By Simon Del Favero in SBS Insight.
When Simon realised that treatment options in Australia for his chronic fatigue syndrome were limited he looked overseas for answers.
I was diagnosed with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) in early 2011 after a severe bout of glandular fever. In the years prior to my diagnosis I was studying architecture at the University of Sydney and working part time as an architectural model maker. I was 21, healthy, and physically very fit. I had plans to complete a masters degree in Berlin while working in the studio of an artist I greatly admired. I was initially shocked by my diagnosis. In many ways I was in denial, and so ashamed that I rarely spoke about it to friends or family. Over the next few years I tried a variety of treatments administered by various Australian specialists, none of which were successful. Years later I discovered there is no effective treatment for ME/CFS and that the best option for its management lay overseas.
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