From Emerge Australia.
Emerge Australia conducted a second Health and Wellbeing Survey of people living with myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS) in 2019.
An impressive 1,055 participants from around Australia answered 60 questions covering demographics, caring responsibilities, ME/CFS onset and symptom experience, access to healthcare and other services, and the effect of living with ME/CFS on social and economic circumstances. They also provided insight on the greatest barriers faced in accessing healthcare services and identified opportunities for improvement.
Lifelong Lockdown: Lessons Learned from the Health and Wellbeing Survey of Australians Living with ME/CFS 2019 was published in October 2020. Our findings paint a detailed picture of the experiences of people living with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).
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