By Lisa Smyth in The Belfast Telegraph.
A charity that supports people with Myalgic Encephalomyelitis (ME) has said patients in Northern Ireland are being failed by a shocking lack of understanding about the condition. People with ME can suffer a range of symptoms, from headaches and extreme sensitivity to light and sound, to agonising pain, memory and concentration problems.
In some cases, the person can’t be touched, while others have to be tube fed.
The Hope 4 ME and Fibro Northern Ireland charity has called for health bosses to act urgently to prevent further damage being done to the 7,000 people here living with the debilitating condition.
Joan McParland from the charity said: “As it stands, we have patients being told they should go to the gym which flies in the face of global research and is actually leaving people in agony and causing untold damage.
“It is absolutely horrific that people are being given the wrong information and ending up bed-bound for years as a result, but the sad fact is that many medical professionals just don’t know the most up-to-date research about ME.”
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