ME Treatments And Therapies

Is Ron Davis’s ME/CFS Collaborative Research Center At Stanford Poised For A Breakthrough ?

Ron Davis

    By Cort Johnson in Health Rising.   Ron Davis’s Stanford ME/CFS Collaborative Research Center is itching to get back to full-time lab work. It’s not that Davis and his group haven’t been working. Janet Dafoe described constant Zoom calls with ME/CFS researchers, a bevy of grant applications have been completed, put some researchers – with […]

Researchers Explore Clinical And Biological Aspects Of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Research Study

  Reviewed by Emily Henderson, B.Sc in News Medical Life Sciences.   One of the major symptoms of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is post-exertional malaise (PEM), the worsening of symptoms after physical or mental activities. Using their own words and experiences, people with ME/CFS described how debilitating PEM can be in a study in Frontiers in […]

Craniocervical Instability, Neurosurgery And M.E.: Just The Facts, Please – An Editorial By Jeff Wood

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  By Jeff Wood in Health Rising.   Jeff Wood’s remarkable recovery from severe ME/CFS following spinal surgery to correct craniocervical instability (CCI) and other problems shocked the ME/CFS community. It’s safe to say that almost no one saw that coming. Since then, others, including Jen Brea and Julie Rehmeyer, have been diagnosed and undergone […]

Long-Term Saline Use Improves Cardiovascular Functioning In ME/CFS: A Workwell Case Report

Saline

    By Cort Johnson in Health Rising.   The exercise physiologists at the Workwell Foundation are pretty darn good at providing thought provoking case reports. A couple of years ago, a Workwell case report indicated that a very ill ME/CFS patient was able, using Workwell’s heart rate-based exercise program, to not just halt the steady decline […]

Dublin Mum Shares Warning Signs Of ME In Children After Daughter’s Diagnosis Aged Just 7

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  By Blathin De Paor in RSVP Live. (Should you wish to contact Paul O’Connell directly about this story, you can find him on Twitter: @PaulEOC). Chronic Fatigue Syndrome, is a condition many consider to be rare, but the reality is, it’s simply massively underdiagnosed. However, experts are seeing a huge spike in the number […]

Trial By Error: Some Stuff About Long-Covid, BMJ And ME

David Tuller

    By David Tuller, DrPH It is clear that there will be much grappling going forward over the similarities and differences between long-Covid and ME (or CFS, or ME/CFS, or whatever this illness or cluster of illnesses is being called). The two entities overlap in some ways, but no one should conflate them. We […]

‘Lockdown Is Basically What Having M.E/C.F.S Is Like’: An Interview With Sally Callow, Pt 1

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  By Paris Ali-Pilling inThe Star and Crescent.   Paris Ali-Pilling talks to Sally Callow in a two part series. In part one, Sally explains about the impact of the pandemic on her social enterprise. Sally is the founder of Stripy Lightbulb CIC and ME Foggy Dog, which offer training and aim to raise awareness about M.E/C.F.S. Interview transcribed by […]

Leeds Disabled Activist Campaigning Against Proposed Changes To Chronic Pain Treatment

Chronic Pain

  By Mark Lavery in the Yorkshire Evening Post.   A disabled activist  from Leeds who suffers from a  chronic pain condition is campaigning against major changes to the way patients like them are treated. Saba Mir, 28, of Woodhouse – who is non-binary – has suffered from ME for two years and is in severe and […]

The Brain Fog In Chronic Fatigue Syndrome (ME/CFS) Plus Even Mini Tilt Table Tests Wrack The Severely Ill

Brain Fog

By Cort Johnson in Health Rising.   The two Dutch researchers, C. Linda van Campen and Frans Visser, and Peter Rowe from the U.S., have been on a tear recently. The Van Campen/Visser team (mostly with Peter Rowe) have published 6 ME/CFS studies thus far in 2020, one in 2019 and three in 2018. This […]

Trial By Error: The Lightning Process Strikes Again

Lightning

  By David Tuller, DrPH The Lightning Process was founded more than two decades ago by Phil Parker, a British Tarot reader and specialist in auras and spiritual guides. The LP, as it is often called, could be described as “a neuro-physiological training programme based on self-coaching, concepts from Positive Psychology, Osteopathy and Neuro Linguistic Programming,” as […]

Celtic Great Davie Provan On Struggling To Cope When ME Ended His Career At 29

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  By Aidan Smith in the Scotsman. Some good things have come out of Covid. Bluer skies, clearer waters, families round the dinner table, a deeper appreciation of the NHS and also schoolteachers. Doubtless you’ll be able to think of 
others and today Davie Provan nominates one that’s close to his heart. “There’s a whole lot more […]

OMF Scientist Receives Grant Funding For ME/CFS Study

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  From The Open Medicine Foundation.   Open Medicine Foundation (OMF) is thrilled to share that our staff science liaison, Christopher W. Armstrong, PhD, has been awarded a grant to further his research into the relationship between the altered metabolism of nitrogen and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). The research will be completed at the ME/CFS Collaborative […]

Signs Of Intracranial Hypertension, Hypermobility, And Craniocervical Obstructions In Patients With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

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By Bjorn Bragee et al in Frontiers in Neurology.   The pathophysiology of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is unknown. In this study, we test the hypothesis that hyper-mobility, signs of intracranial hypertension (IH), and craniocervical obstructions may be over represented in patients with ME/CFS and thereby explain many of the symptoms.   Our study […]

How COVID-19 Could Reveal The Secrets Of Chronic Fatigue Syndrome

Fatigue

By David J Craig in Columbia Magazine.   Physicians have seen it before: in the aftermath of a viral epidemic, survivors complain of a crushing lethargy, mental fogginess, sleep difficulty, and muscle pain. Many are eventually diagnosed with myalgic encephalomyelitis, also called chronic fatigue syndrome (ME/CFS), a poorly understood condition that has no FDA-approved treatment and […]

Learning To Rest – We’ll Talk About Pacing Next Time

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From Lifechangeswithme. What is Pacing? Rest? Unfortunately with ME there isn’t one magic pill or treatment to help us get better – less ethical individuals may claim there is.  Such is the nature of an illness where individuals with similar symptoms yet unknown causes are grouped together with the term “Chronic Fatigue Syndrome, Post-Viral Fatigue and ME.”  […]

Trial By Error: FITNET-NHS Falls Short In Recruitment Drive

David Tuller

  By David Tuller, DrPH Professor Esther Crawley, Bristol University’s methodologically and ethically challenged pediatrician and star researcher, has weighed in with an interim analysis of FITNET-NHS, her trial of online cognitive behavior therapy for adolescents with what she calls CFS/ME. Poor Professor Crawley! Despite her ambitious goal of enrolling a whopping 734 participants, early […]

Meet The Scientist: Professor Chris Ponting – DecodeME

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By Dylan Murphy, Guest Blogger, ME Association. Professor Chris Ponting is Chair of Medical Bioinformatics at Edinburgh University and a Principal Investigator at the MRC Human Genetics Unit, Institute of Genetics and Molecular Medicine. His research group has made substantial contributions to protein science, evolutionary biology, genetics, and genomics. He has served on the editorial boards of […]

Are COVID-19 Studies Already Providing Clues For ME/CFS And The Long Haulers ?

COVID-19-Pandemic-min

By Cort Johnson in Health Rising.   Could COVID-19  studies already be providing clues about what went wrong with the long haulers and people with post-infectious chronic fatigue syndrome (ME/CFS), fibromyalgia and other diseases? Two articles in the New York Times – a feature length one, “How Covid Sends Some Bodies to War With Themselves“, […]

Infographic: What Is ME/CFS ?

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By Katarina Zimmer in The Scientist.   The COVID-19 pandemic is sparking renewed efforts to study the underlying causes of this complex, debilitating disease, which might be triggered by the novel coronavirus.   People with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) suffer from a chronic, debilitating fatigue that can leave them unable to maintain a job or […]

Trial By Error: More CBT Research From Sir Simon And Professor Chalder

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  By David Tuller, DrPH (*Thanks to the the very informed discussion–and discussants–on the Science For ME forum for alerting me to this study and its many problems!) In 2011, Professor Trudie Chalder declared at a press conference for the high-profile PACE trial that twice as many chronic fatigue syndrome patients who received cognitive behavior therapy and […]

Welcome To Law And Health

Valerie Eliot-Smith

  By Valerie Eliot Smith in Law and Health.   “The history of ME remains one of the worst examples of unacknowledged institutional abuse in modern times.” ~ Valerie Eliot Smith 2019  ***************************** Note: this blog works across all devices but can be viewed most easily on a computer or tablet. Thank you for visiting […]

The Roles Of Autoimmunity And Inflammation In Chronic Fatigue Syndrome

Chronic Pain

  By Adrienne Dellwo in Very Well Health.  You still hear that chronic fatigue syndrome (ME/CFS) is a “mystery illness,” but that viewpoint is becoming dated. The nature and mechanisms of the disease are beginning to take shape, thanks to the ongoing efforts of researchers. Over the years, especially recent ones, we’ve learned a huge amount. Some of that […]

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