Cort Johnson

Spinal Stenosis, Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia: The Spinal Series #3

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  By Cort Johnson in Health Rising.   The Spinal Series This is part three of a series examining spinal issues which may mimic chronic fatigue syndrome (ME/CFS) and fibromyalgia. The first two in the series involved two very ill ME/CFS patients who have recovered or are recovering following surgery to correct craniocervical instability. Could […]

Spinal Stenosis, Chronic Fatigue Syndrome (ME/CFS) And Fibromyalgia: The Spinal Series #3

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  By Cort Johnson in Health Rising.   The Spinal Series This is part three of a series examining spinal issues which may mimic chronic fatigue syndrome (ME/CFS) and fibromyalgia. The first two in the series involved two very ill ME/CFS patients who have recovered or are recovering following surgery to correct craniocervical instability. Leader in the […]

“Just Be Positive!” Toxic Positivity, ME/CFS And Fibromyalgia

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  By Lori Madeira and Cort Johnson in Health Rising.    In the face of a chronic illness, our friends and family can resort to simple solutions: just try and be positive they might advise. Look on the bright side. Focus oun what you can do. It’s not bad advice, but it often comes across as out […]

A Ketamine Revolution For Depression And Pain ? Spravato, Fibromyalgia And ME/CFS

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  By Cort Johnson in Health Rising.   For years, ketamine was known for its use as an anesthetic or as a recreational drug. It had the nice benefit of being able to knock one out without impacting heart rate or breathing.  Its ability to provide quick and safe sedation saved many lives during the Vietnam […]

David Tuller On Exposing The Bad Science Behind The Biopsychosocial Effort To Define ME/CFS

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  By Cort Johnson in Health Rising. David Tuller is a unique figure in the ME/CFS universe. A reporter and editor for the San Francisco Chronicle, Salon and writer for the New York Times, the policy journal Health Affairs, and other publications, Tuller became outraged at the long history of neglect and abuse directed toward ME/CFS. His publications […]

East African Disease Informs Nath’s Search For The Cause Of ME/CFS

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    By Cort Johnson in Simmaron Research.   Could a disease found in the remote villages of East Africa end up being a model for chronic fatigue syndrome (ME/CFS)? Dr. Avindra Nath – the leader of the NIH Intramural study on ME/CFS –  thinks perhaps so. He’s not daunted by mysterious diseases and nor […]

Medscape’s Chronic Fatigue Syndrome (ME/CFS) Program Reaches Deep Into The Medical Community

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By Cort Johnson in Health Rising.   With its regular news updates, information on drugs and diseases, quizzes, conference overviews, and educational courses, Medscape, which just turned 20 years old, strives to be a kind of one-stop shop for medical professionals (and consumers). It appears to be succeeding. Producing dozens of news stories a day, […]

NIH Brings In New Faces And Looks To The Future In Accelerating ME/CFS Research Conference

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  By Cort Johnson in Health Rising.   Conferences are exciting because they’re virtually the only place one can go to learn about breaking research.  The NIH ME/CFS conference, with its bevy of new faces that’s taking place on the NIH campus itself on April 4th and 5th, certainly fulfills that need. Many of the heavy […]

Could Craniocervical Instability Be Causing ME/CFS, Fibromyalgia & POTS? Pt I – The Brainstem Series

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    By Cort Johnson in Health Rising.   Jeff had a typical ME/CFS onset: he was a young, healthy and active individual before being felled by a viral infection and a high temperature. The infection left him with headaches, dizziness, muscle weakness and pain, sound and light sensitivity, and a general sense of being […]

The Basics: A Guide To Learning, Sharing And Making A Difference In Chronic Fatigue Syndrome (ME/CFS)

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    By Cort Johnson in Health Rising.   Welcome to Health Rising. This page is designed to give you basic information on chronic fatigue syndrome (ME/CFS) and provide opportunities for you to learn about it, share your experiences, and participate in bringing about the end of this disease. It is focused on the U.S. […]

The Hummingbird: Could A Blood Flow Enhancer Help With Fibromyalgia, POTS And ME/CFS ?

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  By Cort Johnson in Health Rising. A Different Approach to Fibromyalgia “The effects of not getting good blood flow to your brain, joints and muscles?…. Fibromyalgia” – Vital Motion Erik Hiester D.O., is not your ordinary doctor. He’s an interesting blend of engineer and doctor. Hiester’s first love was biomedical engineering (B.S. and M.S.). Wanting […]

The Best, Most, Biggest And Least Of 2018 In Chronic Fatigue Syndrome And Fibromyalgia

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  By Cort Johnson in Health Rising.   The Best, Most and Least of 2018 A look back at a most interesting year which has to start with Cortene… Treatment Nicest Surprise It wasn’t supposed to go like this. First, in a disease like ME/CFS, you’re supposed find a repurposed drug or two to treat […]

Ten Ways To Prove That Exercising Will Not Cure Chronic Fatigue Syndrome (ME/CFS)

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By Cort Johnson in Health Rising.   Your family, friends and even your doctor may, probably will at some point, prod you to get moving.  They think that if you can just get on your feet again and start exercising, you’ll be so much better. It’s irritating to hear and just reinforces how isolated you […]

Filling “The Landscape Of Unmet Needs” In ME/CFS and FM: The Bateman Horne Center Pt 1

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    By Cort Johnson in Health Rising.   This is the first of a couple of blogs that will celebrate visionaries within the ME/CFS/FM communities who took action to make their visions real. Dr. Bateman was doing yeoman’s work serving the ME/CFS/FM community in her medical practice in Salt Lake City, Utah.  She could […]

Deconditioning Denied: Could A Large ME/CFS Study Put An End To The Deconditioning Myth ?

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  By Cort Johnson in Health Rising. The Deconditioned ME/CFS Patient? A huge (n=345) 1998 UK study set the stage. The smaller, less muscular hearts and carotid arteries found in ME/CFS made it clear – at least to those researchers – that both physical and cardiovascular deconditioning was present in ME/CFS. They recommended a graded exercise program to […]

Death in Chronic Fatigue Syndrome (ME/CFS) – What Has It Told Us ? The Autopsy Files

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    By Cort Johnson in Health Rising.   It’s always hard to lose a loved one, but the deaths in ME/CFS seem particularly hard. They tend to be quite painful, they often take place in the midst of a non-supportive medical system, and they’re a complete mystery. With no seeming way out it’s no […]

Could Poor Microcirculation Be Causing Chronic Fatigue Syndrome (ME/CFS) ?

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  By Cort Johnson in Health  Rising. Could the microvascular system – the small capillaries and the red blood cells that run through them – hold the key to energy problems in chronic fatigue syndrome (ME/CFS) and perhaps fibromyalgia? The idea that the blood delivery system – not some metabolic derangement per se – is […]

Tips For Newbies With Fibromyalgia And/Or Chronic Fatigue Syndrome (ME/CFS)

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  By Cort Johnson in Health Rising.   Having any disease is scary, but having chronic fatigue syndrome (ME/CFS) and/or fibromyalgia (FM) often adds a hefty dose of confusion and bewilderment to that fear.  Not only are people with ME/CFS and FM typically exhausted and in pain, but problems with short-term memory and information processing […]

GET Paper Withdrawal Shocks CBT/GET Proponents – Emboldens ME/CFS Advocates

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  By Cort Johnson in Health Rising. Our mission is to promote evidence-informed health decision-making by producing high-quality, relevant, accessible systematic reviews and other synthesized research evidence. Our work is internationally recognized as the benchmark for high-quality information about the effectiveness of health care. Cochrane  The Cochrane Reviews are the gold standard – highly respected and […]

Are “Old” Muscles Holding People With Chronic Fatigue Syndrome (ME/CFS) Down? Plus Tompkins’ Team Promises New Insights

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      By Cort Johnson in Health Rising.   “New data collectively supports the presence of specific critical points in the muscle that are affected by free radicals.” Fulle et. al. A group of pioneering Italian researchers have been studying the muscles of people with ME/CFS – a rather lonely task – for over 15 […]

Could The Brain’s Mast Cells Be Causing Chronic Fatigue Syndrome (ME/CFS) ?

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By Cort Johnson in Simmaron Research.   We propose that stimulation of hypothalamic mast cells by environmental neuroimmune pathogenic and stress triggers activates microglia leading to focal inflammation in the brain and disturbed homeostasis.” Theoharides et. al., 2018 Dr. Theoharis Theoharides is an MD and PhD who has published almost 400 papers. A pioneer in […]

GET Paper Withdrawal Shocks CBT/GET Proponents – Emboldens ME/CFS Advocates

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By Cort Johnson in Health Rising.   Our mission is to promote evidence-informed health decision-making by producing high-quality, relevant, accessible systematic reviews and other synthesized research evidence. Our work is internationally recognized as the benchmark for high-quality information about the effectiveness of health care. Cochrane  The Cochrane Reviews are the gold standard – highly respected and […]

The Metabolic Trap Shines During The Symposium On The Molecular Basis Of ME/CFS At Stanford

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By Cort Johnson in Health Rising.   If we ask Nature a question and ask it well, Nature answers. Most of the time the answer refutes our hypothesis. This time, Nature didn’t refute the hypothesis. Robert Phair Ron Davis mentioned one of chronic fatigue syndrome’s aces in the hole several times – the chance to […]

Invasion: The Source Of The Neuroinflammation In Chronic Fatigue Syndrome ?

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  By Cort Johnson in Health Rising.   Breaches in the Barrier   The last article reported that Younger speculated that people with chronic fatigue syndrome (ME/CFS) have an immune-triggered metabolic disorder.  The widespread neuroinflammation found in ME/CFS patients provides a clue, he thinks, to what’s going on. It suggests that immune cells are breaching […]

The Disability Defenders: The Workwell Foundation, Chronic Fatigue Syndrome (ME/CFS) And Fibromyalgia

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By Cort Johnson.   You don’t need to be a large organization to make a big difference. You simply need to be committed to a field (and producing jaw-dropping results doesn’t hurt either.)  Consisting of three exercise physiologists (one with ME/CFS), a clinical coordinator, and working with one of the top chronic fatigue syndrome (ME/CFS) […]

A Wing, A Prayer And Vicky Whittemore: The NIH And Chronic Fatigue Syndrome In 2018

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    By Cort Johnson in Health Rising.   “I think some people are angry for good reason.  This disease hasn’t gotten enough attention.” Vicky Whittemore   My partner and I made our way to Vicky Whittemore’s office in a building off the NIH campus. Security was tight as always. We signed in and were […]

The Case For IVIG Treatment In Chronic Fatigue Syndrome (ME/CFS), Fibromyalgia, Small Fiber Neuropathy, And POTS : IVIG#3

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  By Cort Johnson in Health Rising.   “The bottom line is that we should rethink this whole area and encourage proper clinical trials.” Dr. Nancy Klimas This article is the last of a three-part series on IVIG which came out of my attending the 2018 Dysautonomia Conference in Nashville, Tennessee. An IVIG Chronic Fatigue […]

Mission Accomplished! (????) Feds Terminate the Federal Advisory Committee on Chronic Fatigue Syndrome (ME/CFS)

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    By Cort Johnson in Health Rising.   Without any warning the NIH, in a letter sent to current Chronic Fatigue Syndrome Advisory Committee (CFSAC) members, told them their services were no longer needed. The 15-year experiment that was CFSAC – a panel of ME/CFS experts brought together to advise the federal government on […]

Autoimmune Model Proposes Chronic Fatigue Syndrome (ME/CFS) Begins In The Gut

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    By Cort Johnson in Simmaron Research.   Jonas Blomberg’s paper “Infection Elicited Autoimmunity and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: An Explanatory Model” was published in “Frontiers in Immunology”, an apt journal for a paper featuring an “explanatory model” of chronic fatigue syndrome (ME/CFS). Autoimmunity is definitely a new “frontier”; as Blomberg points out, it’s possibility […]

System Reset ? Study Suggests Pro-Inflammatory / Autoimmune Reset Occurred In Chronic Fatigue Syndrome (ME/CFS)

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  By Cort Johnson in Simmaron Research.   Epigenetics research holds the fascinating possibility of figuring out what shifted at the very beginning of chronic fatigue syndrome (ME/CFS).  For many with ME/CFS a sudden change occurred – some sort of biological reset quickly happened – which never relinquished itself. Finding out what “reset” occurred is […]

Stagnant Hypoxia – Where Chronic Fatigue Syndrome And Hyperadrenergic POTS Meet ?

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  By Cort Johnson in Health Rising.   Despite the current lack of consensus as to the underlying biological basis of CFS, there is considerable evidence … to highlight an abnormality of the autonomic nervous system as a unifying pathological factor. Newton et. al. 2013 A fascinating case of research confluence took place a couple of […]

The Cortene Chronic Fatigue Syndrome (ME/CFS) Drug Trial Begins

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  By Cort Johnson in Health Rising.   Since February, Health Rising has described the development of a new drug produced for chronic fatigue syndrome (ME/CFS) by a small pharmaceutical company named Cortene in three blogs: The Cortene Way: New Drug to Be Trialed in Chronic Fatigue Syndrome (ME/CFS) Soon – Pt. I Cortene II: A New […]

New Harvard Chronic Fatigue Syndrome (ME/CFS) Research Center Fulfills Crucial Need

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    By Cort Johnson in Health Rising.   In May the Open Medicine Foundation announced they’d committed a major chunk of change – $1.8 million –  to fund an ME/CFS Collaborative Research Center at Harvard Medical School affiliated hospitals. With the addition of the Harvard Center, chronic fatigue syndrome (ME/CFS) research centers are now found at two […]

Major Research Group Highlights Inflammation Energy Production Connection In ME/CFS

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  By Cort Johnson. The Simmaron Research Foundation is bringing the brain, the immune system and metabolism together in a way that’s never been seen before. “We propose that chronic low-grade inflammation induces and/or maintains persistent fatigue by inducing an imbalance between cellular-energy availability and cellular- and behavioral energy expenditure.” Lacourt et al. 2018 Neurosci. […]

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