ME.rry Christmas !

ME.rry Christmas !

On the first day of illness

My ME gave to me

A shrug from my local GP

On the second day of illness

My ME gave to me

A shed load of pain

A bog for a brain

And a shrug from my local GP

On the third day of illness

My ME gave to me

Legs that won’t go

Body on Go Slow

And another shrug from local GP

On the fourth day of illness

My ME gave to me

A body set to wilt

A big dose of guilt

And drugs from my local GP

On the fifth day of illness

My ME gave to me

Hit by a train

Huge energy drain

Rolled eyes from my local GP

On the Sixth day of illness

My ME gave to me

Beaten up and bruised

Just so confused

No Concentration

Illness my creation

Were the thoughts of my local GP

On the seventh day of illness

My ME gave to me

New Facebook friends

Who really comprehend

No more condescends

From my now ex-local GP

By Bill Clayton

Mon 30 Apr - There will be a screening of Jen Brea's award winning ME Film, Unrest at Hebden Bridge Picture House at 7.45 pm.

Mon 7 May at 11 am - Due to The Bar Convent Café being closed on Bank Holidays, our Coffee Club on Mon 7 May will be held at ‘Your Bike Shed’ café at 148 Micklegate. The idea is to try and stay away from the centre which will be extra busy on a Bank Holiday, and hope that the venue is ok for those looking to meet up.

Tue 8 May - There will be a screening of Jen Brea's award winning ME Film, Unrest at Stephen Joseph Theatre, Scarborough. at 7.15 pm. Admission is free, but tickets must be reserved by contacting cafford@hotmail.com.

Tue 8 May - Sophie Cooklynn's story of Severe ME will be told in a documentary called 'ME and me' to be aired by the BBC. It also features Merryn Crofts, a young lady who passed away last year due to ME complications. Further details will be published here when known.

Sat 12 May - ME Awareness Day. Hopefully the City of York Council will come through and light up some of our public buildings in blue ! Also release date of the album from The Music4ME Project ! Missing Millions events in Manchester and various part of the UK as well as world wide. Plans to run a combined York / Leeds event next year.

Wed 16 May at 2 pm - Coffee Club, Novotel York.

Wed 23 May - There will be a screening of Jen Brea's award winning ME Film, Unrest at 7.30 at Selby Town Hall. Tickets available by donation via the Box Office or email to clare-bromley@sky.com.

Fri 1 Jun - Invest in ME Research International ME Conference, London.

******

Weekly - Every Wed, 8 pm - 9 pm on Twitter, ME Awareness Hour using the #MEAwarenesshour hashtag.

Would you like to help your local community ?

By current research, there are around 800 people in the York area suffering from Myalgic Encephalomyelitis (ME). This might include the work colleagues you haven't seen in some time, or your friends and family, maybe one of the lads who hasn't turned up for five-a-side for a while.

There's information at the top of this site to explain how it affects people and ruins lives. These are your neighbours; would you like to help ? To read the rest of this request, click on the link below:

Link to Business Request

After a pretty tough time, the guys riding as part of The Nomadic Knights group, made it to Everest Base Camp. I hope we can use this story to gain interest from media sources to help raise awareness for us all. It's the least the guys deserve for all their efforts.

19 May 2017.

“Very pleased to report that we reached Mt Qomolangma (Everest) Base Camp with the ME Awareness Flag at 1528hrs on Thursday 18th May. Three and a half hours after we had planned but time in Tibet can sometimes be very fluid. The base camp is located at 5200m, walking to the final destination was challenging in itself due to low oxygen levels.

Conditions at base camp were extremely windy (good for flag flying) with intermittent clouds with no particular destination in mind and the sun was not ideal for photos."

The Jen Brea ME film 'Unrest', about her story and struggle with Myalgic Encephalomyelitis (ME) was shown to a sellout audience at City Screen York on 1st November, prompting a second showing on 16 November. This film has won awards at The Sundance Film Festival and is a must see for all wishing and needing to know more about an illness affecting over 800 people in the York area alone.

Although still showing around the UK and worldwide, it's now also available on Amazon and iTunes and through the Unrest UK Store on DVD and Blu-Ray by clicking on this link: Unrest site to save having to undertake a journey to the cinema.,

Please spread the word through your GP, MP, Company HR Teams and any other people of influence you may know. Thank you.

Welcome to Broken Puppet Theatre Company.

We are a small team of creative professionals who live with chronic illness and invisible disabilities. We work with theatre, film and puppetry to support children, families, schools and communities who are learning to share their world with chronic illness and invisible disabilities too. Our aim is to provide creative expression and escapism wherever they are needed.

"Everything Broken has a Story..."

To visit the site, just click here

Upon request, North Yorkshire Fire & Rescue Service can carry out a home fire safety visit to your home, completely free of charge. This visit involves fire service staff coming to your home to give you advice on fire safety in the home, actions you can take to reduce the risk of fire, and discuss escape routes should fire occur.

If you don't aim to take up this offer, please at least check the batteries on your smoke alarms on a regular basis. If you want to read more, click on the link below:

Link to North Yorkshire Fire Brigade Site

York, United Kingdom

18^°C clear sky

sat04/21 sun04/22 mon04/23 tue04/24 wed04/25

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An album of original songs and poetry composed and performed by people with M.E. from all over the world, will be released on ME Awareness Day, 12 May 2018. They may have been singers, performers, writers or musicians before they became ill and still have so much to give but are now too ill to pursue their dreams.

It’s hoped that by releasing this album, it will help those with ME to know that they are not alone, and for others to understand the nature of this illness and give what support they can.

Please put the date in your diary and consider downloading to help raise awareness of ME, and much needed funds for research into this illness that affects so many, but is understood by so few who may be in positions to help. Proceeds to ME Research and Education. All further information and questions, please direct via the website below: The album can be downloaded on the day from:

www.music4me.net

PLEASE SPREAD THE WORD !

I had a very productive meeting with Cllr Aspden and Cllr Runciman of City of York Council where they have stated they will back efforts to raise awareness of ME, understanding that much more is needed to increase understanding of this debilitating disorder, in York and across the UK.

UPDATE: The motion put before Council on 22 March with regard to support in raising ME Awareness in York was passed unanimously !

Calling all York Businesses, Clubs and Venues, sign up now for the new Fantasy Football season and support your local ME Community !

Bransby Wilson Parking Solutions are trying hard to defend their title this season, but NG Plumbing and Heating are looking favourites to steal their crown !

The second season is nearing the closing stages with 15 teams involved ! With the aim of raising ME Awareness, we have also raised over £400.00 for Invest in ME Research.

NG Plumbing and Heating topped the league on Christmas Day and so received a special prize from another of our sponsors, Nestle of York. Well done guys !

Our Coffee Club meets twice a month for a cuppa and a natter.

Dates and times will always be shown in our diary at the top left of this site.

The Coffee Club is open to anyone either with ME, or friends and family looking for support from people who understand.

Due to the nature of the illness, there will be times when numbers are low, but if you'd like to attend, either just turn up on the day, or email me at bill@York-ME-Community.org. If you're a member of our Facebook Group, you can of course say you'll be going via the notice in the Events area.

The social element of this site is via a Facebook Group called The York ME Community.

This is available to people in the York area looking for help, advice and support, whether those diagnosed, family or friends. We are a close knit group who discuss more than just ME, as we like to think that we are not defined by this illness. We discuss every day things, have a laugh, and try to meet via our Coffee Club if the beast that is ME allows us ! If you apply to join, please check your Facebook messages, as there are a couple of automated questions to be answered before being welcomed to the group.

Please don't apply to join if you are promoting your preferred remedy. I'm happy to mention your company within the group, but it's for individuals to choose what they wish to try in their battle to seek an improvement in their health.

This annual international CPD accredited research conference at One Great George Street, London provides a platform for the latest and most promising biomedical research into ME, and will be attended by researchers, clinicians, doctors, nurses, occupational therapists, healthcare professionals and patient groups from twenty countries around the world and is open to all.

To read more about this conference, click on the link below:

Link to Invest in ME Research

Upcoming ME Events For Your Diary

Links To Our Supporters Websites

Limitless Travel – Holidays For Anyone Living With A Disability Or Reduced Mobility

MP Speaks Of “One Of The Biggest Medical Scandals Of The 21st Century”

Calling On All York Businesses !

Featured Interview With Dr David Tuller DrPH, of Berkeley University

The Nomadic Knights Reach Everest Base Camp For ME Awareness !

Symptoms Of ME – (Myalgic Encephalomyelitis)

What’s Meant By ‘Invisible Illness’ ?

Wheelchair Friendly Walks In The Outdoor Guide

The Jen Brea ME Film ‘Unrest’ Now Available On Amazon And iTunes !

CFS and ME Comparison Chart

Citizens Advice York

The Broken Puppet Theatre Company

"Everything Broken has a Story..."

Helpfulpeeps….People Looking To Help You….Or Looking For Help…

York Samaritans

Fire Safety In The Home

Remembrance Isn’t Just For November – It’s For Every Day Of The Year – We Will Remember Them

Posts By Topics

Twitter News

The Music4ME Project

City Of York Council Meets Up With The York ME Community To Talk All Things ME Awareness !

Calling All York Sports And Fitness Clubs, We Need Your Help !

The York ME TGA Shield – Inter Company Fantasy Football League

Calling all York Businesses, Clubs and Venues, sign up now for the new Fantasy Football season and support your local ME Community !

Bransby Wilson Parking Solutions are trying hard to defend their title this season, but NG Plumbing and Heating are looking favourites to steal their crown !

We’ve Been Raising ME Awareness At York Explore Library !

Why Not Come Along To The York ME Community Coffee Club This Month ?

Featured Article On The ME Story By Nathalie Wright Of The Independent

#MEAwarenesshour

What Does Myalgic Encephalomyelitis (ME) Actually Mean Anyway ?

Mike Harley’s EU Marathons For ME

Carers And Disability Benefits Guide

DisabledGo In York

Get The Right Care, First Time This Winter

By The Way, The York ME Community Can Also Be Found On Facebook !

13th Invest In ME Research International ME Conference – 1st June 2018

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