By Claudia Tanner in iNews.
Clare Norton struggles to talk about the day her “beautiful” and “energetic” daughter took her last breaths just days after her 21st birthday.
As a mother, she’d felt helpless as she watched Merryn’s agonising six-year fight with severe myalgic encephalomyelitis, known as ME.
The disease had left her bed-bound for the last three years and forced to lie permanently in the dark in her bedroom with ear plugs in – hyper-sensitivity to noise, sound and touch caused her agony.
Problems swallowing and with her stomach meant that her weight plummeted to just five-and-a-half stone, and she needed to be tube fed.
Last year, Merryn, became only the second person in the UK to have ME – also known as chronic fatigue syndrome – listed on a death certificate.
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