By Cort Johnson in Health Rising. This is the first in a series of blogs that report on the recent EMERGE conference in Australia. The different conference format – which allowed for long presentations – allowed the presenters to dig more deeply into their topics than usual. Longtime Australian metabolomics researcher Neil McGregor took […]
ME Conferences & Seminars
Did A Pivotal Moment For ME/CFS Just Happen ?
By Cort Johnson in Health Rising. The National Institutes of Health (NIH), with its pitiful funding, has been a thorn in the ME/CFS community’s side for decades. For decades advocates have thrown everything they could – heartbreaking stories, demonstrations, insults – at the NIH in vain. Even the much acclaimed 2015 […]
Emerging Insights #1: McGregor’s Grand Conception Of ME/CFS
By Cort Johnson in Health Rising. This is the first in a series of blogs that report on the recent EMERGE conference in Australia. The different conference format – which allowed for long presentations – allowed the presenters to dig more deeply into their topics than usual. Longtime Australian metabolomics researcher Neil McGregor […]
International Expert On Myalgic Encephalomyelitis Delivering Talk On Misunderstood Condition
By Briain Kelly in Galway Daily. International expert on Myalgic Encephalomyelitis Dr Ros Vallings is giving a talk in Galway on the often misunderstood condition next month. Around 14,000 people in Ireland are thought to suffer from Myalgic Encephalomyelitis (ME), now often diagnosed under the name Chronic Fatigue Syndrome (CFS). Symptoms include […]
IIMEC14 – The Anne Örtegren Memorial Lecture 2019
From Invest in ME Research. IIMEC14 is the fourteenth annual international ME conference that the charity has organised in London. For many of those years the charity often communicated with a patient/advocate in Sweden – someone we are proud to have called our friend. Anne Örtegren passed away in January 2018. […]
ME News In Brief – March 2019
From Science For ME. News – events this coming week ME/CFS International Research Symposium 12th – 15th March, Australia. Many well known ME researchers will be speaking. Emerge has announced that most of the program will be available to watch live and will be available afterwards. No pre-registration is required to watch online. […]
Amy Carlson – An Ally To The ME Community
By Adriane Tillman in #MEAction. Allies are critical to the success of any movement and even more so in the case of people with myalgic encephalomyelitis (ME). So many people with ME are bedridden or housebound and unable to participate in some advocacy and activist actions. While we at #MEAction work hard to […]
Chronic Fatigue Syndrome: Medical Treatments: Written question – 218214
Question by Frank Field MP. Chronic Fatigue Syndrome: Medical Treatments. 218214 To ask the Secretary of State for Health and Social Care, what steps his Department is taking in response to the resolution of the House of 24 January 2019 on appropriate ME treatment. Answer by Steve Brine: The Government is investing over £1.7 […]
Huge ME/CFS Event Held In Boston
By Rivka Solomon in ProHealth. Every now and then something happens in our global ME (Myalgic Encephalomyelitis) community that is both noteworthy and hopeful. Something that makes us believe things may actually change for the better. That’s what happened on January 15, 2019, in Boston, Massachusetts, a city known as a medical […]
Parliamentary Debate on ME
Am I the only one left a bit disappointed at the end of the ME debate in Parliament today ? Many impassioned speeches, which by their nature took a lot of time as they repeated much information given by previous speakers, but all well intentioned and good to see them representing their constituents. I then […]
ME Debate In Parliament – Thursday 24th Of January 2019
Stuart Murdoch’s Open Letter Ahead Of The ME Debate
Trial By Error: The Psychosomatic Conference’s Pathetic Response
By David Tuller. By David Tuller, DrPH After I posted yesterday’s blog about Per Fink’s upcoming appearance at the fourth annual Columbia Psychosomatic Conference being held this weekend, I received the following e-mail from Columbia’s Alla Landa. She is an assistant professor of “clinical psychology in psychiatry”–whatever that means–and director of the conference. I found […]
Invest In ME Resarch International Conference Week London 2019
Invest in ME Research has announced dates for events taking place in London for their International Conference Week in May 2019 on biomedical research into ME (Myalgic Encephalomyelitis). The second Thinking the Future conference for young or early career researchers will be on 28th May 2019. The ninth Biomedical Research into ME Colloquium (BRMEC9) […]
Open Medicine Foundation Sponsors Second Annual Community Symposium On The Molecular Basis Of ME/CFS At Stanford University
From Market Insider. LOS ANGELES, Sept. 20, 2018 /PRNewswire/ — Open Medicine Foundation (OMF), the premier nonprofit organization investing in research to cure myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), sponsors the Second Annual Community Symposium on the Molecular Basis of ME/CFS on September 29, 2018, at Stanford University. This event is expected to draw more than 300 scientists, […]
Building Allies For M.E. At Women’s Rights Conference
By By Adriane Tillman in #ME Action. The women’s rights community is beginning to pay attention to Myalgic Encephalomyelitis (ME) as one of many diseases in which sexism has played a role in the disbelief, misdiagnosing and mistreatment of patients. (ME affects men, women and children but 75 percent are women.) The National Organization for Women (NOW) held […]
Health Rising: Montreal ME/CFS I: Metabolism The Main Matter? Exercise Issues Expand & A Bad Brain Motor ?
By Cort Johnson in Open Medicine Foundation. I thought I was in Paris, so much French was being spoken. The conversations in the cafes, on the streets, in the subways – everywhere – were in French. It turns out that with its 4,000,000 plus residents, Montreal is the second largest French speaking city […]
People With M.E. Must Be Heard, Says NICE Committee
From Action For ME News. Action for M.E. joined stakeholders from patient groups, charities, and professional bodies to take part in Friday’s workshop on the scope of the National Institute of Health and Care Excellence (NICE) guideline on M.E/CFS. The event was part of NICE’s ongoing process to revise its M.E./CFS guideline, with a focus […]
Invest In ME Research Biomedical Research Into ME (BRMEC) Colloquiums
The Invest in ME Research Biomedical Research into ME (BRMEC) Colloquiums are research meetings organised by the charity to encourage biomedical research into ME and international collaboration amongst researchers. This has been one of the main objectives of the charity. Invest in ME Research began arranging biomedical research conferences in our first year and have continued them […]
A Consensus-Driven ME/CFS Clinician Coalition Takes Shape
By Stephanie Griffin. On March 2-3, 2018, the Bateman Horne Center hosted an exciting summit of leading U.S. ME/CFS clinicians who came together to share their pearls of wisdom on diagnosis and treatment in order to improve ME/CFS clinical care and refine more precise research targets. The meeting was remarkable for the ambitious nature […]
Trial By Error: The Australian Situation, And Professor Crawley’s New Position
By David Tuller, DrPH. So I arrived in Melbourne on Wednesday afternoon. I’ll be in Australia for several weeks for meetings, interviews and general information-gathering. I’ll post occasionally, but some of the information might be for future blogs and stories. I’ve conducted a Q-and-A about the general situation in the country with Penelope […]
Trial By Error: The Dutch Review; My Trip; Bristol’s Silence
By David Tuller, DrPH. And now some potentially good news from the Netherlands. Two years ago, the Dutch parliament asked the Health Council—an independent scientific advisory body—to review the state of evidence related to the illness generally called chronic fatigue syndrome in the Netherlands. That review was to include the evidence for rehabilitative […]
“Doctors, Please Learn How To Correctly Diagnose Me…” Presentation By Joan Byrne
This is Joan Byrne’s presentation given during the “Call For Change” Awareness and Educational event at Leinster House, Dublin on the 24th January 2018. What is Myalgic Encephalomyelitis? M.E. is an acquired complex neurological disorder affecting multiple systems of the body. Many cases are preceded by a viral infection with onset being usually rapid (acute). Affected individuals do […]