How You Can Help the ME/CFS Community

ME Awareness Day

 

By Jo Moss in The Mighty.

 

The reason I started writing about my experiences was to raise awareness of invisible illnesses like ME/CFS and fibromyalgia, and to try to reach out to help others who are suffering like myself. I often feel I’m not doing enough to raise awareness, so today’s post is an attempt to rectify this. ME/CFS has the biggest detrimental affect on my life so I’m going to start there. Can you help me?

What is ME/CFS?

Currently it is estimated that some 250,000 people in Britain are affected by ME/CFS. This figure is estimated to be 17 million worldwide. Yet there is still very little known about this illness and only minimal funding has been made available for research into causes and possible treatments. Patients are still commonly misdiagnosed or told the symptoms are all in their head. There is currently no cure and no universally effective treatment. Those treatments which have helped reduce particular symptoms in some people have unfortunately proved ineffective or even counterproductive in others.

 

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Link to ME story

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