ME Association

MEA Letter Published By The Times Re: Why Is Britain The Long Covid Capital Of The World ?

From The ME Association. Following a disappointing article from Josh Glancy that appeared in The Times on 14 June, the ME Association and Dr Charles Shepherd have now had an edited version of their letter published this morning. We show both versions of the letter below: Published Letter to The Times 16 June 2021 Re: Why is […]

What Is Hypopituitarism And Could It Be An Alternate Explanation For ME/CFS ?

  By Joanne Lane with comment from Dr Charles Shepherd in The ME Association.   I don’t have ME, but I have something important to say that I hope may help people who have. Twelve years ago, our 31-year-old son Christopher killed himself. We were devastated and desperate to find reasons. We wondered about the serious head injury he’d had when he was seven and we found that […]

MEA Responds To BBC Radio Scotland Recommendation Of GET For Long Covid & ME/CFS

  From The ME Association. On the 25 March, Jackie Brambles was standing in for Kay Adams on the BBC Radio Scotland Mornings show and held a phone-in with Dr Punam Krishnan around the issues of Long Covid. The show was in general very helpful. It reviewed, for example, the recent Long Covid study from the University of Leicester last week which concluded that seven in […]

‘Full-Up’ Signs In Place As Medical Students Let Us Unpack The Mysteries Of ME/CFS

  From The ME Association. This is a recording of a virtual educational meeting called ‘Demystifying ME/CFS’ which was held on Thursday, 14 January 2021. It was organised for doctors, other health professionals and medical students by students who run the Cambridge University General Practice Society. People with ME/CFS were also invited to attend.   To watch […]

ME Association Writes To Chief Medical Officer About Vaccine

From The ME Association. The ME Association has written to Professor Chris Whitty, Chief Medical Officer, and the Joint Committee on Vaccination and Immunisation, to seek clarification on COVID-19 vaccine priority for people with ME/CFS Dear Professor Whitty and the Joint Committee on Vaccination and Immunisation, The ME Association is starting to hear from people […]

The ME Association Flu Vaccine Information And Guidance For 2020 – 2021

By Dr Charles Shepherd, Hon. Medical Adviser, ME Association. Each year we fully update the ME Association information and guidance on flu vaccination in relation to ME/CFS. We hope to publish the free 2020-2021 leaflet by early October – once flu vaccination programmes begin, and we have all the relevant information about the new vaccine. […]

Forward ME Letter Re: Post-Covid/ME/CFS Management With Caution About Exercise

  By Russell Fleming, Content Manager, ME Association The following letter has been produced by the Countess of Mar and members of Forward ME which is a collaboration of M.E. charities that includes the ME Association. It has been used by, for example, Physios 4 ME, when encountering guidance from other organisations that has raised […]

ME Awareness: Failure To Accurately Diagnose Can Lead To Lifetime Of Misery And Suffering

  By Debbie Mckno in the ME Awareness website. My name is Debbie. Here is the story of my long, exhausting, and difficult battle to get diagnosed with Fibromyalgia and Myalgic Encephalomyelitis. From 17 years old, I was told by doctors, “You are just run down.” I had constant infections, viruses, and chronic tonsillitis. Feeling […]

Stalwart Champion Of The ME Community Retires After Distinguished Parliamentary Career

By Dr Charles Shepherd, Hon. Medical Adviser, ME Association.   ME advocate and parliamentary champion, the Countess of Mar, retires from The House of Lords after 45 years. Earlier in the week the Countess of Mar wrote to members of Forward-ME to say that she would be retiring from the House of Lords as from today. […]

ME Association Guidance: Coronavirus (covid-19) Update | 09 March 2020

  By Dr Charles Shepherd, Hon. Medical Adviser, ME Association. The ME Association information and guidance about the coronavirus that was originally issued in early February and updated again last week, will continue being updated and issued on a weekly basis. This is to take account of the rapidly changing situation here in the UK […]

ME Association May Summary of ME/CFS Published Research – 19 June 2019

  By Charlotte Stephens, Research Correspondent, ME Association. The Index of Published ME/CFS Research has now been updated to take account of the research that has been published during the month of May 2019. It’s a little later than normal due to ME-related absence. The Index is a useful way to locate and then read all relevant research […]

Post Twenty Seven. No, I’m Not Tired.

  From puffins&penguins&me.   The ME Association was recently asked by the media to compile a piece describing the difference between having ME and just feeling tired all the time. Given the frustratingly common misconception that ME is ‘feeling tired’, this of course resulted in a lively discussion on their Facebook page, and it prompted me to […]

Trial By Error: NIH Grants $2.1 Million To UK Biobank !

  By David Tuller, DrPH   The National Institutes of Health is making a $2.1 million grant to the UK ME/CFS Biobank–a huge endorsement of this important project run by CureME and housed at the London School of Hygiene and Tropical Medicine. Here’s what the ME Association wrote on its website: “The funding represents the biggest ever single […]

Review: People With ME/CFS Are More Functionally Impaired Than People With Multiple Sclerosis – 19 July 2017

  From The ME Association. Review: People with ME/CFS are more functionally impaired than people with multiple sclerosis | 19 July 2017   Insights into biomedicine, 12 June 2017. This was the main finding from an online study that compared people with ME/CFS with those suffering from multiple sclerosis – a disease that shares an overlap […]

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