Hypothesis Predicts Major Failure Point In Chronic Fatigue Syndrome (ME/CFS)

By Cort Johnson in Health Rising. After attempting to explain the cardiovascular issues in ME/CFS, Klaus Wirth and Carmen Scheibenbogen take on the energy and muscle issues. Warning – this is complex! Klaus Wirth and Carmen Scheibenbogen brought the chronic fatigue syndrome (ME/CFS) world something entirely new in 2020 with their hypothesis paper, “A Unifying […]

Honorary Fellows And DwME Leadership Cited, Highlighting The Medical Profession’s Move Towards Belief And Support

Doctors With ME in The Guardian. Doctors with M.E. Honorary Fellows and Leadership were quoted extensively in a recent article article about post-viral disease by Christina Frangou. Published in the Guardian, the article has been well received by experts in the field and is entitled“‘I felt betrayed’: how Covid research could help patients living with chronic fatigue […]

The York Access Hub

There’s a new website launching in York soon called the York Access Hub.  It will offer free advertising to York businesses including text, photos and a little information as to how accessible your business is to the disabled community. The idea is that it will be the one stop shop for visitors to York, either […]

Open Letter: Being A Carer For My Wife With ME

From the ME and Me Blog. Martin met his wife over a decade ago, he’s watched as ME attacks the person he loves. His knowledge of ME has grown over the years and he’s now Lex’s husband and carer. Read his open letter below. By Martin Bates. Hi all, I met Lex 11 years ago […]

An App To Help Assess The Severity Of Symptoms In Chronic Fatigue Syndrome

Research News From UNIVERSITAT AUTONOMA DE BARCELONA. Chronic fatigue syndrome / myalgic encephalomyelitis (CFS/ME) is a disabling disease, in which people have great difficulties in carrying out their daily activities. Despite its high prevalence, there are still no effective tools for its diagnosis, monitoring and treatment. To better understand and promote follow-up, as well as […]

Position Statement: 2021 NICE Guideline Update

From Doctors With ME. On the 10th of November 2020, the National Institute for Health and Care Excellence (NICE) published its draft updated guideline on the diagnosis and management of myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome (ME/CFS). NICE has updated its 2007 recommendations on the use of psycho-behavioural treatments for ME/CFS, concluding that Graded Exercise […]

The Importance Of Listening In Treating Invisible Illness And Long-Haul COVID-19

By Dorothy Wall MA in AMA Journal of Ethics. Abstract Primary and specialty care clinicians strive to base diagnoses and treatment on specific, measurable abnormalities. Yet those with invisible, controversial illnesses such as myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) often have symptoms not explained by standard laboratory values. For instance, one of the cardinal features of […]

Buckingham Palace Refuses To Release Figures On Disabled Staff

By John Pring in Disability News Service. Buckingham Palace has refused to publish figures showing how many of its employees are disabled people, despite publishing similar figures for minority ethnic staff. The royal household’s annual report and accounts, published last week, show that 8.5 per cent of its 499 employees were from ethnic minorities, as of […]

Follow-Up To Previous Post On Responses To The Draft NICE Guideline For “ME/CFS” + The Need For A Communications Strategy Rethink

By Valerie Eliot Smith. This post follows up on some of the feedback from my previous post on possible community responses to the draft NICE guideline for “ME/CFS”. A number of points have been raised directly and on social media. It’s easier to address them here rather than trying to pick them off individually.  NICE GUIDELINE RESPONSES Re-cap […]

Beyond Bones: The Relevance Of Variants Of Connective Tissue (Hypermobility) To Fibromyalgia, ME/CFS And Controversies Surrounding Diagnostic Classification: An Observational Study

By Jessica A Eccles et al in RCP Journals. ABSTRACT Background Fibromyalgia and myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) are poorly understood conditions with overlapping symptoms, fuelling debate as to whether they are manifestations of the same spectrum or separate entities. Both are associated with hypermobility, but this remains significantly undiagnosed, despite impact on quality […]

‘I Felt Betrayed’: How Covid Research Could Help Patients Living With Chronic Fatigue Syndrome

By Christina Frangou in The Guardian. In the fall of 2016, Ashanti Daniel, a nurse in Beverly Hills, California, went to an infectious disease physician looking for answers about a weird illness she couldn’t shake. After falling sick with a virus four months earlier, she still felt too tired to stand up in the shower. The appointment […]

The Salford Pals

On the eve of the anniversary of the start of the battle of the Somme, I was reminded of this: THE SALFORD PALS Waiting for the whistle blastIn a war they said would never lastThe counting down from ten begunNervous feet on the bottom rung From the bowels of their dirty trenchLeaving safety, leaving stenchThiepval […]

Bioenergetic And Proteomic Profiling Of Immune Cells In Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients: An Exploratory Study

From MDPI. Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a heterogeneous, debilitating, and complex disease. Along with disabling fatigue, ME/CFS presents an array of other core symptoms, including autonomic nervous system (ANS) dysfunction, sustained inflammation, altered energy metabolism, and mitochondrial dysfunction. Here, we evaluated patients’ symptomatology and the mitochondrial metabolic parameters in peripheral blood mononuclear […]

BMJ Rapid Response Re: ME/CFS And Long Covid: Moving Beyond The Controversy – By Dr Charles Shepherd

From The ME Association. An article by Melanie Newman was published in the British Medical Journal on 24 June, and included an interview with Dr Charles Shepherd (Hon. Medical Adviser to the ME Association). While we did not see the final article before publication, and are not happy some of the opinion aired by certain professionals, it […]

NHS Data Gathering: Government Plans To Collect And Share Health Records Are Hugely Concerning – Here’s Why

By Itzelle A Medina in The Conversation. The GP records of England’s 61 million NHS users are set to be gathered into a new database which third parties will be able to access. The new data-sharing scheme, called General Practice Data for Planning and Research (GPDPR), will “pseudnoymise” the patient data it collects and shares. NHS […]

Chronically Ill And Disabled Workers Endure Regular Discrimination In UK Workplaces, Study Finds

By Natalie Morris in Metro. A new report has revealed the discrimination experienced by chronically ill and disabled people – who comprise 1 in 4 of the UK workforce. Around one in four people of working age are chronically ill or disabled, more than a third (38%) of these people say their health needs were […]

Possible Responses To The New NICE Guideline For “ME/CFS”

By Valerie Eliot Smith. THE UPDATED NICE GUIDELINE FOR “ME/CFS” (sic) Background In 2017, the English National Institute for Health and Care Excellence (NICE) began the process of updating the existing guideline on myalgic encephalomyelitis (ME), originally published in 2007. Within the UK, Scotland and Northern Ireland have their own equivalent processes and legal systems. This post relates […]

Trial By Error: Null Outcomes Presented As Success In Yet Another CBT Trial from Prof Trudie Chalder

By David Tuller, DrPH i Virology Blog. Trudie Chalder, a professor of cognitive behavior therapy (CBT) at King’s College London, has recently published yet another high-profile paper: the main results for “efficacy” from a trial of CBT for patients with so-called “persistent physical symptoms” (PPS) in secondary care. As usual with this group of investigators, things haven’t turned […]

The Education Of An Unlikely ME Advocate

By Art Mirin in Health Rising. Art Mirin seemed hardly the person to lead a movement.  A retired mathematician who’d been creating advanced climatological models at the famed Lawrence Livermore National Laboratory in California, Art had never done advocacy before. He had a sick daughter, though, and he wanted to contribute.  A meeting at an […]

Is Long COVID Leading To A Tipping Point In Attitudes Toward Chronic Illness ?

By Sunshine Mugrabi in Rooted in Rights. Could long COVID spell the end of medical gaslighting? Let’s hope so. When Kathy Flaherty, a 53-year-old attorney and nonprofit executive director, got COVID-19 in March 2020, her friends said, “see you in two weeks.” Two weeks came and went, but she was no better. A former marathon runner, […]

Summary Of The CDC Evidence Review

From ME/CFS Skeptic. The Centers for Disease Control and Prevention (CDC) have commissioned a systematic review on the management of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The review is conducted by the Pacific Northwest Evidence-Based Practice Center (EPC) at Oregon Health and Science University. A draft report was released on 17 May 2021 and interested individuals or organizations […]

When Disease Research Gets Personal

By Claire Concannon in RNZ. Looking for answers Warren Tate hadn’t heard of the disease that would become such a big part of his life until his 14 year-old daughter, got glandular fever. Instead of recovering normally from this viral infection, her fatigue, pain and noise sensitivity symptoms worsened, and, months later, after ruling out […]

The York ME Community © 2015
Powered by Live Score & Live Score App