Chronic Illness

No One Prepares You For The Grief Of Chronic Fatigue Syndrome

Lonely

    By Asa Lovell  in The Mighty.   No one prepares you for the grief and feelings of inadequacy you get when you have chronic illnesses. They make such a huge impact on your life that they derail you, stop you from achieving the things you’re working for in the time you’d planned. You […]

Confessions Of A Chronic Fatigue Skeptic

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    By Shell Pettifer in The Mighty.   “Chronic fatigue, my arse!” I have a confession to make. I have oftentimes throughout my life internally judged people for being overly dramatic. There, I’ve said it. I am a closet censure. I am guilty of internal eye rolls, doubtful compassion and quite frankly some completely uneducated […]

What I Hear When You Tell Me ‘But You Look Fine’

Frustration Chronic Illness

  By Melanie Leong  in The Mighty.   Fairly recently, I had this weird experience where a person with a chronic illness threw the “but you look fine!” line on me. I am pretty certain I didn’t respond. In fact, I don’t really recall what happened afterwards because I was in shock. Isn’t it chronic illness code that we […]

Practical Solutions To Everyday Spoonie Problems

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  By Jo Moss in A Journey Through The Fog.   Having a chronic illness means everyday tasks can be challenging, exhausting and painful. But there are steps we can take to make life easier, to limit the stress caused and to conserve our energy for more enjoyable activities. Here are some practical solutions to […]

The Secret Of Change: Spend Your Energy Wisely With Chronic Illness

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    From A Chronic Voice.   Chronic illness is a monster consumer of energy, leaving little to spare. Why waste it on unnecessary thoughts and unchangeable circumstances? So I ask myself, “what can I do to make things better? Is there something I’d like to create for myself today? How can I become a […]

The Struggle To Balance Between Resting And Using Energy When You’re Chronically Sick

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  By Chelsea Morris in The Mighty.   Balance! How do we achieve it? I think for any human being balance is very difficult. But for those of us with chronic pain and disease it seems to be even harder. I wake up one day and feel actually pretty good. So I want to accomplish more than […]

When Illness Makes You Give Up The Commitments And Activities You Love

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  By Lexie in The Mighty.   I just made one of the hardest decisions I’ve ever had to make. Many of you can relate to my story. I’ve seen countless doctors, integrative general practitioners, naturopaths, chiropractors, and specialists over the last few years. When they couldn’t explain my symptoms, they diagnosed me with chronic […]

Running On Empty – Do Not Pass “Go”

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  By Sam in the My Medical Musings Blog.     We all have moments in life when we hit a brick wall physically and perhaps mentally. It happens to the healthy and chronically ill alike. I remember in my “healthier” life, I’d get to the end of my working week and I’d be exhausted. […]

When You Can’t Stop Mourning The Person You Were Before Chronic Illness

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By Jamie Janinski in The Mighty.   Four years ago, I went to my doctor complaining of excessive tiredness and having so much pain in my hands that I couldn’t squeeze my shampoo bottle while showering. Four years ago, I received a call telling me I needed to see a rheumatologist right away because my […]

12 Things That Happen When You Have A Chronic Illness

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  By Ally Teixeira in The Mighty.   Having a chronic illness isn’t easy. All of us chronically ill warriors may feel alone, but we all have a lot in common! Here are 12 things that happen when you’re chronically ill. You know you have a chronic illness when… 1. Doing your hair feels like some serious […]

Chronic Illness: Aren’t You Glad It Isn’t Worse ?

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  From The Brainless Blogger.   Okay, so stop telling people it could be worse. Yeah. It could be worse. It can always be worse. But it sure as hell could be better. We are aware it could be worse. We tell ourselves this sometimes to get through. Hell, sometimes worse happens and we are […]

The Difference Between ‘Rest’ And ‘Bad’ Days For My Chronic Illness

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    By Amy Saunders in The Mighty.   Living with an illness is hard. It means being ill. It means constant worry that you’re going to be ill. And it means your life is spent managing your illness to avoid being ill. You can have days when you feel on top of the world […]

Things I Wish I Knew Before I Bought My First Powerchair For Chronic Illness

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    By Natasha Lipman.   It took me a long time to come to terms with deciding to become a wheelchair user, but when I knew that I was ready it was like a switch flicked in my brain. For the first time in years, I had a ‘real job’, and even the few […]

If Your Chronic Illness Is Making You Want to Give Up

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  By Candida Reece in The Mighty. Having a chronic illness can mean life can be rough. It means going to the store with only one sock on because you didn’t want to go through the pain to find the other one; or maybe your shirt is inside out, or you have two different shoes, or clothes […]

5 Reasons We Should Never Assume Someone Isn’t In Pain

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      By Christina Carrell in The Mighty.   I was sitting in one of those canvas painting classes, waving a paintbrush back and forth in a very amateur attempt to recreate Monet’s “Bridge Over a Pond of Water Lillies” (spoiler: I’m not an artist and the end result bore little resemblance to the […]

15 Things People With Chronic Illness Mean When They Say ‘I Don’t Feel Good’

Frustration Chronic Illness

  By Veronica Vivona in The Mighty.   Many of those with chronic illness may be used to saying they’re “good” or “fine” when it comes to how they’re feeling. It doesn’t always mean they’re actually good or fine though. It might just be what they’re portraying to the world. They may do this for a variety of […]

Why People With Chronic Illness Can’t Simply ‘Push Through’

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  By Alicia Thompson in The Mighty.   It never ceases to frustrate me to realize how pervasive the “Just Do It” culture is. Whenever I discuss my physical limitations with others, I’m often met with the suggestion that I simply need to “push through.” Which leaves me wondering, what does this phrase really mean […]

Researchers Net New Theory On Vitamin D And Cognitive Disorders

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      From The University Of Queensland.   New research from QBI may explain why vitamin D is so important to brain plasticity, and how vitamin D deficiency leads to a range of cognitive disorders, including depression and schizophrenia. This paves way for new research that could lead to preventative strategies or better interventions […]

The ‘Energy Bubble’ Analogy That Can Help Explain Pacing With A Chronic Illness

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    By Christina Baltais in The Mighty.   Pacing is about energy conservation, both physical and emotional. When you’re living with a chronic illness, it’s an essential skill for preventing flare-ups or “crashes.” This “energy bubble analogy” can be useful to help you visualize and understand the limits of your energy, and help you explain them […]

We Need To Stop Talking About Chronic Illness In This Particular Way

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  By Annie M. In The Mighty.   Have you ever noticed how people talk about illness, even mild illnesses like colds? We often say we are fighting them. We battle colds and fight the flu. We call our friends with scary medical conditions “warriors,” and we encourage them in their “battle” against their illness. It’s true […]

The Discrimination I Experience As A Young Person With Invisible Illness

Invisible Illness

  By Nora W in The Mighty.   There are thousands of chronic illnesses and even more people who have chronic illnesses. It’s hard for most people to believe, but yes, young people have various chronic illnesses too. I cannot tell you how many times I have told somebody I have a chronic illness and the response I […]

Invisible Or Visible: There’s No Wrong Choice

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  By Lisa Alloto in Chronic illness: Realistic Optimism Blog.   Depending on the situation or who we are interacting with, we may portray ourselves in different ways.   We often strive to be the person we need to be to achieve optimal success in the moment. In some situations, we may find ourselves to […]

The Guilt Of Prioritizing Yourself When You’re Chronically Sick

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    By Meridith O’Connor in The Mighty.   I’m in a constant state of risk, using my energy towards something with the potential to cost me other life events later. It’s a difficult balance, knowing when to push through and feel sick later, or prevent the latter by taking precautionary care of myself first. Everyone always […]

4 Strategies For Dealing With Chronic Illness

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  Having chronic illness or pain can be very frustrating and debilitating. It affects all areas of your life and your physical as well as your emotional well-being. The upside is that it can be manageable with the right approach and mindset. Review the following four strategies so that you can better deal with chronic […]

4 Essential Limitations To Set When You’re Chronically Ill

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By Tony Bernhard J.D. in Psychology Today? For many years after I became chronically ill, I was in denial about the need to set limitations in order to keep my symptoms as manageable as possible. I refused to believe that I might not recover my health. I thought: “You get sick; you get better. It’s as […]

When You’re Stuck In The Middle Of ‘Sick’ And ‘Well’

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  By Cherilyn Schutze in The Mighty.   Stuck in the middle of sick and well. That’s how I feel. Chronic illness is never easy, whether you are the person who’s sick, or the caretaker or family member of a person with a protracted illness. Before I became ill, I was very busy multi-tasking, care-taking, mothering, wife-ing, and working. […]

If Someone With Chronic Illness Says They’re Tired, Please Think Before Responding, ‘Me Too’

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    By Kaisha Holloway in The Mighty.   When being “tired” is more than just feeling tired… Don’t you just hate it when people try to get one up on you, by always striving to be worse off than yourself? Don’t you just hate it when people assume that tiredness is the same for […]

17 Things People With Chronic Illness Mean When They Say ‘I’m Tired’

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  By Erin Migdol in The Mighty.   Everyone has said “I’m tired” at one point or another. But those deceptively simple words can have so many meanings. Without knowing the extent of the exhaustion someone with chronic illness is feeling when they say they’re tired, people may think your “tiredness” can be cured by a nap or early night, like theirs, not […]

When You’re Stuck In The Middle Of ‘Sick’ And ‘Well’

Lonely

  By Cherilyn Schutze in The Mighty.   Stuck in the middle of sick and well. That’s how I feel. Chronic illness is never easy, whether you are the person who’s sick, or the caretaker or family member of a person with a protracted illness. Before I became ill, I was very busy multi-tasking, care-taking, mothering, wife-ing, and […]

Why People With Chronic Illness Can’t Simply ‘Push Through’

Chronic

By Alicia Thompon in The Mighty.   It never ceases to frustrate me to realize how pervasive the “Just Do It” culture is. Whenever I discuss my physical limitations with others, I’m often met with the suggestion that I simply need to “push through.” Which leaves me wondering, what does this phrase really mean to […]

Why My Chronic Fatigue Is Like A Cell Phone Battery

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  By Christen Marie in The Mighty.   For those of us dealing with chronic pain or chronic illness such as fibromyalgia, autoimmune disorders, or any host of other physical or mental health issues, there is often this one overriding issue that can wreak havoc on our lives and yet be very difficult to explain to the average person. Chronic fatigue. Chronic […]

ME/CFS and Freeze: A Metabolic State Of Hibernation That Is Not In Your Head

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By Veronique Mead in Chronic Illness Trauma Studies.   This post introduces the relationship between chronic fatigue syndrome aka ME/CFS and freeze and similar death-like states such as hibernation. It draws from a 2016 study showing statistically significant objective metabolic changes in ME/CFS and how it is a very real physiological state that is not psychological. […]

10 Feelings That Alternate in My Mind As I Live With ME/CFS

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  By Kendall Kuzma in The Mighty.   For someone in reasonable health, it can be hard to understand what a loved one is going through if they are struggling with some kind of ongoing health issue. It’s especially tough for everyone if the illness is one which is unseen, as in, no obvious signs of the […]

The UK’s General Medical Council Just Threw 250,000 Disabled People Under A Bus

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By Steve Topple in The Canary.   A response from the General Medical Council (GMC) to hundreds of complaints has effectively abandoned 250,000 disabled people. It also demonstrates the GMC’s contempt for the patients it’s supposed to protect. Moreover, in dismissing patient’s concerns, it’s whitewashed what one MP believes could be the “biggest medical scandal of the 21st century”. […]

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