chronic medical condition, and many of them report severe mental fatigue that they characterize as ‘sluggishness’ or ‘brain […]

5 Things Councils Can Do To Make Areas More Accessible

accessibility

    By Heather Lacey in AccessAble.   As the world becomes more and more connected, we are increasingly fortunate to have the potential to explore more of what the UK’s towns and cities have to offer. Getting out and about to enjoy the activities and attractions that our Towns and Cities have can be […]

​GP Home Visits Under Threat

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    From Action For ME.   Action for M.E. has raised serious concerns with every Local Medical Committee (LMC) following the announcement of a motion at their conference by Kent LMC to stop home visits by GPs. LMCs are the independent bodies who work with the British Medical Association to shape policy. If successful, […]

My Typical Day As A Chronic Fatigue Blogger

Blog

  From the Mummying And Me Blog.   Want to know what a day in the life of a chronic fatigue blogger looks like? Here I will try to sum up what my days look like during the week. Why did I choose to write this article? When I’ve spoken to friends and family about […]

Challenging Insensitive Comments And “Who Has It Worse” Competitions

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  By Jo Moss in A Journey Through The Fog.   “Life is not a competition. Life is about helping and inspiring others so we can each reach our potential.” Does anyone else feel like they have to bite their tongue a lot? Do you hide a lot of what you are feeling because confrontations […]

Getting At The Hurt In Chronic Pain

Chronic Pain

    By Cort Johnson in Health Rising.   Pain – A Surprisingly Complex Experience Pain seems pretty elementary – it hurts! When it really hurts, you want to throw yourself out of your skin. It’s actually not so simple. Pain is often described as a complex, “biopsychosocial phenomenon“. The International Association for the Study […]

I Shouldn’t Have To Legitimize My Pain For Others To Believe Me

chronic

  By Claire Brumback in The Mighty.   “Why doesn’t anyone believe me?” I ask myself this question too often. I have chronic pain and suffer with it every day, but no one believes me. On days I can’t get out of bed, or days I go to the ER because the pain is unbearable, […]

After I Revealed Whitehall Plans To Deceive The Public On Universal Credit, An Investigation Began. Its Conclusions Are Shocking

Universal Credit

By Aditya Chakrabortty in The Guardian.   Early this summer, a national newspaper published a string of curious articles. Under the logo Universal Credit Uncovered, the features promised readers of the Metro the truth about this most notorious of all benefits. The series began with a giant advert wrapped around the cover of the paper, coupled […]

Ticketmaster Makes ‘Huge Step Forward’ For Disabled Music Fans

Music

  By Mark Savage in BBC News.   For years, deaf and disabled music fans have faced huge barriers when it comes to booking concert tickets. Whether it’s the requirement to call premium rate help lines, or having to provide evidence of their disabilities, the experience has put many fans off. Now Ticketmaster is introducing […]

Fake Drugs That Could Kill Are On The Rise In Western Countries – Here’s Why

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    By Susanne Lundin and Rui Liu in The Conversation.   Fake medicines – illegal and substandard pharmaceuticals – have until now largely been a problem in low and middle-income countries. Ranging from lifestyle products to lifesaving medicines, such products are now also on the rise in the Western world. The spread is concerning, […]

Activists Combine To Offer PIP Assessment Recording Kits

benefits

    By John Pring in Disability News Service.   Disabled activists have responded to the government’s continuing failure to deal with the dishonesty and inaccuracy of the disability benefit assessment process by launching schemes to ensure that claimants can record their own assessments. Grassroots groups of disabled activists launched two separate campaigns this week […]

‘I’ve Got Relatives With ME/CFS’ – Dr Richard Medlicott’s Reason Behind Fundraising Ride

Funding

    By: Natalie Akoorie in New Zealand Herald.   Richard Medlicott is not your usual GP. The Wellington doctor, and former medical director of the New Zealand College of General Practitioners, is raising money for a chronic illness that many in the medical profession know little about. Medlicott has set up a Givealittle page for his […]

CPS Concern Over Huge Drop In Police Disability Hate Crime Cases

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    By John Pring in Disability News Service. The Crown Prosecution Service has joined a leading disabled campaigner in raising concerns about a huge fall in the number of disability hate crime cases passed by police forces to prosecutors. The Crown Prosecution Service (CPS) annual hate crime report for 2018-19 revealed this week that […]

Essentials For Getting Out And About As A Wheelchair User

Wheelchair

    By Soph in Mummying and M.E.   Out on a shopping trip recently with a good friend, she suggested I put together a list of the things I’ve learnt to be essential when getting out and about. You see I’ve always been fiercely independent, not thinking twice about the ability to leave the […]

General Practice Is Disintegrating Due To Its Serial Reforms

GP

        By David Zigmond in BMJ Opinion. Why is it so difficult to get continuity of care, or even an appointment, with your GP? And why is the GP workforce now so unhappy and depleted? David Zigmond offers some explanations beyond those of increasing demands and how we finance them. Recently both the BBC and several […]

How To Tell If Your Exhaustion Could Actually Be A Symptom Of Chronic Fatigue Syndrome

chronic

      By Hattie Gladwell in the Metro. Many of us experience tiredness – but when are your symptoms actually a sign of Chronic Fatigue Syndrome? It’s normal to get tired from daily activities, or because you’re not getting enough sleep. Having a stressful day, working too many hours or having a strenuous workout […]

Calls For Fresh Law To Tackle Pavement Parking

The Press

  By Stuart Minting in The Press.   FRESH laws are needed to tackle the problem of motorists parking on pavements – according to a council meeting. North Yorkshire County councillors were told residents including children, wheelchair users and pedestrians face significant issues created by inconsiderately parked cars. And that the problem was present in […]

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