Our one to one carer support and advice is being provided over the telephone at the moment, please get in touch if you need us, we’re here to help. All our support groups and activities listed below are taking place online via zoom, and bookable by contacting our reception on enquiries@yorkcarerscentre or 01904 715490. If you’d like to take […]
At the request of York Independent Living Network, we’re supporting the development of a disabled person-led forum for anyone living or working in York who identifies as disabled or as having a disability. We aim to ensure that the Forum is led by, and open to, people and allies from right across a range of […]
From gov.uk. Homes England and Network Rail will be investing £77 million to ensure that York’s new city centre quarter development goes ahead, following confirmation of the route for the funding to the project from the Ministry of Housing, Communities and Local Government. The announcement has been welcomed as a clear signal of the […]
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From The Yorkshire Times. As an active campaigner for the York ME Community I’m pleased to be involved with the newly launched York Disability Rights Forum. The work to raise awareness of ME is challenging and over the years the Community has had many successes, including getting support for achieving our aims from local […]
The York ME TGA Inter-Company Fantasy Football League The York ME Community runs an Inter-Company Fantasy Football League sponsored by TGA Mobility. This is to help raise awareness of the illness that affects around 250,00 people in the UK, and 800 to 1,000 people of all ages in the York area alone. Companies enjoyed […]
By Josh Halliday in The Guardian. For a city that has been at the heart of major national events for 17 centuries, beloved both by medieval kings and warring Romans, York has seen its fortunes rise and fall over the years. But new questions about the future of the former Viking capital of England […]
Accessing carer groups from home You can now access our carer support groups and activities online as we continue to work within government guidance, and explore ways we can offer our face to face groups in the future. If you’d like to take part in any of our groups/activities, and would like help setting up […]
By David Nicholson in YorkMix. To mark the release of Human Contact, the debut album by York band The Howl & The Hum, David Nicholson takes a listen and remembers where, for him, it all began Wednesday night for me is the quiz with Tom Adams in the chair at The Swan in Bishy Road, […]
From The Yorkshire Times. A Harrogate charity is urging businesses coming out of lockdown to consider the needs of disabled people in their pre-opening preparations. And for those opening their doors this coming Monday (June 1) – and in two weeks’ time – Disability Action Yorkshire has published guidance on how to achieve […]
From YorkMix. York radio station Minster FM is to close, it was revealed today (Wednesday). The station will be absorbed into the Hits Radio Brand Network, its owners Bauer Media announced. Many of the staff at the Dunnington-based company have been put on redundancy notice today – including most of the presenters. To […]
Just to let you know that Cliffords Tower in York will be lit up in blue from 11th to 17th May in recognition of ME Awareness Week.
By Nadia Jefferson-Brown in The Press. A florist to the stars has returned to her roots to serve the York community during the Covid-19 crisis. Fulford Flowers, known for its big-budget commissions, from celebrity weddings to film premieres, is now brightening people’s days by delivering rainbow bouquets locally. Pictures of rainbows have been popping up in people’s […]
From YorkMix. A pub near York that was set to be demolished could now enjoy a new lease of life as a drive-thru coffee shop. Punch Partnerships Ltd, which owns the Four Alls Inn on the A64, wanted to tear it down and replace it with five houses. The plan drew criticism from the York […]
By Karen Lie in Yorkshire Coast Radio. Restrictions on the use of bus passes in North Yorkshire have been relaxed to help pass holders to take advantage of early morning shopping opportunities and medical appointments. North Yorkshire County Council have temporarily enhanced their National Concessionary Travel Scheme to enable pass holders to use […]
By Kristian Johnson in Leeds Live. Leeds was once home to a massive theme park based on grand designs from Coney Island in New York. The giant theme park was built in Golden Acre Park, north Leeds, in March 1932 and opened to huge fanfare. And while it was built to resemble the impressive amusement parks […]
By Chloe Laversuch in YorkMix. East Parade Medical Practice could become part of Jorvik Gillygate Practice – but neither surgery building is set to close under the plans. A report says the merger will help staff offer more services at both surgeries in this area of the city. The merger will be discussed […]
From YorkMix. Community spirit is alive and well in York in the time of Covid-19. Groups are being set up to help fellow residents affected by coranavirus. There is now a York Covid-19 Mutual Aid group, with the aim of supporting vulnerable people in the city through the outbreak. George Turner explained more on the […]
Just to let you know that City of York Council has agreed to light up Clifford’s Tower in York in blue over the period 11 to 17 May to help raise awareness of Myalgic Encephalomyelitis (ME). This is part of a worldwide campaign where buildings in towns and cities across the globe will […]
From YorkMix. York’s least reliable trains have been revealed. And it won’t come as a great surprise to regular rail passengers that the honours are shared by TransPennine Express and Northern. An investigation into rail reliability by The Sunday Times, based on figures compiled by On Time Trains, has found that northern travellers fare the worst […]
Welcome to the March 2020 news update for York Carers Centre. News Carers socials for 26 to 40 (ish) year olds We’re delighted to have received funding to offer socials for 26 to 40 year old carers in York. Our next one is at the Escape Room, Micklegate on Thursday 26 March early evening […]
From YorkMix. A mum whose dream of reopening an historic York shop could be dashed by planners has launched a petition to support her cause. Last August Sara Winlow bought the property which used to house South Bank Stores on Balmoral Terrace, close to the racecourse. The shop had long since closed, and she […]
Do you know of a business in York that would be happy to put up an A5 poster on their premises with a bit of info about Myalgic Encephalomyelitis (ME) to help raise a bit of awareness ? This is an illness that could well be affecting their workforce today. If so please get […]
From YorkMix. After a hard day’s filming, there’s nothing better than cracking open a can of beer with your name on it. Hollywood and theatre legend Dame Judi Dench is pictured here tucking into a cold can of Dame Judi Quench – the unique beer created in her home city by Brew […]
There are so many questions banded about as to the story of Myalgic Encephalomyelitis (ME), but this video gives a better and fuller insight than most. Once you've watched it, please copy the link and spread the word to raise awareness. Thank you.
To watch this video, click on the link below:
As has been stated by Dr Sarah Jarvis and others, it’s possible that the Coronavirus could trigger M.E. in those people who get through the worst of the virus, and are seen to be in the recovery phase.
Please do not think that once you’re in that phase that you should just get back to your normal routine. As someone who has just passed his 14th anniversary with ME, the most important thing you can do is rest.
Resting should be from both physical and mental / cognitive activities.
Do not push beyond what your body is telling you. Your head might tell you something different, and you’ll be keen to make up for lost time, but please take advantage of this lockdown to recover properly. If you push beyond your limited energies now, and M.E. follows, it could change your life for years to come.
Be sensible and rest up. Take care.
The York Access Group is a Facebook group which is aimed at improving Accessibility in York for those trying to get around with a Disability. Feedback on bad, and good Accessibility of shops, streets, cafes, restaurants and any other facilities are welcomed.
It's also the place to discuss mobility aids from walking sticks to scooters. If this sounds like a group for you, you're most welcome !
As we all know, especially those who need Wheelchairs or Mobility Scooters to get around, vehicles parking on pavements and blocking our way can have a major effect on our lives. It can mean that we are likely to put ourselves in danger by going onto busy roads because of inconsiderate parking. 
If you live in Fulford York, the details of your local PCSO are below, and he should be contacted in the first instance. If he is not on duty, you may be dealt with by whoever is on duty. If you live in other areas of York, ring 101 and ask for the PCSO covering your area. In all cases, you will be required to give as much information about the vehicle and location as possible. You will NOT need to stay by the vehicle till the police arrive.
Simon Hall
PCSO 5648
North NPT
NORTH YORKSHIRE POLICE
Dial 101, press option 2 and ask for him by his full name or collar number
If using his collar number please state each number individually
Would you like to help your local community ?
By current research, there are around 800 people in the York area suffering from Myalgic Encephalomyelitis (ME). This might include the work colleagues you haven't seen in some time, or your friends and family, maybe one of the lads who hasn't turned up for five-a-side for a while.
There's information at the top of this site to explain how it affects people and ruins lives. These are your neighbours; would you like to help ? To read the rest of this request, click on the link below:
After a pretty tough time, the guys riding as part of The Nomadic Knights group, made it to Everest Base Camp. I hope we can use this story to gain interest from media sources to help raise awareness for us all. It's the least the guys deserve for all their efforts.
19 May 2017.
“Very pleased to report that we reached Mt Qomolangma (Everest) Base Camp with the ME Awareness Flag at 1528hrs on Thursday 18th May. Three and a half hours after we had planned but time in Tibet can sometimes be very fluid. The base camp is located at 5200m, walking to the final destination was challenging in itself due to low oxygen levels.
Conditions at base camp were extremely windy (good for flag flying) with intermittent clouds with no particular destination in mind and the sun was not ideal for photos."
The York ME Community
@YorkMEAwareness
Carol Monaghan SNP spoke in Westminster Hall about the need for support and funds for ME Research. Many other MP's spoke passionately on the subject as it affects their constituents UK wide. Click on the link below to watch the full debate.
There has since been an All Party Parliamentary Group (APPG) formed to discuss the way ahead in helping MP's Constituents with ME. Contact your MP to ensure they're representing you !
One of the major questions raised is the blending of ME with CFS. This chart on the Hummingbirds site illustrates the many differences between Chronic Fatigue Syndrome (CFS) and Myalgic Encephalomyelitis (ME).
Time For Unrest: Why Patients With ME Are Demanding Justice.
If you want the full story on ME and will read just one article about it this year, please make it this one,
Are you a member of a York based Sports or Fitness Club ? Looking for a local cause to run or do an activity for ? The York ME Community are looking to be 'adopted' by anyone willing to maybe run for us and help raise our profile. There are likely to be around 800-1,000 people of all ages in the York area with ME who would be so very grateful for your help.
We had a brilliant day at York Explore Library raising ME Awareness. Lots of interest in what we're doing from local health groups, charities, the council and most heart warmingly, from those dealing with ME themselves who now know we're here for them.
If you'd like to hear more about ME, get in touch.
Those within the ME Community have always known how damaging being prescribed Graded Exercise Therapy (GET) can be to their future health. We have a broken energy production system and therefore normal rules do not apply. The PACE Trial tried to show that it helps, but has been debunked by scientists and researchers worldwide. The PACE Trial in fact is now held up as an example of how NOT to conduct such trials.
To understand better the truth of GET and The PACE Trial, click on the link below to watch two short videos.
We are the ME/CFS Biomedical Partnership, a collaboration between researchers and people with ME/CFS, carers and the public.
The DecodeME DNA study aims to help us understand the disease and ultimately find treatments.
To read more, or get involved, click on the link below:
This is open to any organisation looking to have a bit of fun whilst supporting your local community. We're underway now for the current season but will be recruiting teams for our 6th season around July 2021. Although the aim is spreading ME Awareness, as a bonus we have also raised over £920.00 for Invest in ME Research, so why not join us ?
To join in for next season, click on the Fantasy Football League tab at the top of the site for all the information you'll need.
Written Question to the Department of Health and Social Care on 22 May 2018 by Carol Monaghan SNP, answered by Caroline Dinenage Minister of State (Department of Health and Social Care)
| Financial Year | £ |
| 2014-15 | 280,442 |
| 2015-16 | 295,626 |
| 2016-17 | 130,958 |
To read the ME Research Summary 2019 by ME Action covering the last ten years, click on the link below:
The York Inset Scooter Club is based in York (UK) and has a membership of around 250.
They are a thriving, active club and look to support local charities when they can. They have an annual Mods and Rockers charity ride out, and for 2019 supported The York ME Community.
They headed off from The York Eye (Clifford’s Tower) on Sun 28 Apr on a run out to the coast, set off by the Mayor of York and the York Normandy Veterans.
All money raised will be used to raise the profile of ME in York through posters being produced and put up in local business premises, clubs, schools, GP Surgeries and venues.
I had a very productive meeting with Cllr Aspden and Cllr Runciman of City of York Council where they have stated they will back efforts to raise awareness of ME, understanding that much more is needed to increase understanding of this debilitating disorder, in York and across the UK. I will be aiming to keep up the pressure to ensure future support.
The motion put before Council with regard to support in raising ME Awareness in York was passed unanimously !
The City of York Council has followed through on their promise by lighting up the city walls and Clifford's Tower in blue over the ME Awareness Weeks since that meeting.
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The first Monday of each month at 11 am - The York ME Community Coffee Club at Bar Convent, 17 Blossom Street, York. There is parking available just around the corner at Nunnery Lane Car Park. Blue Badge holders can park for free.
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The third Wednesday of each month - at 2 pm - The York ME Community Coffee Club at The Novotel, York. Parking is free at the hotel.
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Weekly - Every Wed, 8 pm - 9 pm on Twitter, ME Awareness Hour using the #MEAwarenesshour hashtag.
