ME Research And Researchers

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: When Suffering Is Multiplied

By Anthony L. Komaroff in MDPI. Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is an illness defined predominantly by symptoms. Routine laboratory test results often are normal, raising the question of whether there are any underlying objective abnormalities. In the past 20 years, however, new research technologies have uncovered a series of biological abnormalities in people with […]

DwME Joins Call For NICE To Maintain Scientific Process

From Doctors With ME. Further to our position statement on the 2021 NICE guideline update, Doctors with M.E. has joined the call for NICE to ensure that unconsulted changes are not injected, as these would avoid scrutiny by the scientific community. DwME considers the 2021 NICE guideline to be a watershed moment in the history of […]

News In Brief – July 2021

From Science For ME. This thread has a Science for ME ‘News in Brief’ post for each week in July 2021 written by a team including @Trish, @Kalliope and @ahimsa. Scroll down to see this week’s news. to read all the news, click on the link below: News in Brief – July 2021 | Science for ME (

ME/CFS And The Coronavirus Vaccine: Is There A Better Way ?

By Brendan in Health Rising. The choice has been a difficult one: protect oneself from a potentially dangerous virus but risk a relapse by getting the coronavirus vaccine, or not get the vaccine and hope that you don’t come down with the virus. Health Rising’s poll suggests that many people with ME/CFS/FM are indeed having a […]

We Are Failing People With Very Severe ME/CFS

By Amber Ella in Health Rising. The point of no return. I have advocated for three people with very severe myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in the past few years. Each time I experience the same sense of frustration, dread, and panic over my inability to connect the dots required to pull someone back from the […]

Hypothesis Predicts Major Failure Point In Chronic Fatigue Syndrome (ME/CFS)

By Cort Johnson in Health Rising. After attempting to explain the cardiovascular issues in ME/CFS, Klaus Wirth and Carmen Scheibenbogen take on the energy and muscle issues. Warning – this is complex! Klaus Wirth and Carmen Scheibenbogen brought the chronic fatigue syndrome (ME/CFS) world something entirely new in 2020 with their hypothesis paper, “A Unifying […]

Honorary Fellows And DwME Leadership Cited, Highlighting The Medical Profession’s Move Towards Belief And Support

Doctors With ME in The Guardian. Doctors with M.E. Honorary Fellows and Leadership were quoted extensively in a recent article article about post-viral disease by Christina Frangou. Published in the Guardian, the article has been well received by experts in the field and is entitled“‘I felt betrayed’: how Covid research could help patients living with chronic fatigue […]

The Importance Of Listening In Treating Invisible Illness And Long-Haul COVID-19

By Dorothy Wall MA in AMA Journal of Ethics. Abstract Primary and specialty care clinicians strive to base diagnoses and treatment on specific, measurable abnormalities. Yet those with invisible, controversial illnesses such as myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) often have symptoms not explained by standard laboratory values. For instance, one of the cardinal features of […]

Beyond Bones: The Relevance Of Variants Of Connective Tissue (Hypermobility) To Fibromyalgia, ME/CFS And Controversies Surrounding Diagnostic Classification: An Observational Study

By Jessica A Eccles et al in RCP Journals. ABSTRACT Background Fibromyalgia and myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) are poorly understood conditions with overlapping symptoms, fuelling debate as to whether they are manifestations of the same spectrum or separate entities. Both are associated with hypermobility, but this remains significantly undiagnosed, despite impact on quality […]

‘I Felt Betrayed’: How Covid Research Could Help Patients Living With Chronic Fatigue Syndrome

By Christina Frangou in The Guardian. In the fall of 2016, Ashanti Daniel, a nurse in Beverly Hills, California, went to an infectious disease physician looking for answers about a weird illness she couldn’t shake. After falling sick with a virus four months earlier, she still felt too tired to stand up in the shower. The appointment […]

Bioenergetic And Proteomic Profiling Of Immune Cells In Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients: An Exploratory Study

From MDPI. Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a heterogeneous, debilitating, and complex disease. Along with disabling fatigue, ME/CFS presents an array of other core symptoms, including autonomic nervous system (ANS) dysfunction, sustained inflammation, altered energy metabolism, and mitochondrial dysfunction. Here, we evaluated patients’ symptomatology and the mitochondrial metabolic parameters in peripheral blood mononuclear […]

BMJ Rapid Response Re: ME/CFS And Long Covid: Moving Beyond The Controversy – By Dr Charles Shepherd

From The ME Association. An article by Melanie Newman was published in the British Medical Journal on 24 June, and included an interview with Dr Charles Shepherd (Hon. Medical Adviser to the ME Association). While we did not see the final article before publication, and are not happy some of the opinion aired by certain professionals, it […]

Chronically Ill And Disabled Workers Endure Regular Discrimination In UK Workplaces, Study Finds

By Natalie Morris in Metro. A new report has revealed the discrimination experienced by chronically ill and disabled people – who comprise 1 in 4 of the UK workforce. Around one in four people of working age are chronically ill or disabled, more than a third (38%) of these people say their health needs were […]

Trial By Error: Null Outcomes Presented As Success In Yet Another CBT Trial from Prof Trudie Chalder

By David Tuller, DrPH i Virology Blog. Trudie Chalder, a professor of cognitive behavior therapy (CBT) at King’s College London, has recently published yet another high-profile paper: the main results for “efficacy” from a trial of CBT for patients with so-called “persistent physical symptoms” (PPS) in secondary care. As usual with this group of investigators, things haven’t turned […]

The Education Of An Unlikely ME Advocate

By Art Mirin in Health Rising. Art Mirin seemed hardly the person to lead a movement.  A retired mathematician who’d been creating advanced climatological models at the famed Lawrence Livermore National Laboratory in California, Art had never done advocacy before. He had a sick daughter, though, and he wanted to contribute.  A meeting at an […]

Is Long COVID Leading To A Tipping Point In Attitudes Toward Chronic Illness ?

By Sunshine Mugrabi in Rooted in Rights. Could long COVID spell the end of medical gaslighting? Let’s hope so. When Kathy Flaherty, a 53-year-old attorney and nonprofit executive director, got COVID-19 in March 2020, her friends said, “see you in two weeks.” Two weeks came and went, but she was no better. A former marathon runner, […]

When Disease Research Gets Personal

By Claire Concannon in RNZ. Looking for answers Warren Tate hadn’t heard of the disease that would become such a big part of his life until his 14 year-old daughter, got glandular fever. Instead of recovering normally from this viral infection, her fatigue, pain and noise sensitivity symptoms worsened, and, months later, after ruling out […]

Problems In Defining Post-Exertional Malaise

By Leonard A. Jason, Meredyth Evans, […], and Abigail Brown in Journal of prevention & intervention in the community. Abstract Post-Exertional Malaise (PEM) is a cardinal symptom of the illnesses referred to as Myalgic Encephalomyelitis (ME), Myalgic Encephalomyelitis/chronic fatigue syndrome (ME/CFS), and chronic fatigue syndrome (CFS). PEM is reported to occur in many of these […]

Experts Assert Insights From ME/CFS Needed To Understand Long COVID

By Cort Johnson in Health Rising. This is a journal article we’ve been needing. That long COVID is a real and serious problem has been established. Media articles frequently note the similarity between chronic fatigue syndrome (ME/CFS) and long COVID. Plus, Avindra Nath and the Long COVID Alliance have been beating the drum about ME/CFS and long […]

Deconditioning Does Not Explain Orthostatic Intolerance In ME/CFS (Myalgic Encephalomyelitis/Ehronic Fatigue Syndrome)

From the Journal of Translational Medicine. Abstract Background Orthostatic intolerance (OI) is a frequent finding in individuals with myalgic encephalomyelitis /chronic fatigue syndrome (ME/CFS). Published studies have proposed that deconditioning is an important pathophysiological mechanism in various forms of OI, including postural orthostatic tachycardia syndrome (POTS), however conflicting opinions exist. Deconditioning can be classified objectively […]

Research: Medical School Education On Myalgic Encephalomyelitis By Dr Nina Muirhead

From The ME Association. Overview Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a complex multi-system disease with a significant impact on the quality of life of patients and their families, yet the majority of ME/CFS patients go unrecognised or undiagnosed. For two decades, the medical education establishment in the UK has been challenged to remedy these […]

Trial By Error: Norway Rejects New Clinical Trial Of Woo-Woo Lightning Process

By David Tuller, DrPH In a welcome display of scientific acumen, Norwegian research ethics authorities have rejected a proposed study of the woo-woo called the Lightning Process as a treatment for ME/CFS. Since Norway generally appears to be a hotbed of biopsychosocial thinking, this excellent decision is a bit of a surprise. It follows a heated public […]

What Long-Term Follow-Up Data Tell Us About The Evidence On GET And CBT

From ME/CFS Skeptic. After years of waiting, the long-term follow-up results of the GETSET study have finally been published. The control group that received no intervention did just as well as the group that received guided graded exercise self-help. This isn’t the first time that the control group catches up over time. A similar pattern […]

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