ME Research And Researchers

Post-Exertional Neuroimmune Exhaustion (PENE)

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      From ME International.   The information provided at this site is not intended to diagnose or treat any illness and is not to be considered as medical advice. Below is information from the International Consensus Primer for ME that relates to PENE.  We feel it is important all people with myalgic encephalomyelitis […]

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients Exhibit Altered T Cell Metabolism And Cytokine Associations

Stem Cells

By Alexandra H. Mandarano, Jessica Maya, […], and Maureen R. Hanson in The Journal Of Clinical Investigation.   Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex disease with no known cause or mechanism. There is an increasing appreciation for the role of immune and metabolic dysfunction in the disease. ME/CFS has historically presented in outbreaks, […]

Trial By Error: New Study Reports First-Hand Accounts Of 1955 Hospital Outbreak

David Tuller

  By David Tuller, DrPH The name myalgic encephalomyelitis is inextricably linked with an outbreak of what appeared by all accounts to be a viral illness at London’s Royal Free Hospital in the second half of 1955. More than 200 people, most of them female staff and students, fell ill. Some reported long-term complications. Although no pathogen […]

Solve M.E. Covid-19 And ME/CFS Information Center

SolveMECFS

  Welcome to Solve M.E.’s COVID-19 information hub. This information center is designed to provide the most current COVID-19 information for people with ME/CFS, health care providers, and people with questions about the emerging connections between COVID-19 and ME/CFS. New data is published frequently. Please check back for updates.   To read more, click on […]

New Clinical Trial To Test Whether Structured Exercise Benefits ‘Long Covid’ Patients

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  TO ALL WITH AN INTEREST IN LONG-COVID AND M.E. Warwick University have been given a £5m research grant from The National Institute of Health to undertake a: “New clinical trial to test whether structured exercise benefits ‘long Covid’ patients.” The link to the details are below. I have emailed their media centre with my […]

2020: Looking Back At A Year Of ME/CFS Research

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  By ME/CFS Skeptic. 2020 was an exceptional year in many ways. The coronavirus pandemic swept across the world causing more than a million deaths and forcing most developed nations into lockdown. Although COVID-19 brought havoc and despair, it also renewed scientific interest in postviral syndromes and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Hopefully, this will […]

ME Association Writes To Chief Medical Officer About Vaccine

Vaccination

From The ME Association. The ME Association has written to Professor Chris Whitty, Chief Medical Officer, and the Joint Committee on Vaccination and Immunisation, to seek clarification on COVID-19 vaccine priority for people with ME/CFS Dear Professor Whitty and the Joint Committee on Vaccination and Immunisation, The ME Association is starting to hear from people […]

A Doctor With Long-Covid Finds Out The Downside Of Graded Exercise Therapy

Exercise

  By Jerome Burne for the Daily Mail.   As they’re told to exercise despite crippling fatigue, and advised they should banish ‘negative thoughts’…No wonder doctors think their long Covid treatment is misguided. Professor Brendan Delaney developed a mild case of Covid just before the first lockdown in March, suffering the now- familiar symptoms of a cough, […]

The Evidence Base For Physiotherapy In Myalgic Encephalomyelitis/Chronic Fatigue Syndrome When Considering Post-Exertional Malaise: A Systematic Review And Narrative Synthesis

Research

  By Marjon E. A. Wormgoor and Sanne C. Rodenburg in the Journal of Translational Medicine. Abstract Background Due to the inconsistent use of diagnostic criteria in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), it is unsure whether physiotherapeutic management regarded effective in ME/CFS is appropriate for patients diagnosed with criteria that consider post-exertional malaise (PEM) as a hallmark feature. […]

Trial By Error: Psych Issues Do Not Predict ME/CFS, New Chicago Study Shows

David Tuller

    By David Tuller, DrPH. For decades, investigators have argued over the causes of the illness or cluster of illnesses variously called myalgic encephalomyelitis (ME), chronic fatigue syndrome (CFS),  ME/CFS, CFS/ME and other names. In the absence of an adequate explanation for the debilitating symptoms, a flawed approach to intervention based on the perceived […]

A Geneticist’s Quest To Understand His Son’s Mysterious Disease

Ron Davis

By Tracie White in The Scientist. Ronald Davis of Stanford University changed his focus to research on ME/CFS, the disease formerly known as chronic fatigue syndrome, in a bid to help his son and others like him.   About 10 years ago, Stanford University genomicist Ronald W. Davis began a new investigation into a mysterious […]

A Literature Review Of GP Knowledge And Understanding Of ME/CFS: A Report From The Socioeconomic Working Group Of The European Network On ME/CFS (EUROMENE)

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  By Derek F H Pheby et al in Pubmed. Abstract Background and Objectives: The socioeconomic working group of the European myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) Research Network (EUROMENE) has conducted a review of the literature pertaining to GPs’ knowledge and understanding of ME/CFS; Materials and Methods: A MEDLINE search was carried out.   The papers identified were reviewed […]

When Dr. Peter Rowe Speaks – We Should Listen: Dr. Rowe On ME/CFS At The Dysautonomia International Zoom Conference

Cort Johnson

  By Cort Johnson in Health Rising. A riff on Dr. Peter Rowe’s presentation at the 2020 Dysautonomia International Conference (note that I expand on many of Rowe’s points; i.e. not all the words are his.) Lauren Stiles, the founder of Dysautonomia International, has long believed that the chronic fatigue syndrome (ME/CFS) and dysautonomia fields […]

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Organic Disease Or Psychosomatic Illness ? A Re-Examination Of The Royal Free Epidemic Of 1955

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  By Rosemary Underhill and Rosemarie Baillod in MDPI.   Abstract Background and Objectives: Controversy exists over whether myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is an organic disease or a psychosomatic illness. ME/CFS usually occurs as sporadic cases, but epidemics (outbreaks) have occurred worldwide. Myalgic encephalomyelitis was named to describe an outbreak affecting the lymphatic, muscular, and nervous systems that closed […]

Ivabradine – Could A “Wonder Drug” For POTS Work In ME/CFS ?

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By Cort Johnson in Health Rising.   Ivabradine appears to work quite well in POTS  – but should we stop there? Ivabradine was approved for use in the European Union in 2005, but it’s pretty new to the scene in the U.S. It was FDA approved in only 2015. That means it doesn’t have much […]

History Made ! Department Of Defense Funds Its First-Ever ME/CFS Research Projects

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  From Solve M.E. Since 2017, unleashing the potential research funds from the Department of Defense (DOD) for ME/CFS has been one of our highest priorities. After more than three years of hard work, the first ME/CFS awards *ever* funded by Peer Reviewed Medical Research Program (PRMRP) have been announced! This has been a really hard year […]

An Early Christmas Present For Physios For ME

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From Physios For ME.   In May 2020 we were thrilled to announce that we had obtained funding from the ME Association Ramsey Research Fund for a study; “Feasibility of investigating oxygen consumption (VO2), heart rate, blood pressure, lactic acid levels and activity levels of people with Myalgic Encephalomyelitis during normal daily activities.” You can […]

Living With ME/CFS Is Hell, And Many COVID Longhaulers Are Experiencing It

ME Symptoms

  By Elaine Roth in Scary Mommy blog.   It’s been more than a year since the very first case of COVID-19 was contracted in Hubei province in China. Since those very early days, the virus has gone on to infect more than 57 million people worldwide, with more than 11 million of those cases happening in the […]

Mitochondrial Enhancers For Chronic Fatigue Syndrome (ME/CFS) And Fibromyalgia Pt. I: D-Ribose, CoQ10 And PQQ

Mitochondrial

  By Cort Johnson in Health Rising. Is more energy the cure-all for chronic fatigue syndrome (ME/CFS) and fibromyalgia? Dr. Lerner observed years ago that symptoms in ME/CFS/FM tend to go up when energy levels go down and decline when energy levels go up. Even at rest, our muscles are affected by low energy levels. […]

Expert Reaction To The BMJ Editorial Calling For The Abandonment Of Standards

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  By Brian Hughes in The Science Bit.   An invited, non-peer-reviewed guest editorial in the BMJ has claimed that behavioural interventions for “complex conditions” (such as ME or CFS) should not be judged using the customary criteria — and that the relevant studies should not be evaluated as though they were proper randomised controlled trials — […]

Science Behind DecodeME Uncovers Potential Covid-19 Treatments

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  From DecodeME.   DecodeME’s Dr Veronique Vitart, Dr Shona Kerr and Professor Chris Ponting are among a group of researchers who have just published a study in the top science journal Nature on the role that genetics plays in severe Covid-19. Using the same technique that will power DecodeME, they found that people with particular DNA […]

Researchers Claim Proof Chronic Fatigue Syndrome Is A Bodily Disease – Expert Reaction

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  From Science Media Centre. Researchers claim they have “unequivocally proved” that Chronic Fatigue Syndrome is not a psychosomatic disease. One of their studies finds mitochondria – known as the “powerhouse of the cell” – are dysfunctional in patients with the syndrome. A second study finds epigenetic similarities among sufferers. The SMC asked experts to comment on the research.  Associate […]

Trial By Error: Professors Chalder And Crawley Join Forces To Push CBT For Kids

David Tuller

  By David Tuller, DrPH On November 10th, the National Institute of Health and Care Excellence published a draft of new clinical guidelines for ME/CFS. The draft represented a blunt rejection of the argument that the combination of “unhelpful cognitions” and deconditioning drive the illness. Under this once-hegemonic framework, indicated therapies include cognitive behavior therapy to […]

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