Craniocervical Instability, Neurosurgery And M.E.: Just The Facts, Please – An Editorial By Jeff Wood



By Jeff Wood in Health Rising.


Jeff Wood’s remarkable recovery from severe ME/CFS following spinal surgery to correct craniocervical instability (CCI) and other problems shocked the ME/CFS community. It’s safe to say that almost no one saw that coming. Since then, others, including Jen Brea and Julie Rehmeyer, have been diagnosed and undergone surgery, while others have chosen different paths. The unusual diagnosis – and the prospect of possibly undergoing neurosurgery – have, not surprisingly, sparked some controversy. In this editorial, Jeff – the one who started all this off in 2018 – addresses some of the misconceptions about surgery he believes have arisen.

During my years spent bedridden with severe ME, I ultimately figured out that I had craniocervical instability (CCI). In January of 2018, I chose to have a skull-to-C2 fusion surgery to correct the CCI. This was followed by a second neurosurgery to correct a tethered spinal cord. Since then, I have remained in remission from ME.


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Link to ME Research story

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