From Invest in ME Research.
Following the astonishing decision by NICE to “pause” the release of the 2021 Guideline on the Diagnosis and Management of Myalgic Encephalomyelitis (ME or ME/CFS) – CG869  then the review that Invest in ME Research was preparing had to be stalled also.
NICE has been totally lacking in transparency with this decision.
The charity has written to NICE management to complain about this action .
We do not yet know what course of action NICE will take regarding the CG869 guidelines.
Leading up to the planned publication of the final guidelines we had prepared a statement based on our review of the final guidelines document.
This statement was meant to precede the publication of our review and the official final documents from NICE regarding our review of the draft guidelines.
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