From YorkMix. A York woman has been jailed after taking nearly £600K from her employers. York woman jailed for £596,000 fraud against doctor’s practice Carolyn Lightwing, 55, of St Mary’s York, pleaded guilty to fraud by abuse of position after fraudulently transferring more than £596,000 from her former employers, Elvington Medical Practice, over […]
By YorkMix in Entertainment, Music Shakespeare’s Rose Theatre has opened, bring four new plays to the pop-up theatre in the shadow of Clifford’s Tower. Running from Tuesday 25 June – Sunday 1 September 2019, the programme features Hamlet, Henry V, The Tempest and Twelfth Night. It was opened by the York Town Crier Ben Fry and Linda Fenwick, High Sheriff of North […]
From Minster FM. The iconic steam engine Flying Scotsman will be visiting North Yorkshire this weekend but those who are going to see it are urged to do so safely. This Saturday, the 29th June, the steam engine will travel up the Midland Main Line before heading to York. Enthusiasts are expected to be […]
From YorkMix. A huge expansion of York Designer Outlet could bring 25 new shops and restaurants to the centre. Owners McArthurGlen say the development will create around 500 retail and construction jobs “and £3.6 million in additional employment income”. The plans also include 630 additional parking spaces and an improved Park & Ride […]
Fulford Beer & Music Festival Saturday 22nd June 2019 From 2pm to Sunset Fulford Sports Pavilion The Parish Field (off Fulfordgate) YO10 4LY • Over 15 local real ales, craft lagers and ciders • Live music from local bands • BBQ, snacks and soft drinks Main sponsor: £4* ADVANCE £5* ON DOOR * Includes […]
From YorkMix. York St Mary’s will reopen next month – showcasing some of the world’s greatest artworks as you’ve never seen them before. Van Gogh: The Immersive Experience brings the Dutch master’s paintings to life. Huge animated projections allow you to step inside the art. It opens at the Coppergate venue on […]
The York Mobility Scooter Club has been set up as a Facebook Group with the idea of being somewhere for anyone in the York area to talk about all things mobility scooters. From those first steps of being so wary of taking that first step of admitting that you need help, to the […]
From YorkMix. After one false start and a lot of anticipation, York now has its very first cat café. The Cat’s Whiskers opened a few days ago in a listed three-storey building on Goodramgate. Complete with 11 cats, including Freddie and Teddy, Simba, Bear and Snowy and Olaf – who are both deaf – the café […]
From The Yorkshire Times. Farms across Yorkshire and the UK will be throwing open their gates on 9 June as they welcome the public for Open Farm Sunday. In the North York Moors National Park, Stonebeck Gate Farm at Little Fryup, near Danby, will be giving visitors the opportunity to experience life on […]
York Carers Centre news Thank You Volunteers It’s National Volunteers Week and we’d like to say a huge thank you to all of our committed volunteers, who generously offer their skills and time to help carers in York. From the board of trustees and office volunteers to those who help carers at groups across the […]
From Minster FM News. Many more people in York will be able to receive vital support and help, after a local charity received lottery funding. York Neighbours, which provides practical help and support to people aged over 65, has received £40,000 a year for the next three years allowing it to expand its […]
From YorkMix. Coney Street will soon look even more folorn as two more big names go. Burton and Dorothy Perkins are set to close in York, two of 23 stores in the UK and Ireland being axed by Sir Philip Green’s Arcadia Group. Part of a rescue plan, the closures put 520 jobs at […]
From YorkMix. A new public square dedicated to the Queen and featuring a life-sized statue of Her Majesty – that’s the remarkable plan unveiled by York Minster today The first public square in the city for nearly 200 years is one of the proposals in the emerging draft Neighbourhood Plan for the York […]
From BBC News. A balloon festival blamed for bringing traffic in York to a standstill is to return to the city. Last year’s York Balloon Fiesta attracted 40,000 visitors, but there were complaints of gridlock on roads and delays to buses. Former Make it York director Steve Brown previously said festival bosses were uncertain […]
From YorkMix. One of York’s best days out bounces back this summer. The Micklegate Run Soapbox Challenge returns for a third year on Bank Holiday Monday, August 26 2019. Entries are now open for teams to take part – and if you’d like to sponsor an event that attracted 20,000 spectators last year, and […]
THE YORK ME COMMUNITY INTER COMPANY FANTASY FOOTBALL LEAGUE It’s not only the Premier League that won’t be decided until the last day ! Our Inter Company Fantasy Football League which involves local businesses supporting ME Awareness will also be decided this weekend. You might have missed out on your chance over the […]
It has been confirmed by City of York Council that the City Walls and Clifford’s Tower will be lit up in blue for ME Awareness from the 10th to 13th of May. The Council will also be putting out Press Releases to cover the event.
Below is a link to the coverage by York TV of The York Inset Scooter Club Ride Out on behalf of The York ME Community. I can’t say enough about how much this could change the lives of the many people in York with ME who are unaware of support in the area. The […]
A brilliant morning watching the gathering of over 200 motorbikes and scooters of The York Inset Scooter Club set off from Clifford’s Tower in York on their Charity Ride Out on behalf of The York ME Community. They were seen off by the Mayor of York, the York Normandy Veterans, as well as members […]
From The Yorkshire Post. Not many survivors of the events in France 75 years ago remain, but two of them – three if you include the train they were on – enjoyed a day out in Yorkshire today. With so few members left, the Normandy Veterans’ Association has officially disbanded, but […]
With today’s terrible discovery, that’s five lives lost in the river Ouse in York in the last two weeks. The police and river rescue teams have also seen individuals walking along the walls of various bridges over the river, and only luck has saved them being added to this total. With another weekend […]
THE YORK INSET SCOOTER CLUB RIDE OUT IN SUPPORT OF THE YORK ME COMMUNITY – SUNDAY 28 APRIL 2019. They will head off from The York Eye (Clifford’s Tower) set off by the Mayor of York and the York Normandy Veterans. They aim to depart at 10.30 am. Come and wave them off […]
By Mark Lavery in the Yorkshire Post. Communities across Yorkshire are being encouraged to take action to help protect their pubs after it was revealed almost 1,000 pubs vanished in Britain last year as the industry was hit by intense cost pressures and business rate increases. A total of 914 pubs disappeared in […]
By Chloe Laversuch in YorkMix. Controversial plans for 69 new affordable homes on playing fields around the David Lloyd gym look set to get the go-ahead – despite objections from neighbours. The scheme would see houses built on land off Windmill Lane formerly owned by York St John University. Council planning bosses […]
The York ME Community runs an Inter-Company Fantasy Football League sponsored by TGA Mobility. This is to help raise awareness of the illness that affects around 250,00 people in the UK, and 800 in the York area alone. The B Team of Bransby Wilson are looking strong favourites to win the league this season, […]
By Chloe Laversuch in The Press. AN MP has called for a review of river safety in York after three people tragically lost their lives in eight days. And the mum of a young woman who died in the Ouse five years ago has also appealed for a fresh campaign to raise awareness […]
From Visit York. With a history spanning 2,000 years, there’s no surprise that myths and magic are in abundance in the city of York. Throughout the centuries characters from alchemists to witches are said to have passed through the city. Find out about York’s magical connections from past to present. The city’s […]
From YorkMix. The superfast UFO from TalkTalk is on track to transform York into the UK’s first Ultra Fibre Optic city as it ramps up its full fibre roll-out programme. It has just brought gigabit broadband speeds (1000 Mbps) to residents in Poppleton for the first time. The full fibre network now spans […]
From YorkMix. The business moved out of its purpose-built home on Lendal after 135 years – and into a corner of the Coney Street WH Smith. It comes with five serving positions and four self-service kiosks. The relocation caused controversy, with more than 3,000 signing a petition against the idea. However, the […]
By Chloe Laversuch in YorkMix. Cyber crime in York has increased by nearly 85 per cent in the past year – because it is seen as a wealthy area with “less tech-savvy” residents, according to police. Assistant chief constable Ciaron Irvine told a meeting that there has been a “significant increase” in scams – particularly […]
From YorkMix. A York war hero who was killed when his Spitfire was shot down over Italy is to finally be laid to rest 74 years later – after archaeologists discovered his body. John Henry Coates, 24, took off in one of six RAF Spitfires from 111 Squadron from Rimini Airfield on March […]
![york-hospital-sign[1]](https://www.york-me-community.org/wp-content/uploads/2015/10/york-hospital-sign1-150x150.jpg)
By George Dodd in The Press. A NEW Park&Ride bus service travelling directly to York Hospital is to launch next month. The service, which starts on April 29, will run every 20 minutes from Rawcliffe Bar Park&Ride to the hospital. It will be run in partnership with First York and has been made possible by funding from York Teaching […]
By Dan Bean in The Press. SHOPPERS in York are set to lose another high street favourite, with the closure of HMV. The Coney Street store was at risk just weeks ago, after HMV went into administration, but 1,500 jobs around the country were saved when Canadian retailer Sunrise Records bought 100 […]
By Charles Hutchinson in The Press. Berwick Kaler may have exited pantomime stage left in February, but the grand old dame of York Theatre Royal is taking up the call to write the script for Sleeping Beauty this coming winter. “When I said on the last night, ‘if they ask me, I’ll be back […]
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The first Monday of each month at 11 am - The York ME Community Coffee Club at Bar Convent, 17 Blossom Street, York.
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The third Wednesday of each month - at 2 pm - The York ME Community Coffee Club at The Novotel, York.
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Weekly - Every Wed, 8 pm - 9 pm on Twitter, ME Awareness Hour using the #MEAwarenesshour hashtag.
Access Your Life is a site run by Felix and Lauren, with a little input from Fliss, the dog!
The site is full of great information that I feel will benefit many within The York ME Community and beyond.
To go to Access Your Life, click on the link below:
Would you like to help your local community ?
By current research, there are around 800 people in the York area suffering from Myalgic Encephalomyelitis (ME). This might include the work colleagues you haven't seen in some time, or your friends and family, maybe one of the lads who hasn't turned up for five-a-side for a while.
There's information at the top of this site to explain how it affects people and ruins lives. These are your neighbours; would you like to help ? To read the rest of this request, click on the link below:
The social element of this site is via a Facebook Group called The York ME Community.
This is available to people in the York area looking for help, advice and support, whether those diagnosed, family or friends. We are a close knit group who discuss more than just ME, as we like to think that we are not defined by this illness. We discuss every day things, have a laugh, and try to meet via our Coffee Club if the beast that is ME allows us ! If you apply to join, please check your Facebook messages, as there are a couple of automated questions to be answered before being welcomed to the group.
Please don't apply to join if you are promoting your preferred remedy. I'm happy to mention your company within the group, but it's for individuals to choose what they wish to try in their battle to seek an improvement in their health.
Some companies and organisations offer discounts for disabled people and their carers – click on the link below to find out what you could save.
Carol Monaghan SNP spoke in Westminster Hall about the need for support and funds for ME Research. Many other MP's spoke passionately on the subject as it affects their constituents UK wide. Click on the link below to watch the full debate.
STOP PRESS: FULL DEBATE TO BE HELD IN PARLIAMENT ON THURSDAY 24TH JANUARY 2019
Anil's interview gives a great insight to the man and his ME mission !
Link to Anil van der Zee's Interview
Having read the above interview, I'd recommend a visit to David's Blog below:
After a pretty tough time, the guys riding as part of The Nomadic Knights group, made it to Everest Base Camp. I hope we can use this story to gain interest from media sources to help raise awareness for us all. It's the least the guys deserve for all their efforts.
19 May 2017.
“Very pleased to report that we reached Mt Qomolangma (Everest) Base Camp with the ME Awareness Flag at 1528hrs on Thursday 18th May. Three and a half hours after we had planned but time in Tibet can sometimes be very fluid. The base camp is located at 5200m, walking to the final destination was challenging in itself due to low oxygen levels.
Conditions at base camp were extremely windy (good for flag flying) with intermittent clouds with no particular destination in mind and the sun was not ideal for photos."
Debbie North, our TOG wheelchair walk designer uses an off-road mobility scooter, also called an all terrain hopper to access the countryside and wants to inspire other wheelchair users to do the same through her wheel friendly walks.
Wheelchair friendly walks are a selection of walks that the TOG team have carefully selected for families using pushchairs, wheelchairs or bicycles.
The Jen Brea ME film 'Unrest', about her story and struggle with Myalgic Encephalomyelitis (ME) was shown to a sellout audience at City Screen York on 1st November, prompting a second showing on 16 November. This film has won awards at The Sundance Film Festival and is a must see for all wishing and needing to know more about an illness affecting over 800 people in the York area alone.
Although still showing around the UK and worldwide, it's now also available on Amazon and iTunes and through the Unrest UK Store on DVD and Blu-Ray by clicking on this link: Unrest site to save having to undertake a journey to the cinema.,
Please spread the word through your GP, MP, Company HR Teams and any other people of influence you may know. Thank you.
One of the major questions raised is the blending of ME with CFS. This chart on the Hummingbirds site illustrates the many differences between Chronic Fatigue Syndrome (CFS) and Myalgic Encephalomyelitis (ME).
For confidential and independent advice for everyone on welfare benefits, debt, housing, employment, consumer rights and much more.
Welcome to Broken Puppet Theatre Company.
We are a small team of creative professionals who live with chronic illness and invisible disabilities. We work with theatre, film and puppetry to support children, families, schools and communities who are learning to share their world with chronic illness and invisible disabilities too. Our aim is to provide creative expression and escapism wherever they are needed.
Helpfulpeeps is a platform that allows people in any given area to ask for and offer help to one another. Although this is a nationwide facility, by adding your street name, the system automatically drops a pin on that location and you only see posts from a 20 mile radius. You have the option to narrow or widen this radius. I hope this is a useful facility for members of our Community.
If you're given the time and space to talk things through, you can find a way through your problems.
Samaritans help you to explore your options so you can make decisions that are right for you.
Upon request, North Yorkshire Fire & Rescue Service can carry out a home fire safety visit to your home, completely free of charge. This visit involves fire service staff coming to your home to give you advice on fire safety in the home, actions you can take to reduce the risk of fire, and discuss escape routes should fire occur.
If you don't aim to take up this offer, please at least check the batteries on your smoke alarms on a regular basis. If you want to read more, click on the link below:
FEATURED ARTICLE
By
Sally Duffin
Hello to all the members of York ME Community. I’m Sally, a Naturopathic Nutritional Therapist at ‘Nutrition in York’ and Bill has asked me to share some nutritional therapy approaches for managing ME.
Many nutritional therapists – myself included – are trained in the Functional Medicine approach to healthcare which means we are less concerned with the name of a condition (ME, CFS etc.) and more interested in the underlying cause and contributing factors of the condition. (more…)
The York Mobility Scooter Club has been set up as a Facebook Group with the idea of being somewhere for anyone in the York area to talk about all things mobility scooters. From those first steps of being so wary of taking that first step of admitting that you need help, to the best scooter for individual needs. All reviews are welcomed !
It will also be where we can talk about accessibility issues in York for scooters, and if this develops into a strong theme, I may open a separate group on that subject.
My aim is also ideally in time to meet up for some sort of wheeled rambles, and so suggestions of sensible routes would be welcomed.
I don't aim to set many rules, just that we all support each other and lend a help when we can. Please feel free to invite others who are aiming to get a scooter, or have one, for whatever reason, and let's see where this little adventure takes us.
To read the ME Research Summary 2019 by ME Action covering the last ten years, click on the link below:
There is a great need for the training of those with a Duty of Care to those with Myalgic Encephalomyelitis (ME) or Chronic Fatigue Syndrome (CFS). For those in Healthcare, Education or Business with this Duty of Care, this E-Learning Course is the one for you.
To learn more, click on the link below:
AccessAble in York provides information on Shopmobility, Talking Signs, Dial & Ride, York Wheels and accessible Hotels, Restaurants, Public Toilets and a whole lot more in our city. To find out more before setting off for York, click on the link below:
The York Inset Scooter Club is based in York (UK) and has a membership of around 250.
They are a thriving, active club and look to support local charities when they can. They have an annual Mods and Rockers charity ride out, and for 2019 supported The York ME Community.
They headed off from The York Eye (Clifford’s Tower) on Sun 28 Apr on a run out to the coast, set off by the Mayor of York and the York Normandy Veterans.
All money raised will be used to raise the profile of ME in York through posters being produced and put up in local business premises, clubs, schools, GP Surgeries and venues.
Last season was a great success with 15 teams involved, and this season is going brilliantly with the aim of spreading ME Awareness. As a bonus, we have also raised £725.00 for Invest in ME Research.
This is a call out to all York Businesses, Clubs and Venues to put it in your diaries for next season and support your local ME Community.
To join in for next season and help raise ME Awareness in your local area, have a look at the tab at the top of the site for more information.
Euan’s Guide is the disabled access review website used by disabled people to review, share and discover accessible places to visit. The charity was founded in 2013 by Euan MacDonald, who is a powerchair user, and his sister Kiki. As Euan’s access requirements changed, both went in search of recommendations for accessible places to go, but a platform for this kind of information didn’t exist. Built as a friendly and honest alternative to hours of web searching and phone calls before visiting somewhere new, Euan’s Guide now has thousands of disabled access reviews and listings for places all over the UK and beyond.
To go to Euan's Website, click on the link below:
Our Coffee Club meets twice a month for a cuppa and a natter.
Dates and times will always be shown in our diary at the top left of this site.
The Coffee Club is open to anyone either with ME, or friends and family looking for support from people who understand.
Due to the nature of the illness, there will be times when numbers are low, but if you'd like to attend, either just turn up on the day, or email me at bill@York-ME-Community.org. If you're a member of our Facebook Group, you can of course say you'll be going via the notice in the Events area.
Help us raise money for The York ME Community to pass onto Invest in ME Research every time you shop online, and it doesn't cost you a penny !
By using the link below, when you shop online with a huge number of shops, they will pass a percentage of your purchase cost to our fund. THIS MONEY IS DONATED BY THE RETAILERS, NOT YOU !
Written Question to the Department of Health and Social Care on 22 May 2018 by Carol Monaghan SNP, answered by Caroline Dinenage Minister of State (Department of Health and Social Care)
| Financial Year | £ |
| 2014-15 | 280,442 |
| 2015-16 | 295,626 |
| 2016-17 | 130,958 |
A TRUE STORY BY JESSICA TAYLOR-BEARMAN
Book Description: From a darkened world, bound by four walls, a young woman called Jessica tells the tale of her battle against the M.E Monster. The severest form of a neuro immune disease called Myalgic Encephalomyelitis went to war with her at just 15 years old. From beneath her dark glasses, Jessica glimpses a world far different from the one she remembers as a teenage school girl. This true story follows her path as she ends up living in hospital for years with tubes keeping her alive.
This harrowing story follows the highs and lows of the disease and being hospitalised, captured through her voice activated technology diary called `Bug' that enables her to fulfil her dream of one day becoming an author.
It provides a raw, real-time honesty to the story that would be impossible to capture in hindsight.
To order the book through Jessica's site, click on the link below:
This book is also now available at York Library
An album of original songs and poetry composed and performed by people with M.E. from all over the world, was released to mark and support ME Awareness Day, 12 May 2018.
It was hoped that by releasing this album, it will help those with ME to know that they are not alone, and for others to understand the nature of this illness and give what support they can.
Please consider downloading the album, or even a couple of tracks to help raise awareness of ME, and much needed funds for research into this illness that affects so many, but is understood by so few who may be in positions to help. Proceeds to ME Research and Education. All further information and questions, please direct via the website below: The album can be downloaded now from:
PLEASE SPREAD THE WORD !
I had a very productive meeting with Cllr Aspden and Cllr Runciman of City of York Council where they have stated they will back efforts to raise awareness of ME, understanding that much more is needed to increase understanding of this debilitating disorder, in York and across the UK.
The motion put before Council with regard to support in raising ME Awareness in York was passed unanimously !
The City of York Council followed through on their promise by lighting up the city walls and Clifford's Tower in blue over ME Awareness Week.
Are you a member of a York based Sports or Fitness Club ? Looking for a local cause to run or do an activity for ? The York ME Community are looking to be 'adopted' by anyone willing to maybe run for us and help raise our profile. There are around 800 people of all ages in the York area who would be so very grateful for your help.
We had a brilliant day at York Explore Library raising ME Awareness. Lots of interest in what we're doing from local health groups, charities, the council and most heart warmingly, from those dealing with ME themselves who now know we're here for them.
If you'd like to hear more about ME, get in touch.
Time For Unrest: Why Patients With ME Are Demanding Justice.
If you want the full story on ME and will read just one article about it this year, please make it this one,
Are you on Twitter? Learn more about ME every Wednesday, 8 pm - 9 pm (UK) using #MEAwarenesshour
Mike Harley is a very special guy who's running a marathon in each EU country to raise awareness and funds for Invest in ME Research. Please visit his site to learn more.
To go to the Government's Disability Benefits Advice Guide, click on the link below: