Paradigm Lost: Lessons For Long COVID-19 From A Changing Approach To Chronic Fatigue Syndrome

By Brian Hughes, Steven Lubet and David Tuller in Health Affairs Blog.

For decades, patients with chronic fatigue syndrome, the poorly understood illness also known as myalgic encephalomyelitis/chronic fatigue syndrome or ME/CFS, have experienced neglect from the medical establishment and dismissal from society at large. In recent months, however, the condition has gained remarkable visibility, since many survivors of COVID-19 are reporting the sort of profound exhaustion, cognitive impairment, orthostatic intolerance, recurrent relapses, and other medical complaints that characterize ME/CFS. The New York TimesThe Guardian, the BBC’s “Newsnight,” and other major news outlets have extensively covered the apparent overlap between ME/CFS and what has been dubbed Long COVID or, more formally, post-acute COVID-19 syndrome.

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