By Jo Moss in A Journey Through The Fog.
I have a hospital appointment coming up. It’s for a painless, straightforward heart scan (Echocardiogram) as a follow-up to my recent heart problems. Now this would be a simple activity for a healthy, able-bodied person but for someone with a disabling chronic illness like ME/CFS it becomes a huge undertaking. Added to the physical stress involved with such a task, is the mental strain placed on my body from the amount of planning and problem solving I have to do, and the anxiety this causes.
Routine is vital for someone who suffers from cognitive problems caused by ME/CFS and also for people who suffer from anxiety. Healthy individuals cannot comprehend the stress and exhaustion triggered by attempting new activities outside our normal routine. When I leave the protective cocoon of my bedroom I enter a world which is out of my control. My room has been adapted around my illness and the limitations placed on me. But when I leave this safe environment I encounter so many obstacles and scenarios which can damage my health.
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