By Cort Johnson in Health Rising.
Without any warning the NIH, in a letter sent to current Chronic Fatigue Syndrome Advisory Committee (CFSAC) members, told them their services were no longer needed. The 15-year experiment that was CFSAC – a panel of ME/CFS experts brought together to advise the federal government on ME/CFS – was abruptly over. No explanation given. See ya! Bye-bye!
The Chair of the Committee, Faith Newton, told Jennie Spotila that the notice came out of the blue: “I had no idea that this [charter expiration]was even a possibility or under consideration.” Unbeknownst to the members and the ME/CFS community, the destruction of the panel had been in the works for months.
So much for supporting this still oh-so-neglected disease. We’re here for you they said…until they weren’t and with a brush of a pen and nary a good-bye, our federal advisory committee was suddenly gone. It was almost as if it had never existed.
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