Living With ‘One Of The Last Major Diseases We Know Nothing About’

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Ronald Davis PhD, Professor of Biochemistry and Genetics at Stanford University called it “one of the last major diseases we know nothing about”.

But the man who heads the Stanford Genome Technology Center knows all too well about the disease.

His son, Whitney Dafoe, an award-winning photographer, has spent years battling the illness and now spends his days in a darkened room, fed through tubes.

ME (Myalgic Encephalomyelitis), otherwise known as CFS (Chronic Fatigue Syndrome), is one of the most misunderstood diseases in modern times.

It’s an illness that I have spent the past 11 years fighting in more ways than one.

Not only have I had to fight the disease itself, but I’ve also had to fight the attitudes towards the disease by the general public and health professionals.

 

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