Chronic Illness

Chronically Ill And Disabled Workers Endure Regular Discrimination In UK Workplaces, Study Finds

By Natalie Morris in Metro. A new report has revealed the discrimination experienced by chronically ill and disabled people – who comprise 1 in 4 of the UK workforce. Around one in four people of working age are chronically ill or disabled, more than a third (38%) of these people say their health needs were […]

I Already Have A Job… Getting Through The Day

From Chronic Illness Inclusion. Our latest Report The ‘I already have a job…’ report, by Chronic Illness Inclusion and Leeds University Business School, sets out how government, employers and the benefits system are failing millions of people in the UK with Energy Limiting Chronic Illnesses – (ELCIs). Although one-in-three disabled people of working age experiences problems […]

The York M.E. Community – M.E. News !

Below, you will find stories from around the world regarding M.E. Research and people in the news, local, national and international. The site is updated every day, so please keep coming back to find out what’s happening. You might also want to have a look at the tabs above for more interesting stuff !  It […]

8 Favourite Game Apps On My Phone

From Len’s Cup Of Tea Blog.   Most of us spend quite some time on our phones these days, and I am certainly no stranger to that either. As someone with a chronic illness who needs to rest quite a lot, low energy games on my phone are a great way to spend my time […]

City Of York Council Ban Blue Badge Holders From City Centre

  There are approximately 49,058 cities, towns and villages in the UK. The disabled spend is around £212 billion per year. I wonder how many of these places have banned Blue Badge holders from their centres stopping them spending some of that money with struggling retailers? York has..

It’s OK You Admit Your Chronic Illness Sucks

  By Kalee Oravec  in The Mighty. I’ve been sick my whole life. I’ve never been able to keep up with my friends because of fatigue, and my pain interfered with all of my past hobbies. You might think I’m used to it by now, but I’m not. No, it still sucks. A lot. It sucks because I […]

This Is What Living With Chronic Pain Is Really Like

    By Julia Ries in Huffpost.   This story is from HuffPost in the US – and part of Pain in America, a nine-part series looking at some of the underlying causes of the opioid addiction crisis and how we treat pain. Chronic pain comes in all different shapes and sizes — it burns, […]

It Can Be Hard For Men Of My Generation To Talk About Their Feelings

By Mandy Appleyard in The Telegraph.   Older people face a crisis of loneliness but even a quick chat can make a big, big difference. Here’s how JJ and Steve formed a connection through Age UK Bromley and Greenwich JJ, 80, is a retired construction worker from Eltham in London When my wife Madeleine died, […]

To Those Who Find My Illness ‘Hard To Understand’ When They See Me Smiling

    By Tiffany Early in The Mighty.   My husband and I had a conversation about how others perceive my illness the other day. It wasn’t a confrontational conversation — it was more the random musings that happen when you’re waiting for dinner to come out of the oven. Joe mentioned that a mutual friend had once […]

Whatever You Do Today, Let It Be Enough

    By Jo Moss in A Journey Through The Fog.   I wrote this post especially for ProHealth Inspirational Corner and it first appeared there on the 11th March 2019. “Your worth is not measured by your productivity” We live in a society that teaches us that unless we are pushing ourselves outside our comfort zone, […]

You Don’t Look Sick: ‘You Might Think I Look Better But I Still Feel Horrible Every Day’

By Laura Abernethy in The Metro. Amy Norris, 23, from Southampton has postural orthostatic tachycardia syndrome (PoTS) and chronic fatigue syndrome (also known as myalgic encephalomyelitis) (CFS/ME). As part of our, You Don’t Look Sick series about invisible illnesses, Amy chatted to Metro.co.uk about living with both conditions and how most people still don’t understand chronic […]

Challenging Insensitive Comments And “Who Has It Worse” Competitions

      By Jo Moss in A Journey Through The Fog.   “Life is not a competition. Life is about helping and inspiring others so we can each reach our potential.” Does anyone else feel like they have to bite their tongue a lot? Do you hide a lot of what you are feeling […]

Developing Chronic Fatigue Taught Me To Live In The Moment

  By Chloe Cooper in Voices.   In early January 2019, I was doing what I do every year – reviewing my achievements of the past 12 months and setting my goals for the year to come. Like countless others who go through the same process, this felt like an essential step to becoming the […]

“Neither Dying, Nor Recovering”: Learning From ICUs To Solve ME/CFS And Fibromyalgia – A Synopsis

    By Dominic Stanculescu in Health Rising.    From Dominic   I believe observations made in Intensive Care Units can further understanding of ME/CFS.   Indeed, following a severe injury or infection some ICU patients fail to begin recovery for unknown reasons. This condition, termed “chronic” or “prolonged critical illness,” is characterized by neuroendocrine dysfunctions perpetuated by cytokines and oxidative/nitrosative stress. Regardless of the initial injury or […]

You Don’t Look Sick: ‘People Think I’m Too Young To Be Disabled’

    By Laura Abernethy in The Metro. ‘But you don’t look sick’ is something that people with chronic illnesses often hear. Others judge them based on their idea of what disability looks like. Our series speaks to a different person each week about their experiences of living with a long term condition and how […]

The Best Analogy To Explain ‘Energy Debt’ With Chronic Illness

    By Teresa Ledwith in The Mighty.   The other day I was struggling, as many of us with chronic illness do, to explain myself to a friend. As usual, I had to give up. I can’t explain to her why it’s not easy for me to drive in and out of my nearest city (an […]

Why Friendships Can Be Difficult With A Chronic Illness

    By Jo Moss in The Mighty.   There is a saying that goes, “It’s amazing how chronic illness turns friends into strangers and strangers into friends.” Maintaining friendships can be difficult for those of us with chronic illness. It may be hard for friends to understand the challenges we face, and the limitations our ill-health places on […]

Struggling to Accept the Days When Illness Keeps Me From Doing Anything

By Sally Doherty in The Mighty.   I’ve had some of those awful days recently (they happen now and then, and more often than I’d like). You know the type: days when instead of your bed being somewhere that you go to rest, your bed becomes a prison that you can barely get out of. […]

I Believe You: Three Powerful Words For The Chronically Ill

    By Laura Chamberlain in Laura’s Pen.   Sometimes, you feel alone in your suffering and misunderstood. Sometimes, all you need is someone to say they believe you… I believe you. Those are three very powerful words. When I put together my post on what you SHOULD say to your chronically ill friend, I received […]

16 Everyday Tasks, And What They Feel Like For A Person With Chronic Fatigue

    By Paige Wyant in The Mighty.   One of the most common (and frustrating) symptoms those with chronic illness face is chronic fatigue: an overwhelming sense of exhaustion that can be debilitating, and is much different than “just being tired.” (It’s also different than chronic fatigue syndrome/myalgic encephalomyelitis, a separate illness with its own set of symptoms.) […]

The Struggle Of Identifying Pain

    By Lindsay Glenne.   How do you know when to seek help? When you have a chronic illness, it’s really hard to differentiate between your usual pain, and something new. With an illness like fibromyalgia, it can sometimes be even harder. It effects every single part of your body and a flare can […]

GABA and Glutamate in Fibromyalgia and Chronic Fatigue Syndrome

  By Adrienne Dellwo in Very Well Health.   GABA and glutamate are neurotransmitters—chemical messengers in your brain. One is calming, one is stimulating, and they’re supposed to stay in balance with each other. So what happens if this balance is thrown off?​ Some research suggests an imbalance of these two substances may play a role […]

A Love Letter To Anyone Who Struggled To Shower Today

    By Sarah Mariann Martland in The Mighty.   This is a love letter to all those for whom showering is repeatedly a laborious exercise, physically, emotionally or both. To those who spend days putting it off because you know just how exhausting or painful it feels, right down to your bones, just to stand under the […]

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