Medical General

Department Of Health And Social Care – Must Do Better

By Sally Callow in Despite being extra unwell with Covid19/Long Covid myself, I have been beavering away in the background (as much as my weary M.E-slammed body would allow) to try and make ‘the powers that be’ as aware as possible that Covid19 had the potential to cause chronic illness in many people during […]

Chronic Fatigue Syndrome Classified Under Neurological Disorder In SNOMED CT International Edition

from DX Revision Watch. SNOMED CT is a standardized electronic terminology system for recording and sharing symptoms, diagnoses, clinical findings, procedures etc. in primary and secondary care and across other health care settings. Since April 2018, SNOMED CT UK Edition has been the mandatory terminology system for use in NHS primary care, replacing the Read […]

Can Long-Covid Be Cured With The Mind: Expert Patient Or Nutty Professor ?

By Dr Keith Geraghty on David F Marks site. I am a research fellow working from the University of Manchester Centre for Primary Care. A major focus of my work is on medically unexplained symptoms and illness. I promote evidence-based medicine and psychology, so like a detective, I spend a lot of my time discerning […]

Vitamin D: S Pseudo-Vitamin For A Pseudo-Disease

By Tim Spector in The Conversation. We are still in love with vitamins a century after they were discovered, with half the US and UK population taking a supplement. Vitamin D – the sunshine vitamin – is the favourite and is believed to have the most proven benefits. Governments, including the UK government, have said that the […]

How To Avoid Sun Damage After Months In Lockdown

By Sarah Allinson in The Conversation. After a winter of lockdown and with coronavirus restrictions beginning to lift across the UK, many will be hoping for good weather this summer. Restrictions on foreign travel have meant that more people plan to stay within the UK for their summer holidays than ever before. This shift, along with our […]

Ministers Pledge To Publish Their First ‘Robust’ Rail Access Strategy

By John Pring in Disability News Service. The government has promised to publish its first “robust” national strategy to improve the accessibility of the rail network. The pledge came in its new white paper, which aims to “transform the railways in Great Britain”. There was little or no publicity or further detail around the pledge, […]

The Patient Voice: A Biased Or Valuable Source Of Information ?

By caitrionacox in BMJ Blogs. Casper G. Schoemaker reflects upon a recent interaction which caused him to consider how we should think about the value of patient accounts of illness. The education department of our academic hospital is proud to be ‘patient-centered’. Consequently, a patient was invited as the first keynote speaker at a retreat for teachers […]

Tory Silence After Four Peers Aim Disablist ‘Barrage Of Attack’ On Disabled Colleagues

By John Pring in Disability News Service. The Conservative party has refused to act after four of its peers delivered an “extremely alarming” and disablist “barrage of attack” on disabled members of the House of Lords. The four Tory peers were all arguing that the Lords should quickly return to “normal” and end the adjustments […]

Magnesium – The Underestimated Mineral

From Cytoplan Blog. Magnesium1 is one of seven macro minerals that needs to be consumed in levels of over 100mg a day. It plays an important role in over 300 enzyme reactions in the body. According to the Human Genome Project more than 3500 proteins have binding sites for magnesium, so it is essential for numerous […]

Cycling In York City Centre

From City Of York Council. City of York Council are hosting an online workshop with cyclists and disabled people who use cycles as a mobility aid in York city centre. About this event Over the past year we have been talking to groups and individuals who have been impacted by the footstreets policy in York […]

DWP Lied About Duty To Keep Benefit Claimants Safe, Document Suggests

By John Pring in Disability News. The Department for Work and Pensions (DWP) lied when it claimed that it had no “duty of care” to protect disabled benefit claimants, new evidence suggests. Work and pensions secretary Therese Coffey has repeatedly told MPs that her department does not have a legal duty to “safeguard” its claimants, […]

The Guilt Of M.E.

The Guilt of M.E. When the beast descends we know the scoreStrength and hope go through the floorWe’ve all been on this road beforeAnother day of guilt Want to take my part in lifeWant to spend some time with wifeWant to cause no further strifeAnother day of guilt Said I’d try and meet with friendsMissed […]

Parks And Green Spaces Helped Us Get Through Lockdown – But Not Everyone Has Equal Access

By Hannah Burnett, Jonathan Olsen and Rich Mitchell in The Conversation. What we could all see was solace: it was clear that nature at its loveliest and most inspiring, in springtime’s wondrous transformations, could offer people comfort at a moment of tragedy and great stress. Michael McCarthy, nature writer For many, the COVID-19 pandemic has […]

Trial By Error: Journal Editorial Calls For Caution In Exercise-Based Rehab Programs For Long COVID

By David Tuller, DrPH The Journal of Orthopaedic & Sports Physical Therapy recently published an editorial called  “Humility and Acceptance: Working Within Our Limits With Long COVID and Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome.” The editorial emerged from a collaboration between rehabilitation specialists and patients, mostly from Canada. It confronts the conundrum of whether those experiencing what is called […]

Watchdog Warns Social Care Is At ‘Crisis Point’ And Calls For Legal Right To Independent Living

By John Pring in Disability News Service. The equality and human rights watchdog has warned that social care is at “crisis point” and has called on the government to introduce a legal right to independent living, just 24 hours after Boris Johnson failed again to honour his promise to fix the system. The Equality and […]

Continuing Pressure On NHS To Vaccinate People With ME In Light Of Survey Results

From #MEAction. As reported last week, the preliminary findings from the joint survey between #MEAction and Action for M.E demonstrated that most respondents with ME experienced an exacerbation of their underlying disease and  prolonged illness from Covid-19 itself. The survey is still live for people who with ME who have had Covid-19 to take part. To read the rest […]

People With Chronic Fatigue Syndrome Are Less Likely To Reach Out For Support

ByJulia Métraux in Very Well Health. People with Chronic Fatigue Syndrome Are Less Likely to Reach Out For Support Key Takeaways A study published in April suggests that people with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) are less likely to reach out for social support than others with chronic health conditions. Treatment for ME/CFS often involves […]

Pavement Cafés And Street Furniture: Not For Us

The City of York Council Licensing and Regulatory Committee met on 26th April. On the agenda (item 6) was a report about businesses reopening with pavement cafés which stated there were no equality implications surrounding this. We strongly disagree. We took our opportunity to speak at the meeting and sent the statement below to the members of […]

Trial By Error: Do the “Vast Majority” of Lightning Process Participants Achieve “Lasting Change”?

By David Tuller, DrPH Coda Story is an excellent news organization focused on international stories related to the misuse of science and technology, among other topics. Today, it published a piece of mine about the training program called the Lightning Process. Sites devoted to the Lightning Process are full of tales of recovery from prolonged illness. I included one such […]

The Challenges Of Living With An Invisible Illness

By Angie Collins-Burke, RN, and Suzanne Cronkwright KEY POINTS Those with an invisible illness or disability often face continual judgment from others. Symptoms such as fatigue and brain fog can lead to feelings of anger, isolation, and helplessness. Coping skills include lowering your expectations, picking your battles, and practicing self-compassion. I didn’t give much thought […]

Let’s Drop ‘Chronic Fatigue Syndrome’

  By Ev Francis in West England Bylines. viral and I felt like Piers Morgan – difference being I wasn’t spouting tedious commentary on Prince Harry again. Someone pass him someone new to pick on. It came following the BBC Coronavirus special that discussed Long Covid and the parallels I’ve alluded to for the last 12 […]

‘Concerning Silence’ From Government Over Disability Ambassador Roles

By John Pring in Disability News Service. The government has failed to explain why it has made no contact for more than two months with a string of disabled experts who applied for voluntary positions as its “disability and access ambassadors”. The Disability Unit announced in early January that it was seeking 14 “senior business people” to […]

Could High-Dose Thiamine (B-1) Help With ME/CFS, Fibromyalgia, And The Neurological Complications Of Ehlers-Danlos Syndrome ?

By Jeffrey Lubell in Health Rising.    Longtime readers of the Health Rising blog may remember an article that Cort wrote in 2013 about the promising results of a small study that found marked reductions in fatigue among three individuals with Fibromyalgia who took high doses of thiamine (Vitamin B-1). In the intervening years, several important studies on high-dose thiamine have been published, […]

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