NICE, The Media And The Cultural Problem Of Myalgic Encephalomyelitis (ME)

Valerie Eliot-Smith


By Valerie Eliot Smith.


RE-CAP: the ongoing NICE guideline in development (GID) process.

In 2017, the English National Institute for Health and Care Excellence (NICE) began the process of updating the existing guideline on myalgic encephalomyelitis (ME), originally published in 2007. The draft consultation documents were published on 10 November 2020, followed by a six-week consultation period concluding on 22 December 2020. Final publication is expected on 21 April 2021.

NOTE: “myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome” (NICE’s terminology) is the subject of numerous different names and a confusing variety of case definitions. For the purposes of this blog, it is ME, the complex neuroimmune disease with which I have lived since 1981.


A reminder of my observations on the draft guideline document from my previous post.  (This is just a snapshot of some significant points. There are many others):


To read the rest of this story, click on the link below:


Link to NICE and ME story

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