ME and Politics

Department Of Health And Social Care – Must Do Better

By Sally Callow in Despite being extra unwell with Covid19/Long Covid myself, I have been beavering away in the background (as much as my weary M.E-slammed body would allow) to try and make ‘the powers that be’ as aware as possible that Covid19 had the potential to cause chronic illness in many people during […]

A Brief But Spectacular Take On Chronic Illness

The emergence of long COVID has drawn attention to poorly understood chronic illnesses. This week, over a thousand people living with those diseases signed up to meet virtually with members of Congress to push for more funding for chronic illnesses. Disability advocate Rivka Solomon gives us her Brief But Spectacular take on advocating for those […]

APPG On ME: Annual General Meeting And The Impact Of COVID-19 On People With ME/CFS

    From The ME Association. The Annual General Meeting of the All-Party Parliamentary Group on Myalgic Encephalomyelitis (ME) will take place on Monday 19 April between 11:00 – 12:00. In addition to AGM business, this meeting will focus on the impact of the COVID-19 pandemic on the ME community. Points of discussion will include the clinical and pathological overlaps between ME and Long Covid, the COVID-19 […]

APPGs Should Collaborate On ME And Long Covid

  From #MEAction UK.   #MEAction UK has written to the chairs of the Coronavirus All Party Parliamentary Group (APPG) and the Myalgic Encephalomyelitis APPG requesting they collaborate. We have highlighted 3 specific areas of overlap that could benefit from a collaborative approach: Graded exercise, post-exertional malaise and NICE guidelines Misleading and potentially dangerous advice […]

Latest Report Shows People With ME Have Been Failed By Scottish Government

From ME Action Scotland.   The Scottish Government has said it must not wait to address the needs of the ME community, but its latest report indicates that this is precisely what it has done and continues to do.  The ME community has also waited: for nearly twenty years, people with ME in Scotland have […]

M.E. Referenced In House Of Commons Long Covid Debate

  From Action For M.E. January 15, 2021 A Long Covid debate was held yesterday in the House of Commons during which MPs highlighted M.E. and called for lessons to be learned from the illness when treating Long Covid patients. We’ve summarised some key points from the debate below: Layla Moran MP highlighted that there are an […]

ME/CFS And Covid-19 Congressional Bill

From ME Research UK.   In May, a Bill was introduced into the US Congress (H.R. 5057) by Representative Jaime Raskin calling for “the expansion, intensification, and coordination of the programs and activities of the National Institutes of Health with respect to post-viral chronic neuroimmune diseases, specifically myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), to support the […]

My ME Puzzle

    MY ME PUZZLE From our early days as we grow We learn and add to what we know Each piece of knowledge builds a picture To help us make our living richer We find the people who fit right in Our family, friends, our kith, our kin We find beliefs, our way, our […]

Esther McVey Loses In Court On Universal Credit – But Says She Will Still Fight Others

  By Ros Wynne Jones in the Mirror.   The long waits for help under UC continue to drive impoverished families below the breadline. In May I wrote about the ­distressing case of two men – one dying and one disabled – fighting Esther McVey in the high court over cuts to their support due to Universal […]

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