PACE Trial’s Forbidden Fruit, Part 3: Charities Must Echo Patient Calls For Data Release

PACE

 

A Blog by The Self Taught Author.

 

I recently wrote about the Freedom of Information (FOI) request that the Information Commissioner upheld, ordering Queen Mary University of London (QMUL) to release the data requested from the PACE trial. I provided an example of exactly what data was requested to demonstrate that the release would not include any personal identifiers of patients from the trial. I also highlighted the scaremongering of the PACE authors and their institutions that is misleading people into thinking the data is personal data when it is not. Before that, I wrote about why we must be allowed to see the data.

QMUL released a statement about the case, stating that they were seeking advice of patients, but they have not explained how this advice is going to be sought or under what conditions.

 

To read the rest of this blog, click on the link below:

 

Link to PACE Blog


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