ME Research And Researchers

Understanding The Causes Of Chronic Fatigue Syndrome​ Through The Vagus Nerve

Vagus Nerve

  From Parasym.   Chronic Fatigue Syndrome: examining the impact of infections. Chronic Fatigue Syndrome/Myalgic Encephalomyelitis, or CFS, is a long-term illness that is characterised by extreme tiredness in addition to a host of other discomforts. Researchers have struggled to find an identifiable origin to this debilitating disease and as a result, it has proven […]

Trial By Error: The CDC’s Stakeholder Meeting

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    By David Tuller, DrPH The US Centers for Disease Control held one of its occasional briefings for ME/CFS stakeholders last week. I was unfortunately busy during that time, but #MEAction has posted a useful account of what was discussed, which you can read here. The #MEAction account includes short, helpful descriptions of a number […]

Is Ron Davis’s ME/CFS Collaborative Research Center At Stanford Poised For A Breakthrough ?

Ron Davis

    By Cort Johnson in Health Rising.   Ron Davis’s Stanford ME/CFS Collaborative Research Center is itching to get back to full-time lab work. It’s not that Davis and his group haven’t been working. Janet Dafoe described constant Zoom calls with ME/CFS researchers, a bevy of grant applications have been completed, put some researchers – with […]

Researchers Explore Clinical And Biological Aspects Of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Research Study

  Reviewed by Emily Henderson, B.Sc in News Medical Life Sciences.   One of the major symptoms of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is post-exertional malaise (PEM), the worsening of symptoms after physical or mental activities. Using their own words and experiences, people with ME/CFS described how debilitating PEM can be in a study in Frontiers in […]

Mestinon Trial Update

Research

  By Ronald G. Tompkins, MD, ScD Co-Director, The Harvard ME/CFS Collaboration in Open Medicine Foundation. In May, 2020, Open Medicine Foundation (OMF) announced the Mestinon Clinical Trial for ME / CFS, conducted at the Brigham & Women’s Hospital by Dr. David Systrom in association with the Harvard ME / CFS Collaboration at the Harvard Affiliated Hospitals. Background This study was […]

Understanding Long Covid: A Shortcut To Solving ME/CFS ?

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  By Simon McGrath in ME/CFS Research Review. Large numbers of people, around one in 10, don’t make a normal recovery from coronavirus but continue to be ill with “long covid”. The illness is likely to have several different causes, probably including ME/CFS. Post-exertional malaise appears to be a common symptom. Long covid patients have […]

Craniocervical Instability, Neurosurgery And M.E.: Just The Facts, Please – An Editorial By Jeff Wood

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  By Jeff Wood in Health Rising.   Jeff Wood’s remarkable recovery from severe ME/CFS following spinal surgery to correct craniocervical instability (CCI) and other problems shocked the ME/CFS community. It’s safe to say that almost no one saw that coming. Since then, others, including Jen Brea and Julie Rehmeyer, have been diagnosed and undergone […]

The ME Association Research Round-up

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    By Charlotte Stephens, Research Correspondent, ME Association. We show below brief summaries of the research studies about ME/CFS that have been published in the last week, followed by the abstracts from those studies. All research relating to ME/CFS can be located in the ME Association: Index  Charlotte Stephens, Research Correspondent, ME Association We show […]

Long-Term Saline Use Improves Cardiovascular Functioning In ME/CFS: A Workwell Case Report

Saline

    By Cort Johnson in Health Rising.   The exercise physiologists at the Workwell Foundation are pretty darn good at providing thought provoking case reports. A couple of years ago, a Workwell case report indicated that a very ill ME/CFS patient was able, using Workwell’s heart rate-based exercise program, to not just halt the steady decline […]

Dublin Mum Shares Warning Signs Of ME In Children After Daughter’s Diagnosis Aged Just 7

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  By Blathin De Paor in RSVP Live. (Should you wish to contact Paul O’Connell directly about this story, you can find him on Twitter: @PaulEOC). Chronic Fatigue Syndrome, is a condition many consider to be rare, but the reality is, it’s simply massively underdiagnosed. However, experts are seeing a huge spike in the number […]

Trial By Error: Some Stuff About Long-Covid, BMJ And ME

David Tuller

    By David Tuller, DrPH It is clear that there will be much grappling going forward over the similarities and differences between long-Covid and ME (or CFS, or ME/CFS, or whatever this illness or cluster of illnesses is being called). The two entities overlap in some ways, but no one should conflate them. We […]

How COVID-19 Could Reveal The Secrets Of Chronic Fatigue Syndrome

Coronavirus_illustration

  By David J. Craig in Columbia Magazine. Physicians have seen it before: in the aftermath of a viral epidemic, survivors complain of a crushing lethargy, mental fogginess, sleep difficulty, and muscle pain. Many are eventually diagnosed with myalgic encephalomyelitis, also called chronic fatigue syndrome (ME/CFS), a poorly understood condition that has no FDA-approved treatment and […]

The Brain Fog In Chronic Fatigue Syndrome (ME/CFS) Plus Even Mini Tilt Table Tests Wrack The Severely Ill

Brain Fog

By Cort Johnson in Health Rising.   The two Dutch researchers, C. Linda van Campen and Frans Visser, and Peter Rowe from the U.S., have been on a tear recently. The Van Campen/Visser team (mostly with Peter Rowe) have published 6 ME/CFS studies thus far in 2020, one in 2019 and three in 2018. This […]

Makayla And Her Av1

Makayla

  From noisolation. Due to her ME, Makayla is not able to attend school full time. She was forced to give up her favourite sports and hobbies, which included dancing and swimming. Makayla has tried to combat the social isolation and loneliness she feels through interfaces such as Instagram, where she can make friends who […]

ME/CFS Economic Cost: $14.5B Each Year

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  By Eddie Ngaluafe in Griffith News.   Griffith University research has calculated the cost of the debilitating illness myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) at $14.5 billion each year in Australia. Professor Sonya Marshall-Gradisnik, co-director of the National Centre for Neuroimmunology and Emerging Diseases (NCNED), says the figure shows the significant economic toll on patients and the broader […]

Low Brain Blood Flows And Orthostatic Intolerance Ubiquitous In Chronic Fatigue Syndrome (ME/CFS)

brain-power

By Cort Johnson in Health Rising.   Every once in a while a study comes along for which terms like “seminal” or “groundbreaking” seems appropriate. The 2020 Van Campen/Rowe/Visser study, “Cerebral blood flow is reduced in ME/CFS during head-up tilt testing even in the absence of hypotension or tachycardia: A quantitative, controlled study using Doppler […]

Forward ME Letter Re: Post-Covid/ME/CFS Management With Caution About Exercise

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  By Russell Fleming, Content Manager, ME Association The following letter has been produced by the Countess of Mar and members of Forward ME which is a collaboration of M.E. charities that includes the ME Association. It has been used by, for example, Physios 4 ME, when encountering guidance from other organisations that has raised […]

OMF Scientist Receives Grant Funding For ME/CFS Study

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  From The Open Medicine Foundation.   Open Medicine Foundation (OMF) is thrilled to share that our staff science liaison, Christopher W. Armstrong, PhD, has been awarded a grant to further his research into the relationship between the altered metabolism of nitrogen and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). The research will be completed at the ME/CFS Collaborative […]

Signs Of Intracranial Hypertension, Hypermobility, And Craniocervical Obstructions In Patients With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

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By Bjorn Bragee et al in Frontiers in Neurology.   The pathophysiology of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is unknown. In this study, we test the hypothesis that hyper-mobility, signs of intracranial hypertension (IH), and craniocervical obstructions may be over represented in patients with ME/CFS and thereby explain many of the symptoms.   Our study […]

How COVID-19 Could Reveal The Secrets Of Chronic Fatigue Syndrome

Fatigue

By David J Craig in Columbia Magazine.   Physicians have seen it before: in the aftermath of a viral epidemic, survivors complain of a crushing lethargy, mental fogginess, sleep difficulty, and muscle pain. Many are eventually diagnosed with myalgic encephalomyelitis, also called chronic fatigue syndrome (ME/CFS), a poorly understood condition that has no FDA-approved treatment and […]

Dr Tedros (WHO) To Contact Dr Ron Davis On M.E.

Ron Davis

  The Director General of the World Health Organisation is aiming to contact Dr Ron Davis, a Scientist and ME Researcher who really knows about ME as his son’s life has been totally destroyed by it. Maybe we’re getting somewhere at long last.

UK Charity Invest In ME Research Pledges £625,000 For Research Into ME In Norwich Research Park

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From Norwich Research Park. UK Charity Invest in ME Research is awarding £625,000 for continued research into the disease myalgic encephalomyelitis (ME or ME/CFS), including a clinicial trial at the Quadram Institute. This major investment is an increase of the charity’s previous pledge of £500,000 that was announced in late 2019. This research builds on […]

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