By Valerie Eliot Smith.

 

The history of ME remains one of the worst examples of unacknowledged institutional abuse in modern times. 

“Institutional abuse is the maltreatment of a person…….from a system of power.”

“Changing the narrative” was originally planned as a series of three posts which explored several different aspects relating to the perception of patients who live with the illness myalgic encephalomyelitis (ME), as I have since 1981 (for more information see About). As a result of the feedback I have received and discussion which has appeared elsewhere, I am adding further posts to respond to and clarify certain points which have arisen subsequently. 

The original question was this: how should the myalgic encephalomyelitis (ME) community in the UK address its reputational problems within the media environment and the wider political, medical and social context?

A full list of the posts in this series can be found here.

 

To read the rest of this story, click on the link below:

 

Link to ME story