By Dr Charles Shepherd, Hon. Medical Adviser, ME Association.
The ME Association (MEA) has been helping people with post-viral fatigue/debility, post-viral fatigue syndromes (PVFS) and ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) for many years.
Back in April 2020 we became aware of an increasing number of people who had been ill with COVID-19 and were not improving, even after several weeks.
Almost all had been self-managed at home with an illness that mostly varied from mild to moderate in severity, but not usually requiring hospital admission.
Most had debilitating fatigue, often combined with continuing COVID-19 symptoms involving the lungs or heart in particular. Many also had symptoms that are more consistent with the sort of post-viral fatigue syndromes that may precede ME/CFS.
In April and November 2020, we produced MEA information and guidance to the management of post-covid fatigue, post-Covid fatigue syndromes and the overlap between ME/CFS and Long Covid.
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