‘I’m At My Wit’s End’: Why Chronic Fatigue Patients Are Fed Up

Canberra Times



By Daniella White in The Canberra Times.


Susan Hutchinson was never shy of an adventure, from climbing volcanos in Rwanda to joining the army reserves.

She now uses a mobility scooter to get around, can only work 10 hours a week on her PHD and relies on other people to help with everyday tasks like vacuuming.

She has Myalgic Encephalomyelitis – commonly known as chronic fatigue syndrome – and says there is poor recognition of the disease among medical professionals and the government.

Ms Hutchinson is currently battling to be approved for the NDIS but has been told she is “insufficiently incapacitated”.

She has been left without the support she was eligible for before the NDIS rollout.

Ms Hutchinson receives a disability pension -which leaves her with little once her rent is paid – but was without income for six months while Centrelink decided whether she should be given the allowance.

The process has her at her wit’s end.

“The condition has been extremely debilitating for me, it’s completely changed my life,” Ms Hutchinson said.

“I have to ration my reading, I ration the number of times I go up and down these stairs.

“I wear noise cancelling head phones all the time.


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