By Newsroom24. Bees are often seen as one of humanity’s biggest enemies, and yet they help to keep us alive. You don’t have to be a tree hugger to respect the environment that you live in. For two million years, before the agricultural revolution, humans foraged the land and brought thousands of species […]
From YorkMix. After one false start and a lot of anticipation, York now has its very first cat café. The Cat’s Whiskers opened a few days ago in a listed three-storey building on Goodramgate. Complete with 11 cats, including Freddie and Teddy, Simba, Bear and Snowy and Olaf – who are both deaf – the café […]
From Stories Out Loud. This is an on-going poll of supplements that ME/CFS sufferers have tried. If you have (or have had) ME/CFS, please tell others your experience by voting. The more people who vote, the more useful it will be. This poll is only intended for supplements you can buy over the […]
By Laurence Roope, Richard Smith and Sarah Wordsworth in The Conversation. Driven by widespread antibiotic use, bacterial infections are becoming increasingly resistant to treatment, and the pipeline for new antibiotics is running dry. Recent reports estimate that, without action, by 2050 resistance to antimicrobial drugs will cause up to 10m deaths a year globally and reduce […]
By Emma Pritchard in Women’s Health. If you’re barely holding your heavy eyes open as you crawl into the long weekend, then what you’re experiencing might be beyond mere tiredness. And you wouldn’t be alone. According to the Royal College of Psychiatrists, one in five people experiences unusual tiredness at any given time, […]
By Sophie Medlin in The Conversation. On her Goop website, Gwyneth Paltrow claimed that charcoal lemonade was one of the “best juice cleansers”. That was in 2014. Today, charcoal products – from croissants to capsules – are everywhere. Even high street coffee chains have taken to selling charcoal “shots”. Some vendors of these products […]
From NHS Choices. The type of medicines that you need to treat your pain depend on what type of pain you have. For pain associated with inflammation, such as back pain or headaches, paracetamol and anti-inflammatory painkillers work best. If the pain is caused by sensitive or damaged nerves, as is the case with shingles or sciatica, it’s usually treated with tablets that […]
By Tom Sanders in The Conversation. It’s hard to keep up with the message on eggs. Are they good for you or not? In the 1960s, people were told: “Go to work on an egg”. But in the 1970s the public was advised to avoid eggs because they were linked to high blood […]
From Tuder Times. Ale was the staple drink in the fifteenth century and the first half of the sixteenth, in both England and Scotland. By the end of the period, ale was giving way to beer, much to the disgust of older members of society who thought it a nasty, foreign brew. […]
By Daniel Coughlin in SAGA Magazine. Good gut bacteria has been linked to good health, so find out how to help it. Beneficial bacteria is key to a healthy digestive system and a whole lot more besides. “As well as helping us digest food, the bacteria in our gut have been linked to everything […]
By Sophie Medlin in The Conversation. Many people will have had their fill of cheese, chocolate and meat over Christmas and have felt much more energised after going vegan in January (an event known as Veganuary). This invigorating feeling is largely due to the increase in fruit, vegetables, nuts and pulses as opposed […]
By Patsy Westcott in SAGA Magazine. By focusing on your diet, you can help to alleviate the threat posed by this ‘silent killer’, says nutrition expert Patsy Westcott. One in three adults in the UK have high blood pressure (BP) and, according to the British Heart Foundation, around seven million people have it […]
From YorkMix. York’s reputation as a world-beating foodie destination continues to grow. One of Britain’s leading food critics has reviewed a city restaurant and was so impressed he declared: “As far as I am concerned, York is the capital of the food universe.” Giles Coren, restaurant reviewer from The Times, gave his verdict […]
From YorkMix. This 15th century building is all that remains of the street on which it stands. No doubt number 1 Little Shambles has undergone many changes over the centuries. And what is now the Little Shambles Tearooms is set to enter its next chapter with a new name and layout. At present customers […]
From COGNITUNE Smarter Health. Are you looking for a way to boost every facet of your health with a single spice? It sounds crazy, but turmeric curcumin with BioPerine may be the magic supplement we’ve been seeking. Turmeric benefits the body and mind in more ways than you can imagine. Similar […]
By Dan Bean in York Press. A CAKE shop chain with three sites in York has collapsed into administration. The move by Patisserie Valerie – which has branches in Feasegate, Coppergate and at the Designer Outlet – came following failed discussions with HSBC and Barclays to extend a standstill agreement on its […]
By Judith Wills in SAGA Magazine. This hasn’t been a great season for potatoes in more ways than one. Not only have they suffered a bad year in our gardens and fields – the summer drought made them grow smaller than usual – but apparently they are also suffering an image crisis. Ever since […]
From YorkMix. Two friends from Rome have brought the authentic taste of Italian food to the streets of York. Alessandro Venturi and Robin George this week opened up A’Roma Pasta Bar on Silver Street, next to Shambles Market. It serves up a mix of home-made pasta dishes, bread and cakes. And they […]
By Daniel Coughlin in SAGA Magazine. Keen to drop a few pounds? Losing weight is all about burning more calories than you consume, but this can leave you feeling hungry and liable to reach for the nearest chocolate bar, undoing all your good work. Eating extra-filling low-calorie foods will help you stave off the hunger […]
By Chloe Laversuch in YorkMix. Refilling your water bottle in York city centre could become easier next year, under council plans to encourage more businesses to offer free drinking water. City of York Council is supporting a campaign to encourage people to cut their use of disposable plastic bottles and cups, as well as drink more […]
By Chloe Laversuch in The Press. The event, which aims to help residents discover different places to eat by offering set menus at some of the city’s best eateries from £10 per person, is being organised by York Business Improvement District (BID). Director Andrew Lowson said: “People are getting value for money and the […]
Looking For Free Or Low Cost Meals in York Over Christmas ? No need for referrals, just turn up ! Ocay York thank all who have provided the services below:
By Mattew Smith in The Conversation. The recent inquest into the death of Natasha Ednan-Laperouse from anaphylaxis after eating a Pret A Manger baguette she was unaware contained sesame, could lead to a change in labelling legislation. Indeed, a recent investigation found that undeclared allergens were present in a quarter of foods sampled. But a more fundamental issue […]
From The Yorkshire Times. A new survey from Public Health England (PHE) shows overwhelming public support for reducing sugar and calories in everyday foods. The survey, carried out by Ipsos MORI, found around 9 in 10 people support the government working with the food industry (manufacturers, supermarkets and the eating out of home sector) to […]
From Health Rising. (Thanks to Pinetree for providing her success story and personal recommendations. This blog was written by her and edited by me (Cort)) A success story is always a remarkable thing to hear. Pinetree still has chronic fatigue syndrome (ME/CFS), she’s not ‘normal’ or cured, but a single treatment has made a remarkable […]
by Denise Grech in Times of Malta. Ninety-six patients have been prescribed medical cannabis since the law was amended in March this year, Superintendent of Public Health Charmaine Gauci said. The 96 patients were under the care of 14 doctors, she said, adding the superintendence was also following the cases closely. Many of these patients suffered from fibromyalgia, […]
By Jack Peat in The London Economic. Drastic cuts to social support and welfare risk damaging the very fabric of British society, a UN report has today revealed. Concluding his 12-day visit to the country the UN Special Rapporteur on extreme poverty and human rights, Philip Alston, said the UK Government’s policies are […]
By Christopher L. Gentile, Tiffany L. Weir et al in Science. Abstract Diet affects multiple facets of human health and is inextricably linked to chronic metabolic conditions such as obesity, type 2 diabetes, and cardiovascular disease. Dietary nutrients are essential not only for human health but also for the health and survival of the trillions […]
By Sue Jones and Mel Storey in The Conversation. More than 50% of care home residents are being prescribed medicines that they do not need, or which do not properly address their health problems. Antipsychotics, for example, are often overused to treat the behavioural and psychological symptoms of dementia. But this problem is not easy to remedy. The […]
From SAGA Magazine. Seeds such as pumpkin, sesame and sunflower pack a powerful health punch and a quick look at their nutrient content will tell you why. Seeds contain high levels of essential fatty acids, the full profile of amino acids needed to form complete and digestible protein, plus vitamins A, B, C […]
From YorkMix. It caused such criticism that the developers pledged to go back to the drawing board. Today the controversial plan to turn part of Stonebow House in York into a food and dining hall has returned – aiming to turn an “eyesore” into a “social city hub”. And Try Market Halls say the […]
By Patsy Westcott in SAGA Magazine. Fermentation is one of the hottest food trends right now – but why all the fuss about this ancient method of food preservation? Fermented foods have been part of our diet ever since our ancient ancestors cottoned on to the idea that fermentation helped to preserve food. With the […]
By Daniel Coughlin in SAGA Magazine. Unless you’re escaping to sunnier climes for the winter, chances are your vitamin D levels will need topping up. here are 10 ways to boost reserves. Our bodies convert sunlight to vitamin D but from October to March, the sun in the UK doesn’t contain enough UVB radiation […]
From YorkMix. Food, drink, music and family fun are back on the menu as the York Food & Drink Festival returns. The ten days of the festival are packed with fabulous flavours, delicious demonstrations, tasty trails and lots of free samples! Festival director Michael Hjort said: We’re delighted to offer a rather different […]
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The first Monday of each month at 11 am - The York ME Community Coffee Club at Bar Convent, 17 Blossom Street, York.
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The third Wednesday of each month - at 2 pm - The York ME Community Coffee Club at The Novotel, York.
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Weekly - Every Wed, 8 pm - 9 pm on Twitter, ME Awareness Hour using the #MEAwarenesshour hashtag.
Access Your Life is a site run by Felix and Lauren, with a little input from Fliss, the dog!
The site is full of great information that I feel will benefit many within The York ME Community and beyond.
To go to Access Your Life, click on the link below:
Would you like to help your local community ?
By current research, there are around 800 people in the York area suffering from Myalgic Encephalomyelitis (ME). This might include the work colleagues you haven't seen in some time, or your friends and family, maybe one of the lads who hasn't turned up for five-a-side for a while.
There's information at the top of this site to explain how it affects people and ruins lives. These are your neighbours; would you like to help ? To read the rest of this request, click on the link below:
The social element of this site is via a Facebook Group called The York ME Community.
This is available to people in the York area looking for help, advice and support, whether those diagnosed, family or friends. We are a close knit group who discuss more than just ME, as we like to think that we are not defined by this illness. We discuss every day things, have a laugh, and try to meet via our Coffee Club if the beast that is ME allows us ! If you apply to join, please check your Facebook messages, as there are a couple of automated questions to be answered before being welcomed to the group.
Please don't apply to join if you are promoting your preferred remedy. I'm happy to mention your company within the group, but it's for individuals to choose what they wish to try in their battle to seek an improvement in their health.
Some companies and organisations offer discounts for disabled people and their carers – click on the link below to find out what you could save.
Carol Monaghan SNP spoke in Westminster Hall about the need for support and funds for ME Research. Many other MP's spoke passionately on the subject as it affects their constituents UK wide. Click on the link below to watch the full debate.
STOP PRESS: FULL DEBATE TO BE HELD IN PARLIAMENT ON THURSDAY 24TH JANUARY 2019
Anil's interview gives a great insight to the man and his ME mission !
Link to Anil van der Zee's Interview
Having read the above interview, I'd recommend a visit to David's Blog below:
After a pretty tough time, the guys riding as part of The Nomadic Knights group, made it to Everest Base Camp. I hope we can use this story to gain interest from media sources to help raise awareness for us all. It's the least the guys deserve for all their efforts.
19 May 2017.
“Very pleased to report that we reached Mt Qomolangma (Everest) Base Camp with the ME Awareness Flag at 1528hrs on Thursday 18th May. Three and a half hours after we had planned but time in Tibet can sometimes be very fluid. The base camp is located at 5200m, walking to the final destination was challenging in itself due to low oxygen levels.
Conditions at base camp were extremely windy (good for flag flying) with intermittent clouds with no particular destination in mind and the sun was not ideal for photos."
Debbie North, our TOG wheelchair walk designer uses an off-road mobility scooter, also called an all terrain hopper to access the countryside and wants to inspire other wheelchair users to do the same through her wheel friendly walks.
Wheelchair friendly walks are a selection of walks that the TOG team have carefully selected for families using pushchairs, wheelchairs or bicycles.
The Jen Brea ME film 'Unrest', about her story and struggle with Myalgic Encephalomyelitis (ME) was shown to a sellout audience at City Screen York on 1st November, prompting a second showing on 16 November. This film has won awards at The Sundance Film Festival and is a must see for all wishing and needing to know more about an illness affecting over 800 people in the York area alone.
Although still showing around the UK and worldwide, it's now also available on Amazon and iTunes and through the Unrest UK Store on DVD and Blu-Ray by clicking on this link: Unrest site to save having to undertake a journey to the cinema.,
Please spread the word through your GP, MP, Company HR Teams and any other people of influence you may know. Thank you.
One of the major questions raised is the blending of ME with CFS. This chart on the Hummingbirds site illustrates the many differences between Chronic Fatigue Syndrome (CFS) and Myalgic Encephalomyelitis (ME).
For confidential and independent advice for everyone on welfare benefits, debt, housing, employment, consumer rights and much more.
Welcome to Broken Puppet Theatre Company.
We are a small team of creative professionals who live with chronic illness and invisible disabilities. We work with theatre, film and puppetry to support children, families, schools and communities who are learning to share their world with chronic illness and invisible disabilities too. Our aim is to provide creative expression and escapism wherever they are needed.
Helpfulpeeps is a platform that allows people in any given area to ask for and offer help to one another. Although this is a nationwide facility, by adding your street name, the system automatically drops a pin on that location and you only see posts from a 20 mile radius. You have the option to narrow or widen this radius. I hope this is a useful facility for members of our Community.
If you're given the time and space to talk things through, you can find a way through your problems.
Samaritans help you to explore your options so you can make decisions that are right for you.
Upon request, North Yorkshire Fire & Rescue Service can carry out a home fire safety visit to your home, completely free of charge. This visit involves fire service staff coming to your home to give you advice on fire safety in the home, actions you can take to reduce the risk of fire, and discuss escape routes should fire occur.
If you don't aim to take up this offer, please at least check the batteries on your smoke alarms on a regular basis. If you want to read more, click on the link below:
FEATURED ARTICLE
By
Sally Duffin
Hello to all the members of York ME Community. I’m Sally, a Naturopathic Nutritional Therapist at ‘Nutrition in York’ and Bill has asked me to share some nutritional therapy approaches for managing ME.
Many nutritional therapists – myself included – are trained in the Functional Medicine approach to healthcare which means we are less concerned with the name of a condition (ME, CFS etc.) and more interested in the underlying cause and contributing factors of the condition. (more…)
The York Mobility Scooter Club has been set up as a Facebook Group with the idea of being somewhere for anyone in the York area to talk about all things mobility scooters. From those first steps of being so wary of taking that first step of admitting that you need help, to the best scooter for individual needs. All reviews are welcomed !
It will also be where we can talk about accessibility issues in York for scooters, and if this develops into a strong theme, I may open a separate group on that subject.
My aim is also ideally in time to meet up for some sort of wheeled rambles, and so suggestions of sensible routes would be welcomed.
I don't aim to set many rules, just that we all support each other and lend a help when we can. Please feel free to invite others who are aiming to get a scooter, or have one, for whatever reason, and let's see where this little adventure takes us.
To read the ME Research Summary 2019 by ME Action covering the last ten years, click on the link below:
There is a great need for the training of those with a Duty of Care to those with Myalgic Encephalomyelitis (ME) or Chronic Fatigue Syndrome (CFS). For those in Healthcare, Education or Business with this Duty of Care, this E-Learning Course is the one for you.
To learn more, click on the link below:
AccessAble in York provides information on Shopmobility, Talking Signs, Dial & Ride, York Wheels and accessible Hotels, Restaurants, Public Toilets and a whole lot more in our city. To find out more before setting off for York, click on the link below:
The York Inset Scooter Club is based in York (UK) and has a membership of around 250.
They are a thriving, active club and look to support local charities when they can. They have an annual Mods and Rockers charity ride out, and for 2019 supported The York ME Community.
They headed off from The York Eye (Clifford’s Tower) on Sun 28 Apr on a run out to the coast, set off by the Mayor of York and the York Normandy Veterans.
All money raised will be used to raise the profile of ME in York through posters being produced and put up in local business premises, clubs, schools, GP Surgeries and venues.
Last season was a great success with 15 teams involved, and this season is going brilliantly with the aim of spreading ME Awareness. As a bonus, we have also raised £725.00 for Invest in ME Research.
This is a call out to all York Businesses, Clubs and Venues to put it in your diaries for next season and support your local ME Community.
To join in for next season and help raise ME Awareness in your local area, have a look at the tab at the top of the site for more information.
Euan’s Guide is the disabled access review website used by disabled people to review, share and discover accessible places to visit. The charity was founded in 2013 by Euan MacDonald, who is a powerchair user, and his sister Kiki. As Euan’s access requirements changed, both went in search of recommendations for accessible places to go, but a platform for this kind of information didn’t exist. Built as a friendly and honest alternative to hours of web searching and phone calls before visiting somewhere new, Euan’s Guide now has thousands of disabled access reviews and listings for places all over the UK and beyond.
To go to Euan's Website, click on the link below:
Our Coffee Club meets twice a month for a cuppa and a natter.
Dates and times will always be shown in our diary at the top left of this site.
The Coffee Club is open to anyone either with ME, or friends and family looking for support from people who understand.
Due to the nature of the illness, there will be times when numbers are low, but if you'd like to attend, either just turn up on the day, or email me at bill@York-ME-Community.org. If you're a member of our Facebook Group, you can of course say you'll be going via the notice in the Events area.
Help us raise money for The York ME Community to pass onto Invest in ME Research every time you shop online, and it doesn't cost you a penny !
By using the link below, when you shop online with a huge number of shops, they will pass a percentage of your purchase cost to our fund. THIS MONEY IS DONATED BY THE RETAILERS, NOT YOU !
Written Question to the Department of Health and Social Care on 22 May 2018 by Carol Monaghan SNP, answered by Caroline Dinenage Minister of State (Department of Health and Social Care)
| Financial Year | £ |
| 2014-15 | 280,442 |
| 2015-16 | 295,626 |
| 2016-17 | 130,958 |
A TRUE STORY BY JESSICA TAYLOR-BEARMAN
Book Description: From a darkened world, bound by four walls, a young woman called Jessica tells the tale of her battle against the M.E Monster. The severest form of a neuro immune disease called Myalgic Encephalomyelitis went to war with her at just 15 years old. From beneath her dark glasses, Jessica glimpses a world far different from the one she remembers as a teenage school girl. This true story follows her path as she ends up living in hospital for years with tubes keeping her alive.
This harrowing story follows the highs and lows of the disease and being hospitalised, captured through her voice activated technology diary called `Bug' that enables her to fulfil her dream of one day becoming an author.
It provides a raw, real-time honesty to the story that would be impossible to capture in hindsight.
To order the book through Jessica's site, click on the link below:
This book is also now available at York Library
An album of original songs and poetry composed and performed by people with M.E. from all over the world, was released to mark and support ME Awareness Day, 12 May 2018.
It was hoped that by releasing this album, it will help those with ME to know that they are not alone, and for others to understand the nature of this illness and give what support they can.
Please consider downloading the album, or even a couple of tracks to help raise awareness of ME, and much needed funds for research into this illness that affects so many, but is understood by so few who may be in positions to help. Proceeds to ME Research and Education. All further information and questions, please direct via the website below: The album can be downloaded now from:
PLEASE SPREAD THE WORD !
I had a very productive meeting with Cllr Aspden and Cllr Runciman of City of York Council where they have stated they will back efforts to raise awareness of ME, understanding that much more is needed to increase understanding of this debilitating disorder, in York and across the UK.
The motion put before Council with regard to support in raising ME Awareness in York was passed unanimously !
The City of York Council followed through on their promise by lighting up the city walls and Clifford's Tower in blue over ME Awareness Week.
Are you a member of a York based Sports or Fitness Club ? Looking for a local cause to run or do an activity for ? The York ME Community are looking to be 'adopted' by anyone willing to maybe run for us and help raise our profile. There are around 800 people of all ages in the York area who would be so very grateful for your help.
We had a brilliant day at York Explore Library raising ME Awareness. Lots of interest in what we're doing from local health groups, charities, the council and most heart warmingly, from those dealing with ME themselves who now know we're here for them.
If you'd like to hear more about ME, get in touch.
Time For Unrest: Why Patients With ME Are Demanding Justice.
If you want the full story on ME and will read just one article about it this year, please make it this one,
Are you on Twitter? Learn more about ME every Wednesday, 8 pm - 9 pm (UK) using #MEAwarenesshour
Mike Harley is a very special guy who's running a marathon in each EU country to raise awareness and funds for Invest in ME Research. Please visit his site to learn more.
To go to the Government's Disability Benefits Advice Guide, click on the link below: