Children With ME

Parents And Children Missing From Their Lives Due To M.E.

Children

  From ME Action.   Myalgic encephalomyelitis (ME) is a debilitating, chronic disease that steals so much from the person. Parents with ME are missing precious days and years with their children due to the disease, and parents of children with ME are fighting to provide care for their sick children in a world where there […]

Understanding ME And Chronic Fatigue Syndrome In Children

Children

  By Claire Tripp in teachwire.   Longterm and little-understood illnesses like ME, or chronic fatigue syndrome, can leave pupils misdiagnosed, isolated and forgotten, so it pays to spot the signs, says Claire Tripp…   You leave work with “Miss! Miss!” still echoing in your ears, an armful of marking, and thinking of Ellie. Once […]

Social Services Can Threaten Families Of Children With Chronic Fatigue

Educating-Children-Teens-with-CFS

  By Natasha Wynarczyk Myalgic encephalomyelitis, or ME, is little understood by the general public. That lands some parents in the firing line.   Angus Rodwell was an energetic, playful child from Suffolk, UK. Then, at the age of eight, he fell ill with a series of viral infections. Five years on, the 14-year-old is now […]

Children With Chronic Fatigue Syndrome Often Wait More Than A Year For Diagnosis

Australia

  by Sasha Nimmo Researchers at the Murdoch Children’s Research Institute in Melbourne confirmed that paediatric chronic fatigue syndrome (Fukuda criteria) causes significant disability and little is known about how common the condition is or how it is currently managed in Australia. More than half of children have to wait a year or longer before […]

Myalgic Encephalomyelitis – Unknown Cause. No Cure. New Hope.

ME 1

  By Lily Williams in ASBMBTODAY.   Lizzie Mooney is 12 years old. She is tall for her age with long blond hair. She likes to wear Chicago Bears pajama bottoms and a hoodie. She’s funny, making up games and teasing her siblings. Lizzie excels in reading and math. She spends time crafting and watches […]

ME: What You And Your School Need To Know

childcare

By ME Foggy Dog in Innovate My School.   Founder of ME Foggy Dog, ME advocate and ME sufferer. I have raised over £10k for ME research since 2014, and am now in the process of setting up a social enterprise that will offer ME training to healthcare, business and education professionals. I don’t ‘do’ […]

Children And Families Need More Support Over Chronic Fatigue, Says ME Charity

childcare

  By Chris Ord  in The Oxford Post.   AN OXFORD mother has backed a charity’s calls for more support for children in the county suffering from the chronic fatigue condition ME. Iona Fabian from Aston has said doctors, schools and social services must be more informed over the condition which has affected her 20-year-old […]

Myalgic Encephalomyelitis. Unknown Cause. No Cure. New Hope.

ME

By Lily Williams in ASBMB Today. Lizzie Mooney is 12 years old. She is tall for her age with long blonde hair. She likes to wear Chicago Bears pajama bottoms and a hoodie. She’s funny, making up games and teasing her siblings. Lizzie excels in reading and math. She spends time crafting and watches science […]

ME/CFS In Young People: A Primer

Russell Logan

    By Russell Logan in Shout Out About ME.   Leading international me/cfs experts have written a primer for diagnosing and managing the illness in children and adolescents. The new primer lifts the veil on a poorly-recognized disease ravaging our most vulnerable, leaving some children wheelchair dependent, housebound, or bedbound and many more unable […]

NICE Refuse To Take Down Harmful Treatments 25,000 Children Harmed ?

NICE logo

  By Tina Rodwell.   I had my reply from NICE. For some reason David Hahalam did not want to talk to me. Well I am not important, am I? After all I am just one of the 25,000 parents that would like ME taken seriously to protect the children from harm. A good solid […]

Children With ME

Radio

    From BBC Radio 4.   File on 4 investigates claims that parents whose children suffer from a crippling illness that leaves them sick and permanently exhausted have been falsely accused of child abuse. Parents of children with Myalgic Encephalomyelitis (ME) reveal how they have been investigated and referred for child protection measures on […]

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Diagnosis And Management In Young People: A Primer

Children

    From Frontiers in Pediatrics.  Authors as listed.   Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex disease that affects children and adolescents as well as adults. The etiology has not been established. While many pediatricians and other health-care providers are aware of ME/CFS, they often lack essential knowledge that is necessary for diagnosis […]

Living With M.E. Series …. A 17 Year Old Boy Who Is Living With M.E. For The Past 5 Years

Missing Shoes

  From LifewithMEWithoutme.   With May being International M.E. Awareness Month and with the #MillionsMissing campaign taking flight, it is the hope that we can bring the lived experiences of people with M.E. to the fore, in an effort to highlight the illness, the symptoms, the lack of care, the neglect, the isolation, the lack […]

The York ME Community © 2015
Powered by Live Score & Live Score App