ME Research And Researchers

Trial By Error: Guardian Columnist George Monbiot Is Causing Long COVID, Says Professor Michael Sharpe

  By David Tuller, DrPH In a remarkable display of—well, I’m not even sure what to call it–Professor Michael Sharpe has blamed Guardian columnist George Monbiot and Long COVID support groups, among others, for the wave of people reporting prolonged symptoms after acute bouts of COVID-19. And during the same February presentation in which he made those observations, Professor […]

We Already Know Enough To Avoid Making The Same Mistakes Again With Long COVID

  By Todd E. Davenport , Staci R. Stevens , Jared Stevens , Christopher R. Snell  and J. Mark Van Ness in JOSPT.   Based on experience with past coronaviruses, the emerging challenge of prolonged symptoms after infection with the novel coronavirus 2019 (SARS-CoV-2) is unsurprising. Data from a large international web-based patient survey indicate substantial symptom overlap between long COVID and myalgic encephalomyelitis/chronic fatigue […]

Study Finds ME/CFS Most Neglected Disease Relative To Its Needs

  By Cort Johnson in Health Rising.   This is the third in a series of blogs on advocacy topics as we enter into the prime advocacy period of the year. ME/CFS Experts Speak Out in #MEAction’s Long Covid Media Conference Time to Strike! Sign Up for a Monumental Virtual Lobby Day “America’s Hidden Health […]

How COVID Long-Haulers Might Renew The Focus On Chronic Fatigue Syndrome

By Jad Sleiman in WHYY. Psychologist Leonard Jason knew the COVID long-haulers were coming long before anyone even had a name for them. “When we began hearing about individuals getting sick with this particular virus, we just assumed that there would be a certain percentage of individuals who did not recover,” he said. “And they ended up calling them […]

Muscle Study Finds Key Differences In Fibromyalgia And Chronic Fatigue Syndrome (ME/CFS)

By Cort Johnson in Health Rising. The Netherlands and the U.K. have been the epicenter of biopsychosocial research (CBT/GET) into chronic fatigue syndrome (ME/CFS) for the past 20 years or so, but that is changing. In 2018, the Dutch Health Council asserted that “Scientific research on ME/CFS is needed to serve patients better”, and that […]

Scientist Ron Davis Is Fighting To Cure His Son’s Chronic Fatigue: ‘It’s Like A Living Death’

  By Johnny Dodd in People.   Stanford geneticist Ron Davis faces his toughest challenge yet: tackling the chronic fatigue syndrome that has left his 37-year-old son bedridden. Thirty minutes into a Zoom interview about their years-long battle to keep their son Whitney Dafoe alive, Janet Dafoe shoots her husband Ron Davis an anxious glance. Whitney, 37, suffers from a severe case of […]

Dissecting The Nature Of Post-Exertional Malaise

By Megan Hartle, Lucinda Bateman and Suzanne D. Vernon in Taylor & Francis Online.    ABSTRACT Background Post-exertional malaise (PEM) is a defining characteristic of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) but there is insufficient research dissecting the nature of PEM from the patients’ perspective. Methods A PEM questionnaire administered to 150 ME/CFS patients. It included open-ended questions about triggers, experiences, […]

NICE Announce New Publication Date For The ME/CFS Clinical Guideline

  Russell Fleming, Content Manager, ME Association Dear Stakeholder,  Because of the large number of comments received during consultation on the ME/CFS guideline, and the additional work needed to respond to them fully, the publication date has changed. The guideline will now publish on 18th August 2021.  29 March 2021    The ME Association was expecting NICE (The […]

ME/CFS Experts Speak Out In #MEAction’s Long Covid Media Conference

By Cort Johnson in Health Rising.   We’re moving into a prime advocacy period. This is the second of a series of blogs on advocacy that are going to appear over the next month. The first focused on the big advocacy event of the year – the Solve ME/CFS Initiative’s Lobby Day. If you’re in […]

How COVID Long-Haulers Might Renew The Focus On Chronic Fatigue Syndrome

  By Jad Sleiman in WHYY. said it was no surprise that some subset of those infected with the new coronavirus just stayed sick because that kind of thing has always happened. “So if you look at all the different viruses that have occurred … from the Spanish flu (of) 1918 to Ebola, …  to SIRS, […]

Trial By Error: Clueless Wall Street Journal Op-Ed Endorses PACE As The “Prevailing View” Among Docs

  By David Tuller, DrPH in Virology Blog. Long Covid stories and commentaries seem to be everywhere—too many to keep track of! This week, The Wall Street Journal published an opinion piece about long Covid and ME/CFS that is breathtakingly ill-informed—and more importantly, just wrong. Beyond that, it showed remarkable disrespect for patients and their experiences. (After this low […]

Dog Whistle Medicine And Disability Denial

By David F Marks.   Here I review the corporate connections of the Wessely School with the insurance industry. The picture featured above shows the cover of a book edited by Peter Halligan and Mansel Alyward alongside a similar cover from the UnumProvident annual report of 2002. Imaginary conversation Imagine the conversation, which must have gone something like this: Unum executive: Hi, […]

Research Interview: Professor Ken Walder

By Jason Murphy in Emerge Australia.    2021 is an exciting time for ME/CFS science in Australia. Money is flowing. That means in time, research results will also flow. Australian labs are gearing up to do the work to deliver insights into the cause of ME/CFS and, most importantly, possible treatments. Australia’s National Health and […]

The PACE Trial Should Be Retracted, Because It Was Seriously Unethical, And The Lead Investigators Continue To Deny That.

  By Dr Neil MacFarlane MRCPsych in DrNMblog.   This was submitted (December 2020) to NICE in response to the new draft ME/CFS guidance of November 2020,[1] which had removed the recommendation for Graded Exercise Therapy (GET), and downgraded CBT from therapeutic to a ‘supportive’ option. [1] https://www.nice.org.uk/guidance/indevelopment/gid-ng10091/documents I appear to be the first UK psychiatrist to be […]

Trial By Error: Another Excellent Read On Long Covid, ME/CFS And Medically Unexplained Symptoms

By David Tuller, DrPH in Virology Blog. In a post earlier this week, I noted some differences in the tenor of the debate over Long Covid in the US and UK. Yesterday, another excellent and in-depth piece on the issues appeared on the domestic front, this time in VICE. The author, Alan Levinovitz, is associate professor of religious studies at […]

Scientist With Son Who Suffers From Chronic Fatigue Syndrome Hopes Research Can Help COVID-19 Patients

  By Austin Williams in Fox 26.   The National Institutes of Health identifies “COVID long haulers” as a “large numbers of patients who have been infected with SARS-CoV-2 continue to experience a constellation of symptoms long past the time that they’ve recovered from the initial stages of COVID-19 illness.” The chronic fatigue syndrome Ron Davis’ son suffers […]

Long-Covid Has A Baffling Sister: ME/CFS

  By Llewellyn King in Inside Sources.   Long COVID is the condition wherein people continue to experience symptoms for longer than usual after initially contracting COVID-19. Those symptoms are similar to the ones of another long-haul disease, Myalgic Encephalomyelitis, often called Chronic Fatigue Syndrome. For a decade, in broadcasts and newspaper columns, I have been detailing the […]

Research Digest 12/03/21

    From Emerge Australia.   Welcome to the 65th Emerge Australia Research Digest, where you will find summaries of some of the latest research and information about ME/CFS, with links to the complete articles. You can also join our community and choose to have the Digest delivered straight to your inbox every fortnight on […]

ME/CFS And The Lightning Process

  By David F Marks in Science, Behaviour, Homeostasis. Here I review research by the Wessely School on the Lightning Process (LP). LP is a pseudoscientific cult founded by Phil Parker, a Tarot reader, specialist in auras and spiritual guides, and an osteopath. It has triggered a spate of shoddy evidence and false claims that brings a new low level […]

When Rest May Be Best For Post-Viral Fatigue

  From The Guardian. Graded exercise therapy is not the right way to treat people with ME or long Covid, argue Dr Charles Shepherd and Rachel Harding. Dr Alastair Miller, Professor Paul Garner and Professor Peter White are not correct when they state that graded exercise therapy (GET) is a safe and effective treatment for ME/chronic fatigue syndrome (Letters, […]

Study Suggests Similar Processes Are Driving Long COVID And ME/CFS

  By Cort Johnson in Health Rising. Eric Schadt, the study’s senior author, is not your average researcher, and Phillip Comella, the lead author, has personal experience with mysterious diseases and difficult diagnoses. A biomathematician and bioengineer, Schadt has been at the forefront of biocomputational technologies for years. Schadt’s goal has always been to get […]

ME And The PACE Trial

  By David F Marks. Here I review the disastrous trial known as the ‘PACE trial’. This updates a post from several years ago. Review of the evidence indicates that none of the Wessely School’s hypotheses about the causes of ME/CFS are supported by the science (see here, here and here). Under these circumstances it would be scientifically impossible for […]

Chronic Fatigue Syndrome (ME/CFS) Study

  From The Thompson Institute.   USC’s Thompson Institute is seeking volunteer research participants who will help us understand the underlying illness process of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Participants will also help us develop imaging criteria that will aid the diagnosis of ME/CFS. The study is the first to investigate brain function in ME/CFS in terms […]

The York ME Community © 2015
Powered by Live Score & Live Score App