Raising Funds For ME Research

UK Charity Pledges £500,000 For Research Into ME In Norwich Research Park

Research Study

    From The Quadram Institute.   UK Charity Invest in ME Research is pledging £500,000 for continued research into the disease myalgic encephalomyelitis (ME or ME/CFS) in Norwich Research Park, UK (NRP). This major investment builds on the foundations already made for a UK/European Centre of Excellence for ME research hub in Norwich Research Park. The […]

What Does ‘Listen To Your Body’ Mean When You Have M.E ?

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  From ME Action.   So I’ve been doing this fundraiser, where I try to get 1000 body weight reps done in half an hour every day to raise money for #meaction. It’s been a test for me in listening to my body, and knowing when to slow down, rest, or even skip a day. And it […]

Advocating For ME-ICC In Washington, DC

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    From ME Advocacy.   It has been 50 years since the World Health Organization classified myalgic encephalomyelitis (ME) as a neurological disease in 1969. Thirty plus years of misinformation about the harsh reality ME patients face has led to a crisis of grossly inadequate patient care. For decades patients have dealt with doctors […]

The York ME Community – York Inter Company Fantasy Football League For The York ME TGA Shield – Update

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  The York ME Community runs an Inter-Company Fantasy Football League sponsored by TGA Mobility. This is to help raise awareness of the illness that affects around 250,000 people in the UK, and 800 in the York area alone. Of those around York, 200 are likely to be severe, meaning house or bed bound.   […]

Did A Pivotal Moment For ME/CFS Just Happen ?

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      By Cort Johnson in Health Rising.   The National Institutes of Health (NIH), with its pitiful funding, has been a thorn in the ME/CFS community’s side for decades. For decades advocates have thrown everything they could – heartbreaking stories, demonstrations, insults – at the NIH in vain.  Even the much acclaimed 2015 […]

Government Of Canada Invests $1.4M In Biomedical Research To Improve The Quality Of Life Of People Living With Myalgic Encephalomyelitis

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    From: Canadian Institutes of Health Research MONTRÉAL, August 22, 2019 – It is estimated that more than 580,000 Canadians live with myalgic encephalomyelitis (ME), formerly known as chronic fatigue syndrome, or ME/CFS. This poorly understood, multi-system disease is debilitating and can strike individuals of all backgrounds and at any age. Patients experience symptoms including unrelenting exhaustion […]

Phoebe & Georgina’s Sponsored Kayak !

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    By Georgina & Phoebe in Let’s Do It for Myalgic Encephalomyelitis.   Even a live Second World War grenade  couldn’t stop us! On Sunday the 28th of July we began our quest to conquer a 25 mile kayak to raise money for Invest In ME Research. This journey consisted of a very early start, […]

Invest In ME Research Newsletter July 2019

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Invest in ME Research is an independent UK charity campaigning for and facilitating biomedical research into myalgic encephalomyelitis (ME). More details of the charity are here.   Clinical trial at Quadram At the IIMEC14 international conference in London in May Professor Simon Carding from Quadram Institute announced the intention to conduct a clinical trial for ME in Norwich […]

The York ME Community – York Inter Company Fantasy Football League For The York ME TGA Shield

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The York ME Community runs an Inter-Company Fantasy Football League sponsored by TGA Mobility. This is to help raise awareness of the illness that affects around 250,000 people in the UK, and 800 in the York area alone. Of those around York, 200 are likely to be severe, meaning house or bed bound. On the […]

He Pioneered Technology That Fueled The Human Genome Project. Now His Greatest Challenge Is Curing His Own Son

Ron Davis

    By Ryan Prior CNN.   (CNN)Multiple times a day, every day, Ron Davis sits with his head bowed, waiting outside his son’s bedroom for a subtle signal that it’s all right to come in. He opens the door to the space where Whitney has spent most of the last decade. Whitney lies motionless […]

Adelaide Oval Lights Up In Blue For ME Awareness Week

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    By Jac Creedon in ME Australia.    Since 2015, Adelaide Oval in South Australia has been lit up in blue in recognition of ME Awareness. This year, it will be illuminated on Thursday May 9. It has been organised every year by Jac Creedon, who has had ME for 28 years. Jac lives […]

IIMEC14 – The Anne Örtegren Memorial Lecture 2019

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    From Invest in ME Research.   IIMEC14 is the fourteenth annual international ME conference that the charity has organised in London. For many of those years the charity often communicated with a patient/advocate in Sweden – someone we are proud to have called our friend.   Anne Örtegren passed away in January 2018. […]

Mitochondrial Complex Activity

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  From ME Research UK. Cara Tomas and colleagues from Newcastle University have recently published a report on mitochondrial function in ME/CFS, and this study is related to research on muscle fatigue they are currently pursuing with support from ME Research UK. The mitochondria are considered the power plants of the body, generating the energy needed to […]

Mike’s EU Marathons- Cyprus (17.03.19)

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  By Mike Harley. After 6 months since Sofia, I arrived in Cyprus for number 20 after 60 training runs and 400 miles of winter training to kick off year 5 and the first of six marathons in 2019.  Heading into the race I’d run my fastest ever Half Marathon (1 hr 40 in Gloucester) and raised […]

Who Reviews ME/CFS Applications For NIH ?

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    By Jennie Spotila in Occupy  M.E.   There is no question that NIH’s funding of ME/CFS research has been minuscule relative to the size of the public health crisis. Review of ME/CFS grant applications at NIH has drawn scrutiny from the public as one contributing factor. The public perception is that the grant review panelists […]

Mike Harley’s Marathons For ME

Mike Harley

  Good luck to Mike Harley who is running 28 Marathons across Europe to raise Awareness and funds for Invest In ME Research.   On Sunday the 17th of March he will be running the Cyprus Marathon.   As always, a huge thanks from everyone in The York ME Community  Mike ! See the tab […]

Chronic Fatigue Syndrome: Medical Treatments: Written question – 218214

Parliament

  Question by Frank Field MP. Chronic Fatigue Syndrome: Medical Treatments. 218214 To ask the Secretary of State for Health and Social Care, what steps his Department is taking in response to the resolution of the House of 24 January 2019 on appropriate ME treatment. Answer by Steve Brine: The Government is investing over £1.7 […]

A Date For Your Diary – York Inset Scooter Club Ride Out In Aid Of The York ME Community !

Scooter Club Ride Out

A Date For Your Diary   –  York Inset Scooter Club Ride Out In Aid Of The York ME Community ! So now we know the date of the event, will you come and join us to see them off ? All money raised will go to help raising awareness of ME in York through the […]

The York Inset Scooter Club Will Be Supporting The York ME Community In Their April Ride Out

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  The York Inset Scooter Club is based in York (UK) and has a membership of around 250. They are a thriving, active club and look to support local charities when they can. They have an annual Mods and Rockers charity ride out, and for 2019 have agreed to support The York ME Community.   […]

Music4ME Album

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  An album of original songs and poetry composed and performed by people with M.E. from all over the world, was released to mark and support ME Awareness Day, 12 May 2018. It was hoped that by releasing this album, it will help those with ME to know that they are not alone, and for […]

ME Debate In Parliament – Thursday 24th Of January 2019

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  Today is a huge day for those of us dealing with ME.  Carol Monaghan MP will be making our case for improved medical education and research funding in this illness.   Although these figures are now probably out of date and on the low side, it’s estimated that there are 250,000 in the UK, […]

The NIH Is Thwarting Research On A Poorly Understood Yet Serious Condition

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      By JENNIFER SPOTILA in statnews.com.   When I first developed myalgic encephalomyelitis in 1994, I had no idea that I would be just as sick 25 years later, or that there would still be limited scientific understanding of the disease and no effective treatments. Nor did I imagine that my career as a lawyer was over, and […]

2018 Ramsay Class Receives Supplemental Funding To Support Innovative Projects From New Investigators

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    From Solve ME/CFS Initiative.   Solve ME/CFS Initiative (SMCI) is pleased to announce that we have received funding to support additional Ramsay studies for the 2018 Ramsay Award Program Class that will be led by Dawei Li, PhD, an Assistant Professor at the University of Vermont, and Malav Trivedi, PhD, an Assistant Professor at Nova Southeastern University. Both Dr. Li […]

THE YORK ME COMMUNITY – YORK INTER COMPANY FANTASY FOOTBALL LEAGUE FOR THE YORK ME TGA SHIELD – UPDATE !

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  The York ME Community runs an Inter-Company Fantasy Football League sponsored by TGA Mobility.  This is to help raise awareness of the illness that affects around 250,000 people in the UK, and 800 in the York area alone.  Of those around York, 200 are likely to be severe, meaning house or bed bound. On […]

This Is Personal: BHC’s Patient-First Perspective

Bateman Horne Center

  By Rachel Black in The Batema Horne Center.   Bateman Horne Center is guided by a board of directors that is intimately connected to ME/CFS and FM. Many have sons, daughters or are themselves managing an illness that has taken much of their life away. The Horne in Bateman Horne Most of you know that our […]

Mike’s EU Marathons For Invest In ME Research – Bulgaria Report

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By Mike Harley.   Just 5 weeks after Tallinn, I travelled to Sofia in Bulgaria to run their city marathon for number 19 of 28.  With Cat 38 weeks pregnant I had expected to be going solo but one of my good mates, Mike Ward, volunteered to come with me.  I tried hard to find a […]

A Wing, A Prayer And Vicky Whittemore: The NIH And Chronic Fatigue Syndrome In 2018

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    By Cort Johnson in Health Rising.   “I think some people are angry for good reason.  This disease hasn’t gotten enough attention.” Vicky Whittemore   My partner and I made our way to Vicky Whittemore’s office in a building off the NIH campus. Security was tight as always. We signed in and were […]

Join Team IiMER Royal Parks Half Marathon October 2018

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    From Invest in ME Research.   Invest in ME Research has secured FIFTEEN places in the London Royal Parks Half Marathon on Sunday 14th October 2018 and some are still available. If anyone you know may be willing and able to join Team IiMER 2018 in this event then details are at: investinme.org/IIMER-Newslet-1801-02.shtml This will be […]

New Harvard Chronic Fatigue Syndrome (ME/CFS) Research Center Fulfills Crucial Need

Research Study

  By Cort Johnson.   In May the Open Medicine Foundation announced they’d committed a major chunk of change – $1.8 million – to fund an ME/CFS Collaborative Research Center at Harvard Medical School affiliated hospitals. With the addition of the Harvard Center, chronic fatigue syndrome (ME/CFS) research centers are now found at two of […]

Why the Medical Research Grant System Could Be Costing Us Great Ideas

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    By Aaron E. Carroll in The New York Times.   The medical research grant system in the United States, run through the National Institutes of Health, is intended to fund work that spurs innovation and fosters research careers. In many ways, it may be failing. It has been getting harder for researchers to obtain grant support. A […]

Emerge Australia Welcomes $370,000 In Federal Funding

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  From Mirage News.   Emerge Australia, the national organisation providing support, information and advocacy for people with Myalgic Encephalomyelitis (ME) / Chronic Fatigue Syndrome (CFS), has received $370,000 in Federal funding to support its work. It is the largest Federal funding that has been committed to a support organisation working in the ME/CFS space. CEO […]

Centre Of Excellence For ME

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  This page is for the researchers funded by IiMER to communicate what they are doing, what experiences they have, what they think of research into ME, what they hope to achieve – and allow more communication with patients and the public. We hope this will help more people understand ME and the possibilities and […]

Application In Parliament For Debate On ME

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  Below is a link to an application put forward today in Parliament to have ME debated in the main chamber.   This was put forward by Carol Monaghan MP, and supported by York MP’s, Julian Sturdy and Rachael Maskell.     Link to Parliamentary Application

The Truth About NHS Research Funding That Should Shame The Government

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  By Steve Topple in The Canary.   A parliamentary question from an SNP MP has forced the government to reveal some disturbing facts about its funding for research into a chronic disease. But when put together with other figures, it reveals a crisis in an area of UK healthcare. A chronic disease Glasgow North West MP […]

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