‘Leave No One Behind’ – ME Awareness Day 2020



There has been a sense of confusion in my heart since the Covid-19 Lockdown. Maybe by writing I can unravel the unease.

Thoughts on ME & Covid-19 by Corina Duyn.
For the past seven weeks – 55 days – life as we knew it has changed forever. A virus which nobody can see, but is very much lurking in every corner of the world, made us stay at home. Many people had to adjust to this sudden change in their daily routine. Ways had to be found to work from home. Schools closed. Many teachers had to learn in record time how to bring their classes online. Zoom is the new buzzword. The undervalued and often underpaid arts became the lifeline for many to deal with lockdown. Theatres, museums, concert halls and art centres opened their doors to the virtual world.
Many people experienced what it is like to be housebound. For many, the first few weeks were certainly a mixture of fear and a sense of novelty. Suddenly there was time for all these jobs which for years had been put on the long finger. Homes were tidied, fixed up and painted. Gardens were attended to, and vegetable beds were created. Although the duration of this lockdown is not set in stone, we all know at some point it will end.
For the many, many people with chronic illness and disability, this time has been of mixed emotions. For me personally I spend many of the last 22 years housebound due to becoming ill with Myalgic Encephalomyelitis (M.E.). The start of this long journey was a viral infection in my brain during the summer of 1998.
I googled the timescale to compare with the current lockdown which started in Ireland with the closure of schools on the 13th March. I have clocked up just over 8000 days, which is the equivalent of 1143 weeks. Unimaginable, even for me, although I’ve lived it.



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