Kevin Hollinrake MP for Thirsk & Malton has kindly agreed to meet with me to discuss ME. My main aim is to cover local issues and support of The York ME Community, getting local businesses and Sports Clubs involved in ME Awareness and support. If there is time, I will aim to bring up the broader national issues of ME training for GPs and Medical Students as well as the matter of the PACE Trial data release.
I also have Julian Sturdy MP working on these matters through the Department of Health.
I’m afraid I can’t take on everybody’s pet ME subject, and so ask that if you can, to try and email your MP or get someone who is able to do this. I know some have tried with limited success, but this meeting has come from an initial email in November last year, so we have to be that little annoying voice that doesn’t go away and they eventually give in and give you time.
I will give updates when there is news worth sharing, but in the meantime I will keep making some ME noise until we’re heard.