Myalgic encephalomyelitis, or ME, is little understood by the general public. That lands some parents in the firing line.
Angus Rodwell was an energetic, playful child from Suffolk, UK. Then, at the age of eight, he fell ill with a series of viral infections. Five years on, the 14-year-old is now mostly bed-bound due to myalgic encephalomyelitis (ME, also known as chronic fatigue syndrome), a poorly understood neurological condition.
His many symptoms include extreme exhaustion, migraine headaches, and pain. He is sometimes too weak to walk. He suffers from what doctors call “crashes,” where his symptoms intensify if he does too much activity. Sometimes, these can be triggered by something as minor as getting dressed.
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