PACE Trial Data Release

Trial by Error: NICE Rejects My FOI Request

  By David Tuller, DrPH in Virology Blog.   The National Institute for Health and Care Excellence, the U.K. organization that develops clinical guidelines for medical conditions, has rejected my freedom-of-information request for the names of the experts involved in the reassessment of the guidance for the illness it calls CFS/ME. This isn’t surprising, since […]

Trial By Error, Continued: Is PACE A Case Of Research Misconduct ?

    by David Tuller, Dr PH [June 25, 2017: The last section of this post, about the PLoS One study, has been revised and corrected.] I have tip-toed around the question of research misconduct since I started my PACE investigation. In my long Virology Blog series in October 2015, I decided to document the […]

PACE Study Data Released After 5 Year Fight

    This week, Queen Mary University of London (QMUL) released data from its controversial PACE study on myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS), as required by a tribunal decision. The data release came after five years of pressure from patients and scientists who questioned the study’s claim that graded exercise and cognitive behavioral therapy were effective […]

UK Tribunal Orders Release Of Data From Controversial Chronic Fatigue Syndrome Study

  From Retraction Watch. A tribunal in the UK has rejected an appeal by Queen Mary University of London, who sought to reverse a previous order that they release data from a controversial 2011 paper in The Lancet about chronic fatigue syndrome (CFS). The decision is one in a long series of judgments about the […]

QMUL Spend £250,000 On PACE Data Tribunal

  By Alex Anderssen in #ME Action. Queen Mary University of London (QMUL) have revealed that they spent £250,000 on legal fees in the recent tribunal concerning the release of anonymised data from the PACE trial. Their statement was made in response to a query made under the Freedom of Information Act by Mr. John […]

#MEAction Delivers Lancet PACE Petition, Makes Wall Street Journal

  #MEAction has sent an 11,000-signature petition to The Lancet, calling for the retraction of “misleading” analyses and claims published in a 2011 PACE trial paper concerning the effectiveness of cognitive behavioural therapy and graded exercise therapy for ME/CFS. Copies of the petition, which when printed were over 400 pages, were also delivered to the UK […]

PACE Trial’s Forbidden Fruits: An Open Letter To AYME

  From a blog by The Self Taught Author.   On 1st February, I wrote to each of the ME/CFS charities in the UK asking them to back patients up in calling on Queen Mary University of London (QMUL) to release anonymized PACE trial data. Lots of other patients joined the effort and contacted the […]

PACE Trial News

  The following information comes from #ME Action.  Please consider lending them your support.   36 more scientists join open letter on PACE – An international group of 36 scientists and clinicians have added their names to an open letter that was sent three months ago to The Lancet, pointing out serious problems in the PACE trial. Tuller […]

PACE Trial’s Forbidden Fruit, Part 3: Charities Must Echo Patient Calls For Data Release

  A Blog by The Self Taught Author.   I recently wrote about the Freedom of Information (FOI) request that the Information Commissioner upheld, ordering Queen Mary University of London (QMUL) to release the data requested from the PACE trial. I provided an example of exactly what data was requested to demonstrate that the release […]

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