Medical General

Guest Blog: Outdoor Seating Plans For York City Centre

  From York Disability Rights Forum.   We invited Make it York and City of York Council to tell us about the outside seating that’s being introduced as part of the plans to reopen the city. Here you can find out about the ways that disabled access has been incorporated into those plans. As well […]

What Is Hypopituitarism And Could It Be An Alternate Explanation For ME/CFS ?

  By Joanne Lane with comment from Dr Charles Shepherd in The ME Association.   I don’t have ME, but I have something important to say that I hope may help people who have. Twelve years ago, our 31-year-old son Christopher killed himself. We were devastated and desperate to find reasons. We wondered about the serious head injury he’d had when he was seven and we found that […]

How To Hide Your Disabled People: A Lesson From City Of York Council

By Elki in York Disability Rights Forum. Elki lives in York and relies on using her Blue Badge to be able to park near enough to the places she needs and wants to go. In this Member’s Voice post, Elki writes about what she sees as the dangers of reducing disability visibility in York. Disability […]

All Aboard The Long COVID Gravy Train

  By Brian Hughes in The Science Bit.   Swiss Re Group, “one of the world’s leading providers of reinsurance and insurance,” recently hosted a virtual Expert Forum on “secondary” impacts of COVID. As would be expected, the insurance industry is especially interested in the financial implications of this new disease. The programme covered many of the biophysical […]

COVID-19 ‘Long-Haul’ Symptoms Overlap With ME/CFS

  By Miriam E. Tucker in Medscape.   People experiencing long-term symptoms following acute COVID-19 infection are increasingly meeting criteria for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), a phenomenon that highlights the need for unified research and clinical approaches, speakers said at a press briefing Thursday held by the advocacy group MEAction. “Post-COVID lingering illness was predictable. Similar lingering […]

We Already Know Enough To Avoid Making The Same Mistakes Again With Long COVID

  By Todd E. Davenport , Staci R. Stevens , Jared Stevens , Christopher R. Snell  and J. Mark Van Ness in JOSPT.   Based on experience with past coronaviruses, the emerging challenge of prolonged symptoms after infection with the novel coronavirus 2019 (SARS-CoV-2) is unsurprising. Data from a large international web-based patient survey indicate substantial symptom overlap between long COVID and myalgic encephalomyelitis/chronic fatigue […]

Dissecting The Nature Of Post-Exertional Malaise

By Megan Hartle, Lucinda Bateman and Suzanne D. Vernon in Taylor & Francis Online.    ABSTRACT Background Post-exertional malaise (PEM) is a defining characteristic of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) but there is insufficient research dissecting the nature of PEM from the patients’ perspective. Methods A PEM questionnaire administered to 150 ME/CFS patients. It included open-ended questions about triggers, experiences, […]

How COVID Long-Haulers Might Renew The Focus On Chronic Fatigue Syndrome

  By Jad Sleiman in WHYY. said it was no surprise that some subset of those infected with the new coronavirus just stayed sick because that kind of thing has always happened. “So if you look at all the different viruses that have occurred … from the Spanish flu (of) 1918 to Ebola, …  to SIRS, […]

The Never-Ending Challenge Of Dealing With Post-Exertional Malaise (PEM)

From the NotcJust Tired Blog.   After a good day, or a spell of feeling pretty ok, it’s always a kick in the teeth when Post-Exertional Malaise (PEM) catches up with you. As I’m sure those of you living with ME/CFS, will be all too familiar with. For those not familiar, PEM is the worsening […]

Why Terms Like ‘Fully Accessible’ Don’t Help Disabled People

  By Carrie-Ann Lightly. Visiting a new place can be anxiety-inducing for even the most confident disabled person. A holiday, a weekend trip, a day out – even popping to the local shops. Why would you be worried about nipping out for a loaf of bread, I hear you ask? Because, dear reader, the language […]

Scotland Could Be Set For ‘Ground-Breaking’ Move On UN Convention

  By John Pring in Disability News Service.   Disabled people in Scotland could be set for “ground-breaking” improvements to the “protection, progression, and promotion” of their human rights, after their government pledged to incorporate the UN disability convention into Scottish law.  The promise came as the Scottish government accepted the 30 recommendations made in a […]

Trial By Error: Another Excellent Read On Long Covid, ME/CFS And Medically Unexplained Symptoms

By David Tuller, DrPH in Virology Blog. In a post earlier this week, I noted some differences in the tenor of the debate over Long Covid in the US and UK. Yesterday, another excellent and in-depth piece on the issues appeared on the domestic front, this time in VICE. The author, Alan Levinovitz, is associate professor of religious studies at […]

Long Covid Isn’t As Unique As We Thought – (Mentions ME)

By Julia Belluz in Vox.   Dr. Craig Spencer, an emergency room doctor in New York City, was no stranger to dangerous viruses when a brush with one landed him in Bellevue Hospital for 19 days. But it was only after he was discharged, and declared virus-free, that the really bizarre symptoms set in. Back at home, he noticed he […]

Our Treatment Of The Vulnerable – Challenges For The Family Justice System

  from Valerie Eliot Smith. This is the text of a paper by Sir James Munby (lately President of the Family Division) delivered at the Royal Holloway University of London Symposium : ‘Inequality and Rights – Contemporary Challenges in the Child Protection and Family Justice Systems before and during the Pandemic’, which was held remotely […]

Study Suggests Similar Processes Are Driving Long COVID And ME/CFS

  By Cort Johnson in Health Rising. Eric Schadt, the study’s senior author, is not your average researcher, and Phillip Comella, the lead author, has personal experience with mysterious diseases and difficult diagnoses. A biomathematician and bioengineer, Schadt has been at the forefront of biocomputational technologies for years. Schadt’s goal has always been to get […]

Long Covid: Warning Over Combining ME Treatment

By Claire Smyth in The Mirror.   Charities that support people with ME have warned against combining new specialist treatment for the condition with proposed services for long Covid. The Health and Social Care Board is developing plans to help those still experiencing long-term health issues months after being unwell with Covid. Some of the […]

Fog And M.E.

Fog And M.E. In a car when fog descends Lights go on to see the bends Other dangers illuminated A flick of a switch, clarity created An M.E. fog is not the same It wraps around our words, our brain There is no switch, no helpful light Just confusion, loneliness and fright An M.E. symptom […]

Treatment Harms To Patients With ME/CFS

    By David F Marks. Despite evidence of physiological and cellular abnormalities in myalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS), the dominant therapeutic approach has been cognitive behaviour therapy (CBT) and graded exercise therapy (GET).  Patients report  distress and dissatisfaction following healthcare encounters based on GET and CBT.  A significant body of research suggests that CBT and GET […]

Disabled People And Carer’s Experiences Of Accessing The Coronavirus Vaccine

From Disability Horizons. The coronavirus vaccine programme has been in action across the UK since December 2020 and more than 10 million people have received their first dose so far. With the first four priority groups being given the vaccine, we ask disabled people, those with health conditions and carer’s thoughts and experiences of accessing […]

A Brief History Of Chocolate – And Some Of Its Surprising Health Benefits

By Liam Corr i The Conversation.   Chocolate in all its forms is something that I, along with many others like to indulge in on an almost daily basis. But chocolate as it’s enjoyed today is quite different from when it first arrived in Europe from South America around the 16th century. To the indigenous Aztec people, […]

Vulnerable Say They’ve Been ‘Forgotten’ As Covid Vaccine Goes To Young And Healthy

By John Siddle in The Mirror. Serious health condition sufferers say they have been overlooked in the jab rollout after the Government chooses to vaccinate people by age once priority groups are done. Vulnerable Brits say they have been ‘forgotten’ in the vaccines rollout as young and healthy people get jabs. Those with serious health […]

All In Your Head

From Undiagnosis. I have been dropping various hints over the last few months about a non-fiction project I have been working on for the last two and a half years. It’s called All In Your Head, and you can find out more about it on the website here. In brief, it’s the story of what happens when […]

Why My Wheelchair Is A Part Of My Body, And What This Means For You

  By Ginny Butcher in Conscious Being. When I was young I would say that my relationship with my wheelchair was akin to that of a turtle and her shell. I stand by this analogy. To me, my wheelchair is most literally a part of my body. It enables me, supports me, and if you […]

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