‘Postcode Lottery’ Claims Over Treatment For ME



By Geraldine Scott in the Eastern Daily Press.


“Postcode lottery” claims have been made over treatment for myalgic encephalomyelitis (ME) in Norfolk and Suffolk, as one sufferer said variations in care had left her angry and abandoned.

Jo Moss, 43, from Norwich, was diagnosed with ME 12 years ago. She described feeling like she had been “missing behind closed curtains” ever since and said: “Like millions of others I live my life from one darkened room, I rely on carers for even my basic needs and I feel isolated from the outside world.”

But she said the illness had been made worse by not having access to treatment she said would give her “hope for a better future”.

Dr Luis Nacul, director of the CureME research group, presented clinical commissioning groups (CCGs) in Norfolk and Suffolk a proposal in 2016 for a cost-neutral consultant-led service.

The recommendations were accepted by CCGs in Suffolk.


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