The York ME TGA Inter-Company Fantasy Football League The York ME Community runs an Inter-Company Fantasy Football League sponsored by TGA Mobility. This is to help raise awareness of the illness that affects around 250,00 people in the UK, and 800 to 1,000 people of all ages in the York area alone. Companies enjoyed […]
By David Nicholson in YorkMix. To mark the release of Human Contact, the debut album by York band The Howl & The Hum, David Nicholson takes a listen and remembers where, for him, it all began Wednesday night for me is the quiz with Tom Adams in the chair at The Swan in Bishy Road, […]
Just to let you know that Cliffords Tower in York will be lit up in blue from 11th to 17th May in recognition of ME Awareness Week.
By Katie Strick in MSN MSN Lifestyle. Calories consumed: 2,250 (mostly rosé). Minutes spent queueing for the supermarket: 28. Kilometres run in hour of state-mandated exercise: 5.3 (so I could tell Instagram I’d donated to the NHS). Zoom calls completed: seven (if we include the school-mates quiz on Houseparty). It’s funny, trying to summarise […]
From TGA Mobility. On a morning, one thing is as cyclical as the sunrise – cocker spaniels Tyler and Maya will be roaming the outdoors on their daily walk, followed by Lisa Vesty on her trusty TGA Vita S. Lisa isn’t alone of course. Indeed when the lockdown started, the other dog walkers […]
From The Life of Pippa Blog. I firmly believe that there’s no such thing as too many acts of kindness. In light of our current circumstances, it’s been so heartwarming to see that a decent proportion of the general public are shining bright and coming forward to volunteer, doing all they can to help […]
From YorkMix. A pub near York that was set to be demolished could now enjoy a new lease of life as a drive-thru coffee shop. Punch Partnerships Ltd, which owns the Four Alls Inn on the A64, wanted to tear it down and replace it with five houses. The plan drew criticism from the York […]
From YorkMix. Community spirit is alive and well in York in the time of Covid-19. Groups are being set up to help fellow residents affected by coranavirus. There is now a York Covid-19 Mutual Aid group, with the aim of supporting vulnerable people in the city through the outbreak. George Turner explained more on the […]
Welcome to the March 2020 news update for York Carers Centre. News Carers socials for 26 to 40 (ish) year olds We’re delighted to have received funding to offer socials for 26 to 40 year old carers in York. Our next one is at the Escape Room, Micklegate on Thursday 26 March early evening […]
I’m hoping to be on BBC Radio York on 103.7 FM on Fri between 7 and 10 pm. As my head doesn’t always work properly at that time of the day, they’ve kindly arranged for a pre-record on Thur afternoon. I just hope I manage to put some sensible words together about ME ! #MEAwareness.
By Mandy Appleyard in The Telegraph. Older people face a crisis of loneliness but even a quick chat can make a big, big difference. Here’s how JJ and Steve formed a connection through Age UK Bromley and Greenwich JJ, 80, is a retired construction worker from Eltham in London When my wife Madeleine died, […]
From Lake District National Park. What are Miles without Stiles? These are 48 routes across the National Park suitable for people with limited mobility, including wheelchair users, families with pushchairs, and the visually impaired. Use the interactive map below to explore the routes available or choose from the menu on the left. Distances […]
Good evening folks ! I got myself out of the house today on the scooter to take Marlie for a bit of a walk. I have a route that takes me past the shops on Broadway in Fulford. I was aware of the opening of a coffee shop at No 52 Broadway, next to the […]
The Legion Man He stands with pride As well he might Medals upon his chest With memories of the fallen Who now are laid to rest The Legion Man Does all he can To make the world aware To open their eyes, to realise To take time out to care Passers-by, try to miss […]
By Daniel Willers in The Press. York will pay its respects to fallen soldiers and ex-service personnel at the city’s official Remembrance Sunday service and parade this weekend. The Lord Mayor of York, Cllr Janet Looker, the Civic Party and City of York Council representatives will be among those attending the service and […]
By Mark Savage in BBC News. For years, deaf and disabled music fans have faced huge barriers when it comes to booking concert tickets. Whether it’s the requirement to call premium rate help lines, or having to provide evidence of their disabilities, the experience has put many fans off. Now Ticketmaster is introducing […]
By Soph in Mummying and M.E. Out on a shopping trip recently with a good friend, she suggested I put together a list of the things I’ve learnt to be essential when getting out and about. You see I’ve always been fiercely independent, not thinking twice about the ability to leave the […]
By Natasha Hinde in Huffpost. Our readers care about the environment, but making sustainable choices isn’t always as straightforward as we’d like. Swap Shop is our regular series hoping to tackle that, each week a HuffPoster will take on a new green challenge and write about their journey to live a more […]
From Visit York. About Behold the single most important object in the modern age and meet the humble makers who built the modern world from their kitchen tables, in Brass, Steel and Fire at National Railway Museum. Meet Rocket, the world-changing locomotive which kick started a golden era of innovation. Journey through […]
By Chloe Laversuch at Minster FM. The theatre say they’ve suffered “unsustainable losses” from it’s recent seasons in York and at Blenheim Palace. THE closure of Shakespeare’s Rose Theatre, which has gone into liquidation, “will be a loss” for York. Organisations have reacted with sorrow to news that the theatre – which […]
By George Dodd in The Press. THE “world’s first” ghost shop has opened its doors in York – stocking more than 1,000 spooky collectables. The York Ghost Merchants, located in the former Pinder and Scott’s bakery shop at number 6 Shambles, stocks unique ghost-related souvenirs for visitors to take home. The shop has been created and […]
The York ME Community runs an Inter-Company Fantasy Football League sponsored by TGA Mobility. This is to help raise awareness of the illness that affects around 250,000 people in the UK, and 800 in the York area alone. Of those around York, 200 are likely to be severe, meaning house or bed bound. […]
From Which? Which? has found a range of home and tech products that seriously failed to impress in our tough lab tests – but online customer review scores might have you believe they’re a sure thing. Five products that scored so poorly in our tests we rated them as Don’t Buys looked largely […]
By Amber Blackburn in The Mighty. When it comes to social media, we often hear about the negative aspects of each platform –like the fact that social media is full of highlight reels rather than what’s actually real. We only get to see what influencers choose to show us, which is usually only the […]
As you may know, a consultation process is under way with regard to the revamping of Clifford’s Tower area of York. This week I was invited by English Heritage to add my input with regard to accessibility for the area. The revamp will include removing the car park currently alongside the tower, which is […]
From Independent Age. Many older people are missing out on thousands of pounds that they’re due. Our free guides can help you boost your income by claiming benefits you may not have realised you’re entitled to – even if you have savings or own your own home. To read the rest of this story, click […]
By Ann Innes in The ME Association. I’m Ann Innes, consultant welfare rights adviser to the ME Association and formerly to Stockport ME Group. I run a private service to support people throughout the claims process, from benefit entitlement checks, application, preparing for the face-to-face assessment and attending as an advocate, all the […]
By Georgina & Phoebe in Let’s Do It for Myalgic Encephalomyelitis. Even a live Second World War grenade couldn’t stop us! On Sunday the 28th of July we began our quest to conquer a 25 mile kayak to raise money for Invest In ME Research. This journey consisted of a very early start, […]
By Chloe Tear. Oh how I remember this time well! I actually graduated on Wednesday, but preparing for the whole thing only seems like yesterday. University was such an unknown step, even if it was a step I knew I wanted to take. My health at the time was far from ideal and […]
From the Life of Pippa Blog. Ever since I started theatre blogging and my chronic illness-friendly reviews, I’ve had messages asking about how I book my access tickets and ensure my needs are met. It’s one of those things that I’ve been doing for so long now that it’s become second nature, so […]
By Newsroom24. Bees are often seen as one of humanity’s biggest enemies, and yet they help to keep us alive. You don’t have to be a tree hugger to respect the environment that you live in. For two million years, before the agricultural revolution, humans foraged the land and brought thousands of species […]
By YorkMix in Entertainment, Music Shakespeare’s Rose Theatre has opened, bring four new plays to the pop-up theatre in the shadow of Clifford’s Tower. Running from Tuesday 25 June – Sunday 1 September 2019, the programme features Hamlet, Henry V, The Tempest and Twelfth Night. It was opened by the York Town Crier Ben Fry and Linda Fenwick, High Sheriff of North […]
By Pippa in her Life of Pippa Blog. Whilst this may be a bit of a niche post, I wanted to share my eventful first experience of public transport abroad as a wheelchair user, travelling from Disneyland Paris to Paris Gare Du Nord. It was a lack of clear information online that prompted […]
There are so many questions banded about as to the story of Myalgic Encephalomyelitis (ME), but this video gives a better and fuller insight than most. Once you've watched it, please copy the link and spread the word to raise awareness. Thank you.
To watch this video, click on the link below:
To go to the Government's Disability Benefits Advice Guide, click on the link below:
MEpedia is a project founded by MEAction, powered by the patient community, and built by volunteers including patients, students, and researchers. We are crowd-sourcing a knowledge base on the history, science and medicine of ME, CFS, and related diseases. Jump in by clicking on the link below:
As has been stated by Dr Sarah Jarvis and others, it’s possible that the Coronavirus could trigger M.E. in those people who get through the worst of the virus, and are seen to be in the recovery phase.
Please do not think that once you’re in that phase that you should just get back to your normal routine. As someone who has just passed his 14th anniversary with ME, the most important thing you can do is rest.
Resting should be from both physical and mental / cognitive activities.
Do not push beyond what your body is telling you. Your head might tell you something different, and you’ll be keen to make up for lost time, but please take advantage of this lockdown to recover properly. If you push beyond your limited energies now, and M.E. follows, it could change your life for years to come.
Be sensible and rest up. Take care.
We are a group of physiotherapists in the United Kingdom with a special interest in Myalgic Encephalomyelitis (ME).
Our website provides resources for physiotherapists, people with ME and parents or carers of those with ME.
If you wish to apply for a Blue Badge in the York area, or wish to know if you qualify, click on the link below:
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The first Monday of each month at 11 am - The York ME Community Coffee Club at Bar Convent, 17 Blossom Street, York. There is parking available just around the corner at Nunnery Lane Car Park. Blue Badge holders can park for free.
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The third Wednesday of each month - at 2 pm - The York ME Community Coffee Club at The Novotel, York. Parking is free at the hotel.
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Weekly - Every Wed, 8 pm - 9 pm on Twitter, ME Awareness Hour using the #MEAwarenesshour hashtag.
Would you like to help your local community ?
By current research, there are around 800 people in the York area suffering from Myalgic Encephalomyelitis (ME). This might include the work colleagues you haven't seen in some time, or your friends and family, maybe one of the lads who hasn't turned up for five-a-side for a while.
There's information at the top of this site to explain how it affects people and ruins lives. These are your neighbours; would you like to help ? To read the rest of this request, click on the link below:
Helpfulpeeps is a platform that allows people in any given area to ask for and offer help to one another. Although this is a nationwide facility, by adding your street name, the system automatically drops a pin on that location and you only see posts from a 20 mile radius. You have the option to narrow or widen this radius. I hope this is a useful facility for members of our Community.
After a pretty tough time, the guys riding as part of The Nomadic Knights group, made it to Everest Base Camp. I hope we can use this story to gain interest from media sources to help raise awareness for us all. It's the least the guys deserve for all their efforts.
19 May 2017.
“Very pleased to report that we reached Mt Qomolangma (Everest) Base Camp with the ME Awareness Flag at 1528hrs on Thursday 18th May. Three and a half hours after we had planned but time in Tibet can sometimes be very fluid. The base camp is located at 5200m, walking to the final destination was challenging in itself due to low oxygen levels.
Conditions at base camp were extremely windy (good for flag flying) with intermittent clouds with no particular destination in mind and the sun was not ideal for photos."
The aim is to share ideas in promoting various disability services, whilst continuing to raise Awareness of ME through both organisations. Through their #Think Access group and our own group, The York Access and Mobility Club, we will be looking at accessibility issues in the York & Harrogate areas, with the aim of advising on suggestions for change.
Disability Action Yorkshire aim to find solutions for disabled people whatever their aspirations. Whether you are a disabled person or support someone who is, they are here to support you. They provide a range of services, from training to accommodation and help with independence, among others. To find out more about Disability Action Yorkshire, click on the link below:
As we all know, especially those who need Wheelchairs or Mobility Scooters to get around, vehicles parking on pavements and blocking our way can have a major effect on our lives. It can mean that we are likely to put ourselves in danger by going onto busy roads because of inconsiderate parking. 
If you live in Fulford York, the details of your local PCSO are below, and he should be contacted in the first instance. If he is not on duty, you may be dealt with by whoever is on duty. If you live in other areas of York, ring 101 and ask for the PCSO covering your area. In all cases, you will be required to give as much information about the vehicle and location as possible. You will NOT need to stay by the vehicle till the police arrive.
Simon Hall
PCSO 5648
North NPT
NORTH YORKSHIRE POLICE
Dial 101, press option 2 and ask for him by his full name or collar number
If using his collar number please state each number individually
Access Your Life is a site run by Felix and Lauren, with a little input from Fliss, the dog!
The site is full of great information that I feel will benefit many within The York ME Community and beyond.
To go to Access Your Life, click on the link below:
Carol Monaghan SNP spoke in Westminster Hall about the need for support and funds for ME Research. Many other MP's spoke passionately on the subject as it affects their constituents UK wide. Click on the link below to watch the full debate.
There has since been an All Party Parliamentary Group (APPG) formed to discuss the way ahead in helping MP's Constituents with ME. Contact your MP to ensure they're representing you !
Debbie North, our TOG wheelchair walk designer uses an off-road mobility scooter, also called an all terrain hopper to access the countryside and wants to inspire other wheelchair users to do the same through her wheel friendly walks.
Wheelchair friendly walks are a selection of walks that the TOG team have carefully selected for families using pushchairs, wheelchairs or bicycles.
The Jen Brea ME film 'Unrest', about her story and struggle with Myalgic Encephalomyelitis (ME) is available on Amazon and iTunes and through the Unrest UK Store on DVD and Blu-Ray by clicking on this link: Unrest site
Please spread the word through your GP, MP, Company HR Teams and any other people of influence you may know. Thank you.
One of the major questions raised is the blending of ME with CFS. This chart on the Hummingbirds site illustrates the many differences between Chronic Fatigue Syndrome (CFS) and Myalgic Encephalomyelitis (ME).
For confidential and independent advice for everyone on welfare benefits, debt, housing, employment, consumer rights and much more.
This is open to any organisation looking to have a bit of fun whilst supporting your local community. Our 4th season is pretty much done ! Although the aim is spreading ME Awareness, as a bonus we have also raised over £920.00 for Invest in ME Research, so why not join us ?
To join in for next season, click on the Fantasy Football League tab at the top of the site for more information, or just to register your interest through the email address supplied.
![old-telephone[1]](http://www.york-me-community.org/wp-content/uploads/2015/10/old-telephone1-300x240.jpg)
Helplines
COVID-19 Helpline for York - 01904 551550
or email: covid19help@york.gov.uk
NHS Health Enquiries (non emergency): 111
Samaritans: 01904 655888
Mind UK: 03001 233 393
Domestic Abuse: 03000 100 110
York Hospital: 01904 631313
Patient Transport Service: 01904 630080
Benefits Service: 01904 551556
Accessibility
Dial & Ride: 01904 551441
Shopmobility: 01904 679222
York Wheels: 01904 630080
Delivery Services
Virtual High St: www.yorkhighstreet.com
Alligator Wholefoods: 01904 654 525
Millie's Greengrocers: 07766 313 122
Food Circle: 07511 717 946
Miller Food Service: 01904 655 368
Poppy Caterers: 01347 878 628
Sheila's Greengrocers: 07470 308 824
M&K Butchers: 01904 639 300
Badger Hill Butchers: 01904 411 897
Burnholme Fisheries: 01904 421 360
Milk (Richard Cann): 07773 348 354
Services
York Electricians Ltd: 01904 373 045
Plumbtech: 07703 567 027
Yorkshire Plumbing: 08006 125 234
Local MP's
York Central Rachel Maskell: 01904 784847
York Outer Julian Sturdy: 01904 784847
Thirsk & Malton Kevin Hollinrake: 01347 666880
Councillor Keith Aspden: 01904 555 314
If you are a member of the elderly community or indeed somebody caring for an elderly person, this guide supplied by Covonia will give you important information on how to avoid getting sick, and how to care for coughs and colds should they happen.
The Changing Places Consortium launched its campaign in 2006 on behalf of the over 1/4 of a million people who cannot use standard accessible toilets. This includes people with profound and multiple learning disabilities, motor neurone disease, multiple sclerosis, cerebral palsy, as well as older people.
To use the toilet in safety and comfort, many people need to be able to access a Changing Places, which have more space and the right equipment, including a height adjustable changing bench and a hoist.
To find out more, click on the link below to go to the Changing Places website.
The York Access Group is a Facebook group which is aimed at improving Accessibility in York for those trying to get around with a Disability. Feedback on bad, and good Accessibility of shops, streets, cafes, restaurants and any other facilities are welcomed.
It's also the place to discuss mobility aids from walking sticks to scooters. If this sounds like a group for you, you're most welcome !
Time For Unrest: Why Patients With ME Are Demanding Justice.
If you want the full story on ME and will read just one article about it this year, please make it this one,
Are you a member of a York based Sports or Fitness Club ? Looking for a local cause to run or do an activity for ? The York ME Community are looking to be 'adopted' by anyone willing to maybe run for us and help raise our profile. There are likely to be around 800-1,000 people of all ages in the York area with ME who would be so very grateful for your help.
A TRUE STORY BY JESSICA TAYLOR-BEARMAN
Book Description: From a darkened world, bound by four walls, a young woman called Jessica tells the tale of her battle against the M.E Monster. The severest form of a neuro immune disease called Myalgic Encephalomyelitis went to war with her at just 15 years old.
To order the book through Jessica's site, click on the link below:
This book is also now available at York Library
To read the ME Research Summary 2019 by ME Action covering the last ten years, click on the link below:
Written Question to the Department of Health and Social Care on 22 May 2018 by Carol Monaghan SNP, answered by Caroline Dinenage Minister of State (Department of Health and Social Care)
| Financial Year | £ |
| 2014-15 | 280,442 |
| 2015-16 | 295,626 |
| 2016-17 | 130,958 |
There is a great need for the training of those with a Duty of Care to those with Myalgic Encephalomyelitis (ME) or Chronic Fatigue Syndrome (CFS). For those in Healthcare, Education or Business with this Duty of Care, this E-Learning Course is the one for you.
To learn more, click on the link below:
AccessAble in York provides information on Shopmobility, Talking Signs, Dial & Ride, York Wheels and accessible Hotels, Restaurants, Public Toilets and a whole lot more in our city. To find out more before setting off for York, click on the link below:
The York Inset Scooter Club is based in York (UK) and has a membership of around 250.
They are a thriving, active club and look to support local charities when they can. They have an annual Mods and Rockers charity ride out, and for 2019 supported The York ME Community.
They headed off from The York Eye (Clifford’s Tower) on Sun 28 Apr on a run out to the coast, set off by the Mayor of York and the York Normandy Veterans.
All money raised will be used to raise the profile of ME in York through posters being produced and put up in local business premises, clubs, schools, GP Surgeries and venues.
Euan’s Guide is the disabled access review website used by disabled people to review, share and discover accessible places to visit. The charity was founded in 2013 by Euan MacDonald, who is a powerchair user, and his sister Kiki. As Euan’s access requirements changed, both went in search of recommendations for accessible places to go, but a platform for this kind of information didn’t exist. Built as a friendly and honest alternative to hours of web searching and phone calls before visiting somewhere new, Euan’s Guide now has thousands of disabled access reviews and listings for places all over the UK and beyond.
To go to Euan's Website, click on the link below:
Help us raise money for The York ME Community to pass onto Invest in ME Research every time you shop online, and it doesn't cost you a penny !
By using the link below, when you shop online with a huge number of shops, they will pass a percentage of your purchase cost to our fund. THIS MONEY IS DONATED BY THE RETAILERS, NOT YOU !
I had a very productive meeting with Cllr Aspden and Cllr Runciman of City of York Council where they have stated they will back efforts to raise awareness of ME, understanding that much more is needed to increase understanding of this debilitating disorder, in York and across the UK. I will be aiming to keep up the pressure to ensure future support.
The motion put before Council with regard to support in raising ME Awareness in York was passed unanimously !
The City of York Council has followed through on their promise by lighting up the city walls and Clifford's Tower in blue over the ME Awareness Weeks since that meeting.
We had a brilliant day at York Explore Library raising ME Awareness. Lots of interest in what we're doing from local health groups, charities, the council and most heart warmingly, from those dealing with ME themselves who now know we're here for them.
If you'd like to hear more about ME, get in touch.
Mike Harley is a very special guy who's aim was to run a marathon in each EU country to raise awareness and funds for Invest in ME Research. Please visit his site to learn more, especially since our exit from the EU has meant a revision of his plans !
