ME awareness

Millions Missing

Millions Missing

  Millions Missing Tommy missing from the five a sides A different postman today Jenny not out, not seen her about Maybe she’s just gone away No Mary at the Bingo Charlie, where is that guy? Rang the teacher, couldn’t reach her Didn’t think to wonder why Jack from the pub Hayley down at the […]

What Have Tea And Cake Got To Do With M.E. ?


    By Anna Redshaw in her M.E. Myself and I Blog.   In my experience it can be difficult to get non-sufferers to properly engage with M.E. advocacy efforts. There can be many reasons for this. Perhaps they find it upsetting to think of the depths of their loved one’s suffering. Or they don’t […]

Adelaide Oval Lights Up In Blue For ME Awareness Week

Adelaide Oval 12 May 2016

    By Jac Creedon in ME Australia.    Since 2015, Adelaide Oval in South Australia has been lit up in blue in recognition of ME Awareness. This year, it will be illuminated on Thursday May 9. It has been organised every year by Jac Creedon, who has had ME for 28 years. Jac lives […]

How You Can Help the ME/CFS Community

ME Awareness Day

  By Jo Moss in The Mighty.   The reason I started writing about my experiences was to raise awareness of invisible illnesses like ME/CFS and fibromyalgia, and to try to reach out to help others who are suffering like myself. I often feel I’m not doing enough to raise awareness, so today’s post is an […]

ME Being Discussed On BBC Radio Scotland On 14 February


  Tomorrow, 14th February, at 12 noon, BBC Radio Scotland’s John Beattie programme will be interviewing several people about issues around ME. Those being interviewed we have been told, include: – MP Carol Monaghan – who has secured next week’s Parliament debate on the Pace Trial – Janet Sylvester – organiser of the recent Scottish […]

Science, Politics And ME. – A Book By Dr Ian Gibson

ME Book Logo

      From Invest in ME Research.   Background At the 10th Invest in ME International ME Conference 2015. Dr Ian Gibson announced that he was planning on writing a book about ME – and the politics and prejudice which has affected the way that ME is perceived, treated, researched and funded – as well […]

Comment: Where Is Chronic Illness Represented In Popular Culture?

Dr House

    Chronic illness is misrepresented in TV and film, and it damages the lives of people coping with it, writes Naomi Chainey in SBS.   I once watched an episode of House M.D. where a man came to the clinic and outlined his symptoms.  Familiar symptoms.  My symptoms.  Having just been diagnosed with one […]

Pacing Yourself With Fibromyalgia & Chronic Fatigue Syndrome


  By Adrienne Dellwo in Very Well.   When living with fibromyalgia and chronic fatigue syndrome, pacing is key to managing your symptoms. That’s easier said than done with the busy lives most of us lead, but with some effort, you can learn to pace yourself. Why is Pacing Important with Fibromyalgia & Chronic Fatigue […]

Do You Want Your MP To Have A Better Understanding Of M.E.? 


  The All Party Parliamentary Group (APPG) on M.E. is hosting an awareness-raising drop-in session for MPs in London on Wednesday 11 May from 12.45pm to 2pm. If you’d like your MP attend, get in touch with them now if you can, or get someone well enough to email them.  Just Google to find out […]

7 Things You Need To Know About Supplements


    By By Adrienne Dellwo in About Health.   Getting Started With Supplements: Many doctors, researchers and people with fibromyalgia (FMS) and chronic fatigue syndrome (CFS or ME/CFS) say nutritional supplements are an important part of managing your symptoms. Many of us swear by them, and some people use supplements as an alternative to medications. However, […]

Caterham Model’s Fashion Show Raises Over £800 For ME


  By Kevin Black in Local People.   Caterham based model Joanna Chamberlain has raised over £800 for charity with a spectacular fashion show held in the town’s New Caterham Arms pub. Joanna and Her Vintage Violets  was the title of the evening and the theme was the 1940s-50s and was in aid of a […]

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