From Disability Horizons. An accessible rail system must be prioritised as part of the economic recovery from Covid-19, says disability charity Leonard Cheshire. At present, 41% of railway stations in Britain are still not step-free and the Government is still set to miss its 2030 target on creating step-free journeys for disabled people by 40 years […]
From YorkMix Sport. York City are ready to ‘grasp with both hands’ the opportunity to bring fans back to games. When England comes out of lockdown, stadiums are to be allowed to welcome limited numbers of spectators, if they are in a Tier 1 or 2 area. Stadiums in Tier 1 will be […]
There’s a new group in town ! The York Disability Rights Forum has been set up by those in the Disabled Community of York to help make life a little easier for others whose live are affected by a disability or by restrictions placed upon us by our environment, in and around York. We […]
From The Yorkshire Times. Purple Tuesday, the UK’s accessible shopping day, is taking place on 3rd November. This year, Junction 32 is highlighting the measures currently in place to raise awareness of the needs of disabled customers. Nearly one in five people in the UK have a disability or impairment, and there are very […]
From YorkMix. Your Shoes will invite audiences to explore York from the perspectives of different York citizens. How is it to go shopping as a mother? How does someone with a disability experience the city? How does a Refugee experience York differently compared to someone who has lived here their entire lives? Through asking […]
At the request of York Independent Living Network, we’re supporting the development of a disabled person-led forum for anyone living or working in York who identifies as disabled or as having a disability. We aim to ensure that the Forum is led by, and open to, people and allies from right across a range of […]
The York ME TGA Inter-Company Fantasy Football League The York ME Community runs an Inter-Company Fantasy Football League sponsored by TGA Mobility. This is to help raise awareness of the illness that affects around 250,00 people in the UK, and 800 to 1,000 people of all ages in the York area alone. Companies enjoyed […]
By David Nicholson in YorkMix. To mark the release of Human Contact, the debut album by York band The Howl & The Hum, David Nicholson takes a listen and remembers where, for him, it all began Wednesday night for me is the quiz with Tom Adams in the chair at The Swan in Bishy Road, […]
Just to let you know that Cliffords Tower in York will be lit up in blue from 11th to 17th May in recognition of ME Awareness Week.
By Katie Strick in MSN MSN Lifestyle. Calories consumed: 2,250 (mostly rosé). Minutes spent queueing for the supermarket: 28. Kilometres run in hour of state-mandated exercise: 5.3 (so I could tell Instagram I’d donated to the NHS). Zoom calls completed: seven (if we include the school-mates quiz on Houseparty). It’s funny, trying to summarise […]
From TGA Mobility. On a morning, one thing is as cyclical as the sunrise – cocker spaniels Tyler and Maya will be roaming the outdoors on their daily walk, followed by Lisa Vesty on her trusty TGA Vita S. Lisa isn’t alone of course. Indeed when the lockdown started, the other dog walkers […]
From The Life of Pippa Blog. I firmly believe that there’s no such thing as too many acts of kindness. In light of our current circumstances, it’s been so heartwarming to see that a decent proportion of the general public are shining bright and coming forward to volunteer, doing all they can to help […]
From YorkMix. A pub near York that was set to be demolished could now enjoy a new lease of life as a drive-thru coffee shop. Punch Partnerships Ltd, which owns the Four Alls Inn on the A64, wanted to tear it down and replace it with five houses. The plan drew criticism from the York […]
From YorkMix. Community spirit is alive and well in York in the time of Covid-19. Groups are being set up to help fellow residents affected by coranavirus. There is now a York Covid-19 Mutual Aid group, with the aim of supporting vulnerable people in the city through the outbreak. George Turner explained more on the […]
Welcome to the March 2020 news update for York Carers Centre. News Carers socials for 26 to 40 (ish) year olds We’re delighted to have received funding to offer socials for 26 to 40 year old carers in York. Our next one is at the Escape Room, Micklegate on Thursday 26 March early evening […]
I’m hoping to be on BBC Radio York on 103.7 FM on Fri between 7 and 10 pm. As my head doesn’t always work properly at that time of the day, they’ve kindly arranged for a pre-record on Thur afternoon. I just hope I manage to put some sensible words together about ME ! #MEAwareness.
By Mandy Appleyard in The Telegraph. Older people face a crisis of loneliness but even a quick chat can make a big, big difference. Here’s how JJ and Steve formed a connection through Age UK Bromley and Greenwich JJ, 80, is a retired construction worker from Eltham in London When my wife Madeleine died, […]
From Lake District National Park. What are Miles without Stiles? These are 48 routes across the National Park suitable for people with limited mobility, including wheelchair users, families with pushchairs, and the visually impaired. Use the interactive map below to explore the routes available or choose from the menu on the left. Distances […]
Good evening folks ! I got myself out of the house today on the scooter to take Marlie for a bit of a walk. I have a route that takes me past the shops on Broadway in Fulford. I was aware of the opening of a coffee shop at No 52 Broadway, next to the […]
The Legion Man He stands with pride As well he might Medals upon his chest With memories of the fallen Who now are laid to rest The Legion Man Does all he can To make the world aware To open their eyes, to realise To take time out to care Passers-by, try to miss […]
By Daniel Willers in The Press. York will pay its respects to fallen soldiers and ex-service personnel at the city’s official Remembrance Sunday service and parade this weekend. The Lord Mayor of York, Cllr Janet Looker, the Civic Party and City of York Council representatives will be among those attending the service and […]
By Mark Savage in BBC News. For years, deaf and disabled music fans have faced huge barriers when it comes to booking concert tickets. Whether it’s the requirement to call premium rate help lines, or having to provide evidence of their disabilities, the experience has put many fans off. Now Ticketmaster is introducing […]
By Soph in Mummying and M.E. Out on a shopping trip recently with a good friend, she suggested I put together a list of the things I’ve learnt to be essential when getting out and about. You see I’ve always been fiercely independent, not thinking twice about the ability to leave the […]
There are so many questions banded about as to the story of Myalgic Encephalomyelitis (ME), but this video gives a better and fuller insight than most. Once you've watched it, please copy the link and spread the word to raise awareness. Thank you.
To watch this video, click on the link below:
As has been stated by Dr Sarah Jarvis and others, it’s possible that the Coronavirus could trigger M.E. in those people who get through the worst of the virus, and are seen to be in the recovery phase.
Please do not think that once you’re in that phase that you should just get back to your normal routine. As someone who has just passed his 14th anniversary with ME, the most important thing you can do is rest.
Resting should be from both physical and mental / cognitive activities.
Do not push beyond what your body is telling you. Your head might tell you something different, and you’ll be keen to make up for lost time, but please take advantage of this lockdown to recover properly. If you push beyond your limited energies now, and M.E. follows, it could change your life for years to come.
Be sensible and rest up. Take care.
The York Access Group is a Facebook group which is aimed at improving Accessibility in York for those trying to get around with a Disability. Feedback on bad, and good Accessibility of shops, streets, cafes, restaurants and any other facilities are welcomed.
It's also the place to discuss mobility aids from walking sticks to scooters. If this sounds like a group for you, you're most welcome !
As we all know, especially those who need Wheelchairs or Mobility Scooters to get around, vehicles parking on pavements and blocking our way can have a major effect on our lives. It can mean that we are likely to put ourselves in danger by going onto busy roads because of inconsiderate parking. 
If you live in York, and you see a vehicle parked across a dropped kerb, call the council's hotline on 0800 138 1119 and the Civil Enforcement Officers will respond and are able to issue tickets. We know this won't help you right then and there, but the hope is that the more people report it, the more people get tickets, then slowly behaviour will start to change.
Would you like to help your local community ?
By current research, there are around 800 people in the York area suffering from Myalgic Encephalomyelitis (ME). This might include the work colleagues you haven't seen in some time, or your friends and family, maybe one of the lads who hasn't turned up for five-a-side for a while.
There's information at the top of this site to explain how it affects people and ruins lives. These are your neighbours; would you like to help ? To read the rest of this request, click on the link below:
After a pretty tough time, the guys riding as part of The Nomadic Knights group, made it to Everest Base Camp. I hope we can use this story to gain interest from media sources to help raise awareness for us all. It's the least the guys deserve for all their efforts.
19 May 2017.
“Very pleased to report that we reached Mt Qomolangma (Everest) Base Camp with the ME Awareness Flag at 1528hrs on Thursday 18th May. Three and a half hours after we had planned but time in Tibet can sometimes be very fluid. The base camp is located at 5200m, walking to the final destination was challenging in itself due to low oxygen levels.
Conditions at base camp were extremely windy (good for flag flying) with intermittent clouds with no particular destination in mind and the sun was not ideal for photos."
The York ME Community
@YorkMEAwareness
Carol Monaghan SNP spoke in Westminster Hall about the need for support and funds for ME Research. Many other MP's spoke passionately on the subject as it affects their constituents UK wide. Click on the link below to watch the full debate.
There has since been an All Party Parliamentary Group (APPG) formed to discuss the way ahead in helping MP's Constituents with ME. Contact your MP to ensure they're representing you !
One of the major questions raised is the blending of ME with CFS. This chart on the Hummingbirds site illustrates the many differences between Chronic Fatigue Syndrome (CFS) and Myalgic Encephalomyelitis (ME).
Time For Unrest: Why Patients With ME Are Demanding Justice.
If you want the full story on ME and will read just one article about it this year, please make it this one,
Are you a member of a York based Sports or Fitness Club ? Looking for a local cause to run or do an activity for ? The York ME Community are looking to be 'adopted' by anyone willing to maybe run for us and help raise our profile. There are likely to be around 800-1,000 people of all ages in the York area with ME who would be so very grateful for your help.
We had a brilliant day at York Explore Library raising ME Awareness. Lots of interest in what we're doing from local health groups, charities, the council and most heart warmingly, from those dealing with ME themselves who now know we're here for them.
If you'd like to hear more about ME, get in touch.
Dr Byron Hyde has dedicated his medical career to looking into M.E.
In this interview Dr. Byron Hyde, founder of the Nightingale Research Foundation in Ottawa, Canada, emphasizes the brain and enteroviruses. He also emphasizes his belief that Myalgic Encephalomyelitis and Chronic Fatigue Syndrome are separate issues.
To watch this interview on YouTube, click on the link below:
Those within the ME Community have always known how damaging being prescribed Graded Exercise Therapy (GET) can be to their future health. We have a broken energy production system and therefore normal rules do not apply. The PACE Trial tried to show that it helps, but has been debunked by scientists and researchers worldwide. The PACE Trial in fact is now held up as an example of how NOT to conduct such trials.
To understand better the truth of GET and The PACE Trial, click on the link below to watch two short videos.
We are the ME/CFS Biomedical Partnership, a collaboration between researchers and people with ME/CFS, carers and the public.
The DecodeME DNA study aims to help us understand the disease and ultimately find treatments.
To read more, or get involved, click on the link below:
This is open to any organisation looking to have a bit of fun whilst supporting your local community. We're underway now for the current season but will be recruiting teams for our 6th season around July 2021. Although the aim is spreading ME Awareness, as a bonus we have also raised over £920.00 for Invest in ME Research, so why not join us ?
To join in for next season, click on the Fantasy Football League tab at the top of the site for all the information you'll need.
Written Question to the Department of Health and Social Care on 22 May 2018 by Carol Monaghan SNP, answered by Caroline Dinenage Minister of State (Department of Health and Social Care)
| Financial Year | £ |
| 2014-15 | 280,442 |
| 2015-16 | 295,626 |
| 2016-17 | 130,958 |
To read the ME Research Summary 2019 by ME Action covering the last ten years, click on the link below:
The York Inset Scooter Club is based in York (UK) and has a membership of around 250.
They are a thriving, active club and look to support local charities when they can. They have an annual Mods and Rockers charity ride out, and for 2019 supported The York ME Community.
They headed off from The York Eye (Clifford’s Tower) on Sun 28 Apr on a run out to the coast, set off by the Mayor of York and the York Normandy Veterans.
All money raised will be used to raise the profile of ME in York through posters being produced and put up in local business premises, clubs, schools, GP Surgeries and venues.
I had a very productive meeting with Cllr Aspden and Cllr Runciman of City of York Council where they have stated they will back efforts to raise awareness of ME, understanding that much more is needed to increase understanding of this debilitating disorder, in York and across the UK. I will be aiming to keep up the pressure to ensure future support.
The motion put before Council with regard to support in raising ME Awareness in York was passed unanimously !
The City of York Council has followed through on their promise by lighting up the city walls and Clifford's Tower in blue over the ME Awareness Weeks since that meeting.
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The first Monday of each month at 11 am - The York ME Community Coffee Club at Bar Convent, 17 Blossom Street, York. There is parking available just around the corner at Nunnery Lane Car Park. Blue Badge holders can park for free.
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The third Wednesday of each month - at 2 pm - The York ME Community Coffee Club at The Novotel, York. Parking is free at the hotel.
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Weekly - Every Wed, 8 pm - 9 pm on Twitter, ME Awareness Hour using the #MEAwarenesshour hashtag.
